5 Helpful Tips for Caregivers of Loved Ones with Special Needs
Entrusted Legacy Law
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Mar 03, 2023
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Studies show looking after those with special needs exacts a toll on caregivers. As the saying goes, “you can’t pour from an empty cup.” If you've been a caregiver for a loved one with a disability or chronic illness, ensure you're healthy physically and mentally. Here are five tips that can help you prioritize self-care.
1. Know Your Limits.
It's admirable you're caring for a disabled loved one, but you must keep your abilities and skill set in mind. Even if you're a health care worker, you still may need to contact professional help in some situations.
Create and maintain a good relationship with your loved one’s medical team, and don't hesitate to contact their doctor when something is beyond your ability.
2. Try to Avoid Burnout.
The subject of burnout usually centers on stressful jobs that essentially cause workers to lose themselves in their work. Caregivers also face the risk of experiencing burnout, and the chances of burnout may be greater because some caregivers don't think they can stop working.
Burnout is mental, physical, and emotional exhaustion, which can come about for many reasons. Causes of burnout include:
Trying to live up to unrealistic expectations, whether they're your expectations or those of family or friends.
The inability to control your loved one’s condition, particularly if their condition worsens over time.
Feeling unable to separate your role as your loved one’s spouse, partner, parent, child, or friend from the role of their caregiver. Setting boundaries is an essential part of making this distinction.
3. Lean Into Your Support System.
Part of caring for yourself is learning to delegate responsibility. It's impossible to do everything alone and maintain good mental health. If you have family members willing to take on some of the work and responsibilities of caring for a loved one, let them!
Similarly, make an effort to express your concerns and anxieties to your family and friends. Caring for disabled loved ones is very stressful, no matter how rewarding in some respects. Remember you're only human; it's OK to need a shoulder to cry on, a listening ear, and someone else to take charge for a while.
4. Create a Support System If You Don’t Have One.
If you don't have family support, create a support team by reaching out to other caregivers. Various resources are available to help you create a network to lean on when caring for a disabled loved one becomes overwhelming.
Among the online and in-person groups that provide emotional support, offer tips about caring for a loved one with special needs, and can point you in the direction of community resources if you need help caring for your loved one are the following:
Different Dream
Mommies of Miracles
The Arc
The Caregiver Action Network
5. Plan for the Future.
You cannot hold the reins forever, and you know there's a possibility that you'll need to choose someone to act as your disabled loved one’s caretaker in the future. The thought probably causes anxiety and contributes to your overall stress level. To alleviate that anxiety, start planning. One way to plan for the future is by creating a Memorandum of Intent.
A Memorandum of Intent guides future caregivers so they know how to care for your disabled loved one properly. You can include any information you think will be helpful for them, including a list of your loved one’s medications as well as their likes and dislikes, contact information for health care providers, their schedule of daily activities, and so on.
Remember your loved ones are thankful for your care and attention. You owe it to yourself to be easier on yourself. Let your time with your family and loved ones remind you that you're not in this alone and you don't need to do everything on your own. Fill your cup with those around you, and you'll see you can better care for your loved one with special needs.
This article is a service of Sharek Law Office, LLC. We don’t just draft documents; we ensure you make informed and empowered decisions about life and death, for yourself and the people you love. That's why we offer a Life and Legacy Planning Session, during which you will get more financially organized than you’ve ever been before, and make all the best choices for the people you love. You can begin by calling our office today to schedule a Life and Legacy Planning Session and mention this article to find out how to get this $750 session at no charge. Please note this is educational content only and is not intended to act as legal advice.
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This is designed to fairly compensate them for their time and effort in managing estate matters.However, Executors can be held personally liable for any mistakes made during the process. Given the complexity of Pennsylvania probate rules, its critical to work with a skilled probate attorney to avoid legal pitfalls.Do You Need to Go Through Probate If a Trust Exists?In most cases, no. If the deceaseds assets were properly titled in the name of a trust, probate is not required. Instead, the successor trustee will work with an estate planning lawyer to administer the trust and distribute assets.However, many families are surprised to learn that simply having a trust does not guarantee that probate will be avoided. Common mistakes include: The trust was not updated over time to reflect new assets. The decedents assets were never properly transferred into the trust.To ensure your estate plan works as intended, its important to work with an estate planning attorney who provides ongoing trust maintenance and reviews.Which Assets Are Subject to Probate in Pennsylvania?Assets that must go through probate include: Real estate, bank accounts, or investments owned solely in the deceaseds name Personal property and valuable assets without a beneficiary designationAssets that bypass probate include: Jointly owned property with Right of Survivorship Bank accounts or investment accounts with Transfer on Death (TOD) or Payable on Death (POD) designations Life insurance policies and retirement accounts with named beneficiariesHowever, some assets that normally bypass probate can still become subject to the process under certain circumstances. Consult with a Pennsylvania probate attorney to determine if probate applies to your specific situation.How Pennsylvania Intestacy Laws Distribute an Estate When There Is No WillIf no valid will exists, Pennsylvania intestacy laws dictate how the estate will be distributed:1 Spouse (If married, a portion or all of the estate goes to the spouse)2 Children (If the deceased had children, they inherit next)3 Parents (If there are no children, parents inherit)4 Siblings (If no spouse, children, or parents, siblings inherit)This highlights the importance of estate planningwithout a will or trust, the state determines who receives your assets.How Long Does Pennsylvania Probate Take?The timeline for Pennsylvania probate varies depending on the estates complexity. On average: Minimum of 12 months for simple cases Up to 2+ years for complex estates, disputes, or tax-related mattersWhat Are the Costs of Probate in Pennsylvania?Probate costs in Pennsylvania include: Attorneys fees (Based on estate size and complexity) Court filing fees Executor fees (set by Pennsylvania law) Appraisal and valuation fees Publication and administrative costsIn more complex estates, additional fees may apply, increasing probate expenses and delays.How to Choose the Right Pennsylvania Probate AttorneySelecting the right probate lawyer in Pennsylvania is crucial. Many general practice lawyers dabble in probate law, but only experienced probate attorneys have the knowledge to navigate complex estate matters efficiently. You do NOT have to use the attorney who prepared the will. You have the right to choose a specialized probate lawyer who understands the nuances of Pennsylvania estate law and can expedite the process. Avoid costly mistakes. Working with an experienced probate attorney prevents errors that could increase costs, cause delays, or result in legal disputes.Contact Entrusted Legacy Law for a Complimentary Pennsylvania Probate ConsultationIf youre ready to begin the probate process in Pennsylvania, our Allegheny County, Butler County, Delaware County, Montgomery County, Bucks County and Philadelphia County probate attorneys are here to guide you.Call us at 412-347-1731 to schedule a complimentary 15-minute consultation to determine your next best steps.During your consultation, we will: Answer your probate-related questions Provide guidance on estate administration Help you navigate the Pennsylvania probate process efficientlyWe are here to relieve the legal and administrative burden during this difficult time and ensure that your loved ones estate is handled with care.