Alzheimer’s: Caregiving After the Diagnosis

Dont Wait: Why End-of-Life Conversations Cant Be Put Off According to an article by Johns Hopkins Medicine, two-thirds of Americans dont have a living will or advance directive. Planning ahead can help reduce stress and uncertainty for both seniors and their loved ones. A lot of people dont know what an advance directive is, says Lectoria Byron, a social worker with our Mobile, Alabama program. So, its giving them that knowledgeinforming them of exactly what it is and how it can help them. That eases a lot of anxiety. We sat down with Lectoria and Registered Nurse & Case Manager Amanda Albright to find out why these decisions matter and how the PACE care model fosters them. What is an advance directive and why does it matter? An advance directive is a legal document that explains what kind of medical care you want if you cant speak for yourself. It usually has two main parts: A living will, which says what treatments you do or dont want.A durable power of attorney for healthcare, which names someone you trust to make medical choices for you. Imagine for yourself, Amanda says. Someone you love deeply is in crisis because somethings happened to youand they cant find your funeral plans, your bank statements, or your healthcare wishes. They wont have time to grieve because theyre forced to focus on the paperwork and decisions that could have already been made. How does PACE help with these difficult conversations? Both Lectoria and Amanda emphasized education and pre-planning as the biggest ways their team offers support. Lectoria and the other care team members talk about advance directives during check-ins that happen twice a year. We break it up into manageable steps so its not overwhelming, Lectoria says. In Alabama, we have a basic form that requires two signatures and two witnesses, and we help guide participants through it. If a participant requires legal guardianship or their request involves filing documentation in court, we help connect them with resources like free legal aid, Lectoria adds. She said the best way to approach the conversation is to keep it simple. When you dont work directly with death or dying, its hard to know how to begin, Lectoria explains. But it doesnt take special training. You start by asking: Do you know what an advance directive is? A living will? A power of attorney? Then we offer information and ask: What are your wishes? PACE also provides brochures and other educational materials to help participants review their options in their own time. Checking in every six months ensures these decisions remain a priority. What is the advantage of a participant having their PACE team facilitate the conversation? The PACE team consists of a primary care physician, skilled nurse, social worker, physical therapist, recreation therapist, occupational therapist, and a chaplain.   Amanda explains, The team approach keeps any one staff member from carrying all the emotional weight. And the participant hears a consistent message from different perspectiveseach member offering their own short summary or advice. That consistency builds trust and understanding. It gives a lot of credibility, Amanda says. PACEs structure also allows for something rare in modern healthcare: time. Were not seeing 16 patients an hour, Amanda says. We have the privilege to slow down and help people understand. That makes all the difference. Planning ahead for your care isnt just about filling out formsits about showing love, respect, and helping everyone feel more at peace. At PACE, were here to support you and your family through every part of aging, even the tough conversations.  To find out more about Mercy Life, their innovative care program for Seniors and the PACE program, contact them at 251-287-8427.

Sisters Pam and Paula both started their investment journey five years ago, each inheriting and investing $100,000. Although they chat frequently discussions about finances are rare, until today.Paula initiated the conversation, asking, Hows your investment account holding up with all this uncertainty?Pam replied, Despite the markets rollercoaster ride, my portfolio has grown by $22,000. My advisor assures me everything is fine, and I shouldnt make any changes. You know I prefer not to dwell on that stuff. What about you?Paula beamed, Mine is up nearly $57,000! Ive used some of it to support my daughters college expenses and renovated my loft to create more space for my art projects. She continued, My advisor employs a strategy that allows me to choose how much loss I want to be reimbursed for. This means my account grows more effectively new gains actually add to my portfolio value instead of just offsetting prior losses.Pams eyes widened in surprise, You get reimbursed for losses?Yes! Paula replied enthusiastically. Plus, I can profit even in a down market, and my gains grow tax-deferred, just like my IRA.Pam realized this could be the key to enhancing her own financial success. Paula, you had mentioned you were going to approach investing differently, and it sounds amazing! I wish I had asked you for details sooner. Id really like to speak with your advisor.Of course, Pam! Heres his contact information, Paula said with a smile.The conversation opened Pam's eyes to new possibilities. Inspired by Paula's success, she felt motivated to take action to improve her investment strategy.If you're curious about Paulas advisor and how you might benefit from a similar approach, just reply to this email!Looking forward to hearing from you!

Supporting Families on the Alzheimers Journey: Understanding, Compassion, and Help from Caring TransitionsAlzheimers disease touches millions of lives around the world. When a loved one is diagnosed, it can feel overwhelming not just for the individual, but for their entire family. The journey is filled with uncertainty, emotional ups and downs, and practical challenges. At Caring Transitions Twin Cities Central, we understand these struggles and are here to offer guidance, compassion, and support every step of the way.What is Alzheimers Disease?Alzheimers is a progressive neurological disease that affects memory, thinking, and behavior. In the early stages, a person may experience forgetfulness or confusion. Over time, tasks that once seemed simple like managing a household or carrying on a conversation can become difficult. Each persons journey is unique, and so is the way the disease progresses.Early detection can help families access medical treatments and support services, but receiving a diagnosis is never easy. It often raises more questions than answers and thats where education and community support play a critical role.Caring for a Loved One with AlzheimersCaring for someone with Alzheimers involves much more than meeting physical needs. It requires patience, empathy, and a deep understanding of the person behind the diagnosis.Simple adjustments can make a big difference: Create daily routines to offer a sense of stability. Communicate clearly and calmly. Modify the home environment to ensure safety and comfort. As the disease progresses, changes in behavior such as agitation, wandering, or withdrawal can be difficult for families. Its important to remember that these behaviors are symptoms of the disease, not a reflection of your loved ones feelings or character.The Emotional Impact on FamiliesAlzheimers doesnt just affect the person diagnosed; it impacts the entire family. Caregivers often experience a range of emotions sadness, frustration, guilt, and even grief for the person their loved one used to be. Its crucial for caregivers to acknowledge these feelings and seek support for themselves.Support groups, counseling, and respite care can provide much-needed relief and a sense of community. No one should have to navigate this journey alone.How Caring Transitions Can HelpAt Caring Transitions Twin Cities Central, we specialize in helping families manage some of the most overwhelming aspects of caring for a loved one with Alzheimers. When its time to downsize, declutter, or relocate, these tasks can feel emotionally and physically exhausting. Our team provides compassionate, professional assistance handling everything with care, patience, and respect.Whether youre preparing a safer living space, transitioning to a memory care community, or organizing a family estate, were here to help lighten the load.You Are Not AloneAbove all, remember: you are not alone. Countless resources and communities are ready to support you, including national organizations like the Alzheimers Association and Alzheimers Foundation of America, as well as local groups and online forums. And when you need hands-on help with lifes practical transitions, Caring Transitions Twin Cities Central is just a phone call away. Were honored to walk this path with you with understanding, compassion, and care.  We can be reached at 651-504-4040 or visit our website at www.caringtransitionstccentral.com