Can You Help Find A cure For Alzheimer’s?

Posted on

Sep 05, 2019

share-this
Share This
Absolutely, finding better treatments and cures for diseases takes a large team, from basic science to clinical researchers, medical teams, clinics,
hospitals, research centers and most importantly, participants who volunteer to be in clinical studies also known as clinical trials. Dr. Kerwin, with the assistance of participants like you who volunteer to be in clinical studies, has specialized in clinical trial research for Alzheimers and other neurodegenerative diseases for more than 15 years. While many people have a general concept of what a clinical trial involves, for most, the process is unfamiliar and in this article we will provide an overview of what to expect and an understanding of the process.
A few definitions:
Study Participant: a person who volunteers to be in a clinical trial/study, signs informed consent to under-go study procedures such as blood work, imaging, completing questionnaires, memory testing, etc.
Informed Consent: the process of learning about the possible risk and benefits of being in a study before volunteering to participate, the study team is responsible for giving you this information and answering questions before the study begins.
Ethics Committee/institutional Review Board (iRB): this is an independent committee that provides oversight for participation safety during a clinical trial. All clinicaltrials must have IRB approval and oversight. Protocol: the study plan developed by the research team to determine if a medication is effective over current treatment or no treatment.
During a clinical trial, participants receive an investigational treatment according to a research protocol and under the close supervision of a physician and research team. The goal of the clinical trial is to determine if the treatment is safeand effective for the disease being treated.are there potential benefits? Participating in a clinical trial provides the opportunity to:
Have a more active role in your healthcare

Help improve medical care for others by contributing to medical research

Are there potential risks?
As with any medical intervention there are risks of participating in a clinical trial that are discussed with you in detail before you consent to be a participant in any clinical study.
Dr. Kerwin and Kerwin Research Center specialize in clinical trials for the treatment and prevention of neurologic diseases such as Alzheimers, Lewy Body Disease, Progressive Supranuclear Palsy, Multi-system Atrophy, Mild cognitive impairment. To find out about current clinical trials in the DFW area call 214345-4449 or visit: www.KerwinResearchCenter.com or www.clincialtrials.gov.
Editors Note: This article was submitted by Diana Kerwin, MD. Dr. Kerwin is the medical director of the Kerwin Research Center & Memmory Care. She is board-certified in internal medicine and geriatrics. She may be reached at 214-345-4449.

Other Articles You May Like

Recognizing Behavioral Changes in Seniors with Alzheimers

Caring for a loved one with Alzheimer's can be challenging, but Alzheimer's and dementia care offers vital support and resources as the disease progresses. It can be difficult to care for a loved one who has Alzheimers, especially when the disease progresses, and behavioral changes become more obvious. When this happens, relying on Alzheimers and dementia care can provide much-needed support and resources.  Identifying Behavioral Changes The hallmark of Alzheimers disease is a progressive loss of cognitive function, which frequently results in profound behavioral and personality changes. These changes may include the following: Aggression and Agitation: Unexpected bursts of rage, irritation, or unease are not uncommon. This could be the result of annoyance, confusion, or a poor ability to express needs. Wandering: Seniors who have Alzheimers disease may wander off from their house, frequently as a result of confusion or a wish to return somewhere they know well. Alzheimers and dementia care tips can assist family members in knowing what modifications they can put in place to make sure seniors are safe. Repetition: Repeating questions, phrases, or actions is a habitual behavior. Seniors may use this repetition as a coping mechanism for fear or memory loss. Sundowning: Sundowning is the term for heightened agitation, disorientation, or restlessness in the late afternoon and evening. It can make things especially difficult at night. Paranoia and Delusions: Seniors may start to believe things that arent true, like that someone is trying to break into their home or that family members are out to get them. Depression and Withdrawal: As the disease progresses, apathy, a loss of interest in activities, and social withdrawal are possible outcomes.   Understanding Behavior Triggers Certain triggers frequently cause behavioral reactions in seniors with Alzheimers disease. Understanding these triggers and utilizing tips from Alzheimers and dementia care providers will assist loved ones in controlling and minimizing problematic habits. Typical triggers might include the following: Environmental Factors: Disorientation and uneasiness might be brought on by crowded areas, loud noises, or strange environments. Physical Discomfort: Anger or agitation may be brought on by pain, hunger, thirst, or exhaustion. Communication Issues: Being unable to communicate needs or understand others can be upsetting. Routine Changes: When everyday routines are disturbed, it can lead to anxiety and disorientation. Overstimulation: Excessive activity or stimulation can be exhausting, particularly in large gatherings.   Techniques for Handling Behaviors with Alzheimers and Dementia Care Behaviors related to Alzheimers disease need to be managed with tolerance, adaptability, and understanding. The following techniques may be useful: Maintain a Regular Schedule: Seniors with Alzheimers disease may feel more secure when their environment is predictable and structured. Loved ones should make an effort to maintain regular daily schedules for meals, activities, and bedtime. Simplify Communication: Its important to speak slowly and in plain, simple terms. Additionally, dividing tasks into manageable steps and providing moderate direction can make a big difference. Redirect Attention: If loved ones start to show signs of agitation, attempt to divert their focus to another task or subject. For instance, offer to take them for a walk or have them go through a photo album if they are frustrated about not being able to discover what they are looking for. Focus on Compassion: Even if their concerns are unwarranted, family members should acknowledge seniors emotions and provide comfort. For example, if they are concerned that someone might take their possessions, gently assist them in locating a secure location to store those items.   Alzheimers disease naturally causes behavioral changes. While these changes can be difficult to manage, knowing what triggers them and using helpful coping mechanisms will greatly improve the standard of care seniors are given. Working together with the resources from Alzheimers and dementia care and loved ones can make things easier for seniors as the disease progresses.    If you or an aging loved one are considering Alzheimers and Dementia Care in Lakewood, CO, please contact the caring staff at Talem Home Care & Placement Services today. Call (720) 789-8529 At Talem Home Care of Broomfield, we provide passionate, understanding, and flexible caregivers in Broomfield, Arvada, Aurora, Boulder, Brighton, Commerce City, Denver, Erie, Firestone, Lafayette, Lakewood, Longmont, Louisville, Northglenn, Sherrelwood, Thornton, Welby, Westminster, Wheat Ridge and surrounding areas in Colorado. 

Communicating Beyond Words: 6 Dementia Communication Techniques

Communicating Beyond Words: 6 Dementia Communication TechniquesCaring for someone with dementia is a profound and emotional experience. Dementia impacts how individuals process and express thoughts, making communication challenging. Yet, as words become elusive, connections can still flourish through compassionate and effective dementia communication techniques.At Community Senior Life, we provide memory care services throughout Alabama and are committed to providing family members and caregivers with practical and effective strategies to communicate beyond words alone. Our team is sharing some of these dementia communication techniques to enhance your and your family members connection.The Importance of Non-Verbal CommunicationWhen verbal communication falters, nonverbal techniques offer a lifeline. Learning and incorporating nonverbal communication becomes essential. Simple gestures, expressions like a warm smile, familiar surroundings, music, and other nonverbal cues bridge gaps in understanding, providing comfort and connection. Leveraging these cues can create a more nurturing and supportive setting to help individuals feel seen and valued.6 Effective and Compassionate TechniquesUse Body LanguageBody language is one of the most powerful dementia communication techniques. Maintain an open posture, face the person directly, and use calm, slow movements. Avoid crossing your arms or displaying impatience, as these can create barriers and increase feelings of frustration or isolation. Instead, extend a hand or offer a gentle touch to show support and encouragement. Smiling and nodding can also help convey warmth and understanding, making the person feel more comfortable and valued.Create a Familiar SettingMaintaining a space that feels familiar can help your family member feel safe and ease anxiety. Surround your loved one with cherished items, photographs, and comforting scents that evoke positive memories and a sense of home. Consistent routines provide a sense of stability, reducing confusion and creating a predictable setting. Incorporating daily rituals, like having a cup of tea at the same time each day, can further enhance their sense of security and familiarity.Music for Mood and MemoryMusic is another one of the profoundly effective dementia communication techniques. Music can evoke emotions, trigger memories, and create connections that transcend verbal communication. Play familiar tunes or songs from their youth to stimulate joy and engagement. Encourage gentle humming or tapping along, fostering a shared moment of happiness and connection. Simple instrument playing or sing-alongs can further engage a family member with dementia in a therapeutic and enjoyable manner.Eye Contact and Facial ExpressionsEye contact can convey presence and attentiveness, making a family member with dementia feel valued and recognized. Combine this with warm, expressive facial expressions to show empathy and understanding. Smiles, nods, and soft gazes can transcend verbal limitations, bridging emotional gaps and fostering a deeper connection. Additionally, mirroring their expressions and emotions can help them feel understood and connected, reinforcing their sense of self-worth and significance.Voice Tone and Personal AppearanceA gentle, soothing tone of voice can reassure and calm individuals with dementia. Speak slowly and clearly, using simple phrases and pausing to allow them time to process information. Your personal appearance also matters; dressing neatly and maintaining a clean, welcoming demeanor can make interactions more pleasant and respectful. These elements combine to create a comforting presence, helping to set a positive tone for communication and interaction.Giving Personal SpaceWhile engagement is vital, an often overlooked dementia communication technique is simply providing space and respecting privacy. Allow your relative moments of solitude, ensuring they feel autonomous and dignified. Providing opportunities for independent tasks, such as simple occupations or hobbies, can enhance their sense of self and purpose. Balancing interaction with independence fosters a respectful and empathetic relationship, ensuring that their needs for both connection and privacy are adequately met.Enhancing communication with people we love and who have been diagnosed with Alzheimers disease or any other form of dementia requires patience, empathy, and creativity. Compassionate care is the foundation of our memory care communities in Alabama, enriching lives and nurturing bonds. Are you ready to enhance your communication with those close to your heart? Contact a member at 251-981-0200 of the Community Senior Life team to learn more about our programs, amenities, and services. Better yet, schedule a tour at any of our memory care communities in Alabama to discover how our compassionate caregivers can support your family member and provide them with a dignified lifestyle.

Lets talk PATHWAYS: Personalized Support for Those Experiencing Cognitive Decline

Lets talk PATHWAYS:  Personalized Support for Those Experiencing Cognitive DeclineDecember 5, 2024 By CC Young StaffThis time of year is filled with gatherings, which means you may be spending more quality time with your family members, particularly your parents and older relatives. While time spent together is a blessing, it can also highlight changes brought on by aging. If you believe someone you love is experiencing mild cognitive decline, there are options for keeping them safe while maintaining their independence and quality of life.This year, CC Young Senior Living in Dallas launched the Personal Assistance Toward Health and Wellness As You Succeed (PATHWAYS) program. Designed to serve as a bridge between Assisted Living and Memory Support, PATHWAYS provides extra support and structure in an intimate, small-group setting.We sat down with Nena Paris, CC Youngs Administrator, Assisted Living and Memory Support, to better understand the PATHWAYS program and who can benefit from it. Here are seven takeaways.PATHWAYS was created to fill a need between Assisted Living and Memory Support. The program came about because, often, Memory Support units can have long waitlists and fill up quickly. Truthfully, sometimes people with cognitive impairment dont necessarily need full Memory Support, as theyre not at risk of eloping, or leaving the community without supervision. CC Young has recognized that theres this middle group people who need a little more guided assistance and structure with their daily activities but are not qualified for full-blown Memory Support.PATHWAYS can actually slow cognitive decline. Research has shown that a guided program like PATHWAYS can in fact slow cognitive decline and help people stay engaged. Our program does this by providing residents with personal interaction, along with physical and emotional support, as a way to enhance their overall wellness and quality of life in a positive environment.PATHWAYS promotes resident wellness. At CC Young, we focus on whole-person wellness, using the 7 Pillars of Wellness as defined by the International Council on Active Aging: physical, social, spiritual, intellectual, emotional, vocational, and environmental wellness. Thats also the backbone of the PATHWAYS program, which promotes active aging regardless of cognitive issues. From these pillars, we have designed a comprehensive therapeutic program to support the needs of those with mild cognitive impairment in a joyful, engaging environment.PATHWAYS offers an intimate caregiver-to-resident ratio. Part of what makes PATHWAYS so successful is that the CC Young staff works closely with residents, which means the staff will notice any cognitive changes. In fact, at 1 caregiver to 7 people, the caregiver-to-resident ratio in PATHWAYS is better than both Assisted Living and Memory Support, which are 1 to 25 and 1 to 10, respectively. That also results in PATHWAYS residents becoming like family, as the staff truly gets to know them.PATHWAYS is not just for CC Young residents. Its true anyone from the Dallas community who has a need for the program can become a PATHWAYS resident. Upon entering the PATHWAYS program, your family member would also become an Assisted Living resident in The Hillside at CC Young.PATHWAYS is a less stressful transition for both family members and residents. It can certainly be stressful for families to face the decision of whether or not their family member should enter Memory Support. PATHWAYS offers a comforting solution for both them and their loved ones, as it lessens the pressure of deciding whether full Memory Support is needed now. The PATHWAYS resident may be able to live out their days in the PATHWAYS program or eventually transition to Memory Support, if the need arises.PATHWAYS keeps residents engaged and prevents isolation. To keep PATHWAYS residents engaged, the program takes an active and intentional approach to life enrichment activities, which includes participating in activities on the Assisted Living calendar as well as a specialized PATHWAYS calendar. The biggest differentiator for PATHWAYS is that a dedicated support staff member helps residents plan their day and escorts them to the activities. Since we purposely guide residents to keep them engaged, they are able to remain active and enjoy a better quality of life, while also avoiding any isolation that can be a symptom of cognitive decline.PATHWAYS is just one more service that CC Young offers current and prospective residents and their families. When we noticed an increase of older adults experiencing various levels of cognitive decline but not necessarily to the level of needing Memory Support we wanted to do something about it. We put our heads together and created a solution: PATHWAYS.If you are noticing cognitive decline in someone you love, we encourage you to have a conversation to express what youre observing. Talking to your primary care physician is a good place to start. CC Young is also happy to provide information, so feel free to give us a call at 214-305-9662.