A Lesson Learned By An Ombudsman

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Sep 27, 2016

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One of my first complaint investigation as a Long Term Care Ombudsman came from a man who stated he was being denied dessert by staff at meal times.
When I asked the facility about this they responded that he is diabetic and should not have sweets by order of a physician and request of the family.

The complainant pointed out he was a veteran and stated very clearly that he had earned the right to eat chocolate cake after fighting in the South Pacific during WWII. He explained to me that he agreed his health was not the best and this was true, but that he understood the consequence and would still like to have dessert. He added that he needs a wheelchair and cant see well so he depends on others to help him. He stated that in all his years he had never shared a room with another person other than his wife and had just moved into a room with a stranger. He had to sell his home and many of his possessions after his wife died. He now needed somebody to help him in most aspects of his daily life who were also strangers. Having dessert was one thing that was familiar and provided some distraction as to how much his life had changed recently. He asked me what should he live for if he is denied chocolate cake?

This was about his independence and restoring something to his life that gave him pleasure when he felt so much had already been taken. This was not about a sweet tooth as I first suspected. This complaint was about the dignity that is provided by allowing people to assume risk and make their own choices. Even when those choices would not be the choices we would make for ourselves. This was about a man wanting some normalcy and control of his own life when he felt he had none. This was about how rights are altered for concerns of safety without consideration of harm to a persons spirit. I learned there is dignity in allowing risk and that what may seem trivial may have much deeper meaning to another person.

Editors Note: This article was submitted by Scott Bartlett Long Term Care Ombudsman with the Area Agency on Aging, Pikes Peak Area Council of Governments.He may be reached at 719-471-7080 x 113 or by email at [email protected]

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to provide unlimited assistance.Create a Written PlanA shared calendar or responsibility chart can help family members understand their roles.Include Professional SupportWhen necessary, professional caregivers or care coordinators may help address gaps in family availability.Organizing Important Financial and Healthcare DocumentsDocumentation becomes especially important when care arrangements or benefit applications change.Records Worth OrganizingThese may include:IdentificationInsurance policiesMedicare informationIncome statementsBank and investment recordsProperty documentsRetirement account informationHealthcare provider contactsCurrent medication listsRelevant legal documentsStore Information SecurelyFinancial and medical information should be accessible to appropriately authorized individuals while remaining protected from unnecessary disclosure.Review Legal AuthorizationPowers of attorney, healthcare directives, and other legal documents should be prepared or reviewed by qualified legal professionals.Sky Senior Planning does not practice law.Creating a Plan for Unexpected Health ChangesEven a carefully developed plan may need to change after a medical event.A serious illness can quickly affect mobility, cognition, and care requirements.Emergency Planning QuestionsWho should be contacted first?Where are important documents stored?Who can communicate with healthcare providers?What temporary care options are available?How will household responsibilities be managed?Who will review new expenses?What happens if the current home is no longer suitable?Keep Contact Information CurrentFamilies should periodically review emergency contacts and decision-making arrangements.Reassess After HospitalizationDischarge planning may reveal care requirements that differ from those anticipated earlier.The long-term plan should be updated accordingly.Avoiding Common Long-Term Care Planning MistakesFamilies may encounter unnecessary difficulties when they assume care expenses can be addressed later.Mistakes to AvoidAssuming Medicare covers all long-term careIgnoring possible future care increasesComparing only monthly residence feesOverlooking home maintenance costsFailing to review insurance policiesNot discussing family responsibilitiesTransferring assets without qualified adviceWaiting until a crisis to organize documentsAssuming Medicaid approval is guaranteedNeglecting to review the plan periodicallyA structured approach can help families identify these issues earlier.How Often Should a Long-Term Care Plan Be Reviewed?An eldercare plan is not necessarily a one-time document.Changing circumstances may require new decisions.Review the Plan WhenA medical condition changesMobility declinesCognitive needs increaseA spouse's circumstances changeFinancial resources changeCaregiver availability changesA new residential setting is consideredInsurance coverage changesMedicaid eligibility becomes relevantOngoing Support From Sky Senior PlanningSky Senior Planning identifies ongoing planning and compliance monitoring among its services.Families can discuss whether periodic reviews would be useful for their circumstances.Questions to Ask a Long-Term Care Planning ProviderBefore beginning a planning engagement, families should understand what the provider will evaluate.Helpful QuestionsHow will our future care costs be estimated?Which care settings should we compare?Will our retirement income and assets be reviewed?What benefit programs may be relevant?How are changing care needs incorporated?What documentation should we prepare?Which planning services are included?When would an attorney or financial advisor be needed?Is ongoing monitoring available?What are the service fees?Clear answers can help establish realistic expectations.Expert Tip: Build Three Care ScenariosLong-Term Care Planning Tip: Create three possible care budgets: one for limited assistance at home, one for daily residential support, and one for more extensive long-term nursing care. Include housing, personal care, insurance, transportation, and additional expenses in each scenario. Reviewing these possibilities can help families see where their current resources may be sufficient and where additional planning may be needed.The goal is not to predict exactly what will happen.It is to make future decisions less dependent on incomplete information.Frequently Asked Questions About Long-Term Care Planning1. When should families begin planning for long-term care?Planning can begin before an older adult requires extensive assistance. Reviewing preferences, finances, insurance, and possible care options early may provide more flexibility if needs change.2. Is staying at home always less expensive than assisted living?No. Home care costs depend on the number of hours and type of assistance required, while homeownership also involves maintenance, utilities, and other expenses. Assisted living costs depend on the residence, services, and care level. Families should compare the full financial picture.3. Does Medicare pay for ongoing long-term personal care?Medicare generally does not cover ongoing custodial care when that is the only service needed. It may cover qualifying skilled nursing or rehabilitation services under specific rules. Other payment options may be necessary for long-term support.4. Can New Jersey Medicaid help with long-term care expenses?NJ FamilyCare's MLTSS program may provide qualifying services in the home, assisted living, community settings, or nursing facilities. Applicants must meet applicable financial and clinical requirements, and specific services depend on authorization and program rules.5. How can Sky Senior Planning assist with long-term care planning?Sky Senior Planning provides benefit assessments, personalized eldercare planning, financial reviews, Medicaid application support, and coordination with appropriate legal and financial professionals. The organization can help families understand their options but cannot guarantee eligibility or financial outcomes.Preparing for Care Needs With Greater Financial ClarityLong-term care planning is an important part of protecting an older adult's quality of life and understanding the financial responsibilities that may accompany aging.Care needs can change gradually or unexpectedly.Someone who requires occasional help today may later need daily personal care, assisted living, memory support, or residential nursing services.Each arrangement involves different practical and financial considerations.For seniors and families throughout Monmouth County, New Jersey, Sky Senior Planning offers guidance designed to help organize these decisions.Through individualized benefit assessments, long-term care planning, financial reviews, and Medicaid-related support, the organization helps families evaluate possible care pathways and prepare for changing circumstances.Thoughtful planning should consider where care will be provided, how it may be funded, which responsibilities family members can realistically manage, and what steps may be necessary if needs increase.No plan can eliminate every uncertainty or guarantee a particular financial result.However, families who understand their options, maintain organized information, and seek qualified guidance when needed may be better prepared to make informed decisions.Learn More About Sky Senior PlanningLooking for help planning future long-term care expenses in Monmouth County, New Jersey?Visit Sky Senior Planning on SeniorsBlueBook.com to explore its Long Term Care Planning listing and learn more about personalized eldercare planning, financial assessments, and benefit guidance.Contact Sky Senior Planning to discuss long-term care goals, anticipated expenses, available financial resources, Medicaid planning considerations, and the services offered through its eldercare planning team.Preparing for changing care needs today can help families make more informed decisions about their financial resources and future support arrangements.