Accepting the Diagnosis

Posted on

Dec 14, 2021

To learn more aboutAlzheimer's Association of Utah, CLICK HERE.

Learning that someone you care about has been diagnosed with Alzheimers or other related dementia can be life changing.Coming to terms with the diagnosis requires time. Immediate reactions of denial and fear are normal and may help you and the person diagnosed process the grief you are feeling.


Process of acceptance
Finding purpose
Getting support

The process of acceptance
Perhaps you tried to encourage the person living with dementia to learn about their diagnosis, only to be told nothing is wrong. Perhaps you may have been hesitant to learn more yourself for fear of the future. Whatever the circumstance, accepting a diagnosis of Alzheimers disease or a related dementia requires time to absorb information about the disease before you might be ready to learn more.
Allowing time to process the diagnosis is an important first step to adjust to this new normal. The process of acceptance is just as important for the care partner as it is for the newly diagnosed person. No two people deal with the diagnosis in exactly the same way. There is no right approach and some days may be more difficult than others, but dont be discouraged.

Allowing yourself time to grieve and mourn over the current and future losses you and the diagnosed person may experience can be healthy. The sooner you are able to accept the diagnosis, the better suited you will be to help the person living with dementia move closer to acceptance too.
Individuals with the disease acknowledge that while it often takes time to accept their diagnosis, specific actions initiated by the care partner help in this process.
Patience, flexibility and open communication can provide reassurance that the person with the disease does not have to face their diagnosis alone. For many, the simple reinforcement from their care partner that we are in this together is the most memorable act of support.
Consider these tips to help the person in the early stage of the disease come to terms with his or her diagnosis:

Provide time for the individual to feel sad about how his or her identity is changing as a result of the diagnosis.
Emphasize the roles and responsibilities that are still significant to the individuals identity, i.e. grandfather, mother, daughter, etc.
Encourage the person to speak with a trusted friend, minister or even a professional counselor, to talk through difficult emotions.

Sharing the diagnosis with others can open up new relationships and connections to people you did not realize were willing to support you. For others, hearing of the diagnosis may test relationships and some friends and family may react with denial, or pull away in ways that reflect their misconceptions about Alzheimers disease.
Yet, it can be empowering to share the diagnosis with others. Be open with friends and family about the changes that are taking place. Educate them on the disease and tell them how they can be supportive.
Maintaining a sense of self and finding purpose
A diagnosis of Alzheimers or other dementia is often accompanied by uncertainty around ones identity and life purpose. New challenges presented by living with the disease including stigma and misperceptions can cause the person to question his or her capabilities and, in turn, his or her identity. Its not uncommon for a person living in the early stage to ask the question Who am I?
One way for people in the early stage of the disease to move beyond the loss of identity is to find ways to engage in activities that bring meaning and purpose to their life. For some, this means exploring skills they already possess, while others may choose to engage in new activities that bring a fresh sense of purpose.
Finding a new purpose can help confirm that Alzheimers does not have to define a person; it only becomes a part of who they are. Consider the tips below to help the person in early stage find meaning and purpose:

Discuss what brings meaning and purpose to his or her life.
Encourage the person to stay involved in activities he or she enjoys.
Consider activities you can do together.
Work together to identify opportunities at home or in the community that can leverage his or her strengths and interests.
Discuss what new activities the person may be interested in trying.
Encourage the individual to get connected with others who are living with the disease to learn what they are doing to remain active and engaged in life.


Getting support
A diagnosis of Alzheimers or dementia is life-altering for both the person living with the disease and family and friends.
You play an important part in providing support to the person who has been diagnosed. Along the way, you will need the support of others, too.
Often times, care partners look to family and friends first. Once youve identified trusted friends or family members, be specific about how you would like to engage their support. This can be assistance with transportation to or from medical appointments, help with social outings or simply having someone to talk with.
There are also community programs, support groups and online social networks that provide the opportunity to learn from others who have a friend or family member with dementia.
We often hear care partners say that they are looking for support from people who "really understand because they've been there, too."

Other Articles You May Like

Recognizing Behavioral Changes in Seniors with Alzheimers

Caring for a loved one with Alzheimer's can be challenging, but Alzheimer's and dementia care offers vital support and resources as the disease progresses. It can be difficult to care for a loved one who has Alzheimers, especially when the disease progresses, and behavioral changes become more obvious. When this happens, relying on Alzheimers and dementia care can provide much-needed support and resources.  Identifying Behavioral Changes The hallmark of Alzheimers disease is a progressive loss of cognitive function, which frequently results in profound behavioral and personality changes. These changes may include the following: Aggression and Agitation: Unexpected bursts of rage, irritation, or unease are not uncommon. This could be the result of annoyance, confusion, or a poor ability to express needs. Wandering: Seniors who have Alzheimers disease may wander off from their house, frequently as a result of confusion or a wish to return somewhere they know well. Alzheimers and dementia care tips can assist family members in knowing what modifications they can put in place to make sure seniors are safe. Repetition: Repeating questions, phrases, or actions is a habitual behavior. Seniors may use this repetition as a coping mechanism for fear or memory loss. Sundowning: Sundowning is the term for heightened agitation, disorientation, or restlessness in the late afternoon and evening. It can make things especially difficult at night. Paranoia and Delusions: Seniors may start to believe things that arent true, like that someone is trying to break into their home or that family members are out to get them. Depression and Withdrawal: As the disease progresses, apathy, a loss of interest in activities, and social withdrawal are possible outcomes.   Understanding Behavior Triggers Certain triggers frequently cause behavioral reactions in seniors with Alzheimers disease. Understanding these triggers and utilizing tips from Alzheimers and dementia care providers will assist loved ones in controlling and minimizing problematic habits. Typical triggers might include the following: Environmental Factors: Disorientation and uneasiness might be brought on by crowded areas, loud noises, or strange environments. Physical Discomfort: Anger or agitation may be brought on by pain, hunger, thirst, or exhaustion. Communication Issues: Being unable to communicate needs or understand others can be upsetting. Routine Changes: When everyday routines are disturbed, it can lead to anxiety and disorientation. Overstimulation: Excessive activity or stimulation can be exhausting, particularly in large gatherings.   Techniques for Handling Behaviors with Alzheimers and Dementia Care Behaviors related to Alzheimers disease need to be managed with tolerance, adaptability, and understanding. The following techniques may be useful: Maintain a Regular Schedule: Seniors with Alzheimers disease may feel more secure when their environment is predictable and structured. Loved ones should make an effort to maintain regular daily schedules for meals, activities, and bedtime. Simplify Communication: Its important to speak slowly and in plain, simple terms. Additionally, dividing tasks into manageable steps and providing moderate direction can make a big difference. Redirect Attention: If loved ones start to show signs of agitation, attempt to divert their focus to another task or subject. For instance, offer to take them for a walk or have them go through a photo album if they are frustrated about not being able to discover what they are looking for. Focus on Compassion: Even if their concerns are unwarranted, family members should acknowledge seniors emotions and provide comfort. For example, if they are concerned that someone might take their possessions, gently assist them in locating a secure location to store those items.   Alzheimers disease naturally causes behavioral changes. While these changes can be difficult to manage, knowing what triggers them and using helpful coping mechanisms will greatly improve the standard of care seniors are given. Working together with the resources from Alzheimers and dementia care and loved ones can make things easier for seniors as the disease progresses.    If you or an aging loved one are considering Alzheimers and Dementia Care in Lakewood, CO, please contact the caring staff at Talem Home Care & Placement Services today. Call (720) 789-8529 At Talem Home Care of Broomfield, we provide passionate, understanding, and flexible caregivers in Broomfield, Arvada, Aurora, Boulder, Brighton, Commerce City, Denver, Erie, Firestone, Lafayette, Lakewood, Longmont, Louisville, Northglenn, Sherrelwood, Thornton, Welby, Westminster, Wheat Ridge and surrounding areas in Colorado. 

Communicating Beyond Words: 6 Dementia Communication Techniques

Communicating Beyond Words: 6 Dementia Communication TechniquesCaring for someone with dementia is a profound and emotional experience. Dementia impacts how individuals process and express thoughts, making communication challenging. Yet, as words become elusive, connections can still flourish through compassionate and effective dementia communication techniques.At Community Senior Life, we provide memory care services throughout Alabama and are committed to providing family members and caregivers with practical and effective strategies to communicate beyond words alone. Our team is sharing some of these dementia communication techniques to enhance your and your family members connection.The Importance of Non-Verbal CommunicationWhen verbal communication falters, nonverbal techniques offer a lifeline. Learning and incorporating nonverbal communication becomes essential. Simple gestures, expressions like a warm smile, familiar surroundings, music, and other nonverbal cues bridge gaps in understanding, providing comfort and connection. Leveraging these cues can create a more nurturing and supportive setting to help individuals feel seen and valued.6 Effective and Compassionate TechniquesUse Body LanguageBody language is one of the most powerful dementia communication techniques. Maintain an open posture, face the person directly, and use calm, slow movements. Avoid crossing your arms or displaying impatience, as these can create barriers and increase feelings of frustration or isolation. Instead, extend a hand or offer a gentle touch to show support and encouragement. Smiling and nodding can also help convey warmth and understanding, making the person feel more comfortable and valued.Create a Familiar SettingMaintaining a space that feels familiar can help your family member feel safe and ease anxiety. Surround your loved one with cherished items, photographs, and comforting scents that evoke positive memories and a sense of home. Consistent routines provide a sense of stability, reducing confusion and creating a predictable setting. Incorporating daily rituals, like having a cup of tea at the same time each day, can further enhance their sense of security and familiarity.Music for Mood and MemoryMusic is another one of the profoundly effective dementia communication techniques. Music can evoke emotions, trigger memories, and create connections that transcend verbal communication. Play familiar tunes or songs from their youth to stimulate joy and engagement. Encourage gentle humming or tapping along, fostering a shared moment of happiness and connection. Simple instrument playing or sing-alongs can further engage a family member with dementia in a therapeutic and enjoyable manner.Eye Contact and Facial ExpressionsEye contact can convey presence and attentiveness, making a family member with dementia feel valued and recognized. Combine this with warm, expressive facial expressions to show empathy and understanding. Smiles, nods, and soft gazes can transcend verbal limitations, bridging emotional gaps and fostering a deeper connection. Additionally, mirroring their expressions and emotions can help them feel understood and connected, reinforcing their sense of self-worth and significance.Voice Tone and Personal AppearanceA gentle, soothing tone of voice can reassure and calm individuals with dementia. Speak slowly and clearly, using simple phrases and pausing to allow them time to process information. Your personal appearance also matters; dressing neatly and maintaining a clean, welcoming demeanor can make interactions more pleasant and respectful. These elements combine to create a comforting presence, helping to set a positive tone for communication and interaction.Giving Personal SpaceWhile engagement is vital, an often overlooked dementia communication technique is simply providing space and respecting privacy. Allow your relative moments of solitude, ensuring they feel autonomous and dignified. Providing opportunities for independent tasks, such as simple occupations or hobbies, can enhance their sense of self and purpose. Balancing interaction with independence fosters a respectful and empathetic relationship, ensuring that their needs for both connection and privacy are adequately met.Enhancing communication with people we love and who have been diagnosed with Alzheimers disease or any other form of dementia requires patience, empathy, and creativity. Compassionate care is the foundation of our memory care communities in Alabama, enriching lives and nurturing bonds. Are you ready to enhance your communication with those close to your heart? Contact a member at 251-981-0200 of the Community Senior Life team to learn more about our programs, amenities, and services. Better yet, schedule a tour at any of our memory care communities in Alabama to discover how our compassionate caregivers can support your family member and provide them with a dignified lifestyle.

Do Therapy Dogs Help Alzheimers Dementia Patients?

Visit any critical care unit, childrens hospital, or other specialty inpatient facility, and youll find a common feature: therapy dogs. For decades, healthcare practitioners have understood the surprisingly positive effects on patients of time spend with cute and cuddly dogs. Therapy dogs reduce stress, improve mood, and can help patients reframe their outlook on whatever condition ails them. The positive effects of patient interactions with therapy dogs are a well-documented fact of the medical world. Senior citizens with limited mobility and other health conditions also benefit from the companionship of dogs. Owning a pet reduces feelings of loneliness among seniors living at home or in a retirement facility, which in turn greatly reduces the risk of diseases associated with loneliness and isolation. Pets can also decrease the number of stress hormones in a persons blood, lower blood pressure, and contribute to a more positive outlook on life. Dogs and other pets, it seems, have tremendous healing powers!Since Alzheimers patients cannot adequately care for a pet, owning one is out of the question. Considering the nature of Alzheimers dementia, it is easy to assume that a loved one may not benefit from a pet since they will not remember the interaction. Researchers, convinced therapy dogs would have a positive effect on Alzheimers patients, put this question to the test: Do Therapy Dogs Help Alzheimers Dementia Patients?Short-Term Benefits of Therapy Dogs for Patients with Alzheimers Dementia.A study conducted in the early 2000s looked carefully at the subject of therapy dogs and Alzheimers dementia patients. They measured the incidence of behavioral disturbances among patients in a nursing home for a period of four weeks, then introduced therapy dogs. Their initial findings showed that the dogs helped to reduce behavioral disturbances in the short term, meaning they helped to immediately calm patients. The short-term effects proved that therapy dogs do have a positive effect on patients with Alzheimers disease, particularly in regards to anxiety, anger, and changes in behavior associated with the disease.Long-Term Benefits of Therapy Dogs for Patients with Alzheimers Dementia.The same study did not stop at the short-term effects of therapy dogs on Alzheimers patients. Previous assumptions suggested that since patients would not remember their encounters with the therapy dogs, the effects of spending time with them would vanish from one day to the next. Not true, the study authors found. Although most of the patients did not remember their interactions with the therapy dogs (some did), the behavioral disturbances noted in the four weeks prior to the study reduced. In fact, the longer and more frequently patients interacted with the therapy dogs, the less they exhibited behavioral disturbances.Therapy Dogs As A Long-Term Therapy.The study findings confirmed what clinicians suspected all along: dogs are an excellent long-term therapy for persons with Alzheimers dementia to reduce the incidence of behavioral disturbances. Therapy dogs also had the same effect on Alzheimers patients as they do on other kinds of patients, including reduced stress and anxiety, lower blood pressure, better appetite, and fewer feelings of loneliness. These effects continued to increase the longer and more frequently patients interacted with the dogs.What Makes Dogs Such Good Therapy?Dogs are wired to give unconditional love and devotion. They can provide physical and social contact where it is missing, and they are not picky. what sets dogs apart, particularly those trained as therapy dogs, is that they will approach anyone regardless of their physical or mental deterioration, and initiate contact. Patients can pet, hug, and cuddle dogs unlike any other kind of pet. These positive interactions provide a distraction to the other goings-on around them and provide relief for those suffering from sadness, anger, or angst.The Takeaway.Dogs have a tremendous healing power. While studies have focused specifically on Alzheimers dementia patients, their positive effects will benefit anyone suffering from general dementia. Families of patients will feel relief that their loved ones have fewer outbursts of anger, sadness, or angst. While dementia impairs memory, it does not interrupt the long-term benefits of regularly interacting with a therapy dog. In fact, the more they interact with a therapy dog, the fewer behavioral problems they exhibit.