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Caregiver Stress Awareness in Hospice Care
By: Joelle
Jean, FNP
Caring for a loved one who is
terminally ill and on hospice is emotionally and physically taxing. In 2015, an
estimated 39.8 million caregivers provided unpaid care to an adult with a
disability or illness. The estimated value of the service supplied by caregivers
is up to $470 billion since
2013.
Caregivers may deny help from
others, perhaps out of guilt or obligation. However, 1 out of 6 caregivers report not
being asked what they need to care for themselves. Caregivers can work up to
8.3 hours per day or 66 hours per week during
their loved ones’ last days of life. Often, this is in addition to working a
full-time job and caring for their own immediate family.
Caregivers are at risk for
depression, severe fatigue, or burnout, or even health issues such as
hypertension, stroke, obesity, or weight loss due to stress.
What is a caregiver?
A caregiver, also known as an
informal caregiver, is an unpaid individual or group of individuals who provide
care to a loved one. Caregivers can be a spouse, family members, partner,
friend, neighbor, or combination of these individuals.
A caregiver assists their
loved ones with activities of daily living which include:
Bathing
Dressing
Eating
Toileting
Shopping
Housekeeping
Transportation
Medical tasks such as giving medications, changing wound
dressings, and managing pain
A caregiver can also play a
significant role in coordinating care for their loved ones. Many are appointed
power of attorney or the primary decision maker for their loved ones, managing
finances, property, and most suitable medical care for the individual.
What causes caregiver stress or burnout?
There is no clear definition
of caregiver stress. The Merriam-Webster dictionary defines stress as “a
physical, chemical, or emotional factor that causes bodily or mental tension
and may be a factor in disease causation.” Burnout can be a response to stress,
defined as extreme emotional exhaustion. According to stress.org,
stages of burnout are:
Enthusiasm
Stagnation
Frustration
Apathy or loss of interest
A caregiver with stress or
burnout exhibits signs of feeling overloaded, overwhelmed, emotionally drained,
tiredness, detachment from the person they are caring for, and a reduced sense
of accomplishment.
Who is most affected by caregiver stress?
Caregiver stress affects the
person or people directly caring for their loved one. Stress can also affect
caregivers in different ways. For example, one caregiver may find specific
tasks stressful or overwhelming while another caregiver may find the task
relaxing and rewarding.
What are the signs and symptoms of caregiver stress?
Often, caregivers are not
aware of their stress or feeling of burnout. Signs and symptoms of caregiver
stress can be subtle or obvious. It is important to identify caregiver stress
so it can be eased.
Anxiety
Anxiety is a stress response,
activating the fight or flight response
that happens chemically in the brain. Physically, anxiety can be described as:
Increased heart rate
Feelings of doom or hopelessness
Stomach pain and or spasms
Headache
Sweating
Heavy breathing
Feeling weak or tired
Worry
Fatigue
Caregivers suffering from
stress may not realize they are fatigued. Fatigue is the body’s response to
burnout and can be physical, emotional, or psychological.
Weight changes
Stress can cause weight
changes and affect eating patterns. Weight change can occur when dealing with
caregiver stress. Rapid weight gain or unexplained weight loss is a warning
sign of caregiver stress and should be addressed appropriately.
Irritability
Caregivers may become easily
annoyed or short-tempered with loved ones, family members, or friends. Feeling
irritable may be a warning sign of caregiver stress.
Feelings of being overwhelmed
Feeling overwhelmed or
anxious is normal. Caregivers may become overwhelmed with the amount of care
needed to provide to their loved ones. Trouble concentrating, changes in sleep
patterns, and changes in eating habits may occur.
Depression
Losing interest in activities
can be a sign of depression due to the demanding responsibilities of
caregiving. Signs of depression include:
Little interest or pleasure in doing things
Feeling down or hopeless
Change in sleep patterns
Fatigue and tiredness
Thoughts of death or suicide
Potential health risks as a result of caregiver stress
Chronic stress (or stress
lasting for more than six weeks) can have lasting health problems. Caregivers
exhibiting signs and symptoms of stress and burnout have a higher chance of
developing health risks.
High blood pressure
Caregivers can suffer from
high blood pressure due to the stress of caring for a loved one in hospice. If
caregivers have already been diagnosed with high blood pressure, stress can
make the disease worse. Uncontrolled high blood pressure puts caregivers at
higher risk for:
Stroke
Atherosclerosis or disease of the arteries
Heart attack
Organ damage
Weakened immune system
The immune system is in place
to protect the body from illness and disease. Stress can cause a weakened
immune system. With a weakened immune system, caregivers can become sick or
develop chronic illnesses such as:
Inflammation throughout the body
Increase in fat in the blood and body
Chronic pain
Frequent colds and infections
Short term memory loss
Studies have shown that a
symptom of chronic stress is the shrinking of the brain. Shrinking
of the brain causes short-term memory loss. Short term memory loss affects
learning, judgement, and memory process.
Headaches and body pains
Stress can cause headaches
and body pains. On a hormonal level, the increase of cortisol causes headaches
even at rest. The physical nature of caring for a loved one on hospice-
lifting, standing, walking, and rotating- can cause severe body pain or injury.
How to relieve or prevent caregiver stress and burnout
Self-care is imperative for caregivers caring
for their loved ones in hospice. Self-care means caring for yourself, so you
can improve your health to care for others.
Exercise regularly
Finding the time and the
energy to exercise might sound difficult. However, even carving out 30 minutes
a day has positive effects on your health. Exercising whether it is running,
walking, swimming, or doing yoga will lower blood pressure, increase energy,
and improve mood.
Asking and accepting help from others
Accepting help can be
difficult for some caregivers. It is important to ask and accept help so that
you are available for your loved one mentally and physically.
Under most insurances and
Medicare, respite care is available to relieve the burden of caregiver stress.
Respite care will give short term caregiver relief to those who are in need.
Eat and sleep well
Eating and sleeping well are
fundamental in protecting your physical and mental health. A well-balanced meal
of fruits, vegetables, and plant-based foods is important for physical and
mental well-being. Adding vitamins such as a multivitamin, vitamin D, or
vitamin B-12 can also help improve your mood and energy.
Having a good night’s sleep
has many health benefits. Feeling well-rested and energized will only benefit
you, as the caregiver, and your loved one. Improved memory, mood, and overall
well-being are all benefits of quality sleep.
Seek out support groups
Support groups add immense
value to caregivers who are caring for loved ones in hospice. Joining support
groups reassures caregivers that they aren’t alone. Support groups:
Allow you to talk about your feelings
Help you realize others are going through the same situation
Reduces stress and depression
Teaches coping skills and ways to divert stress
Maintain personal relationships
Maintaining personal
relationships is as important as joining support groups. Meeting up with
friends or family members allows you to relax. It also allows you to take time
for yourself and time away from your loved one.
Awareness of caregivers’ stress and burnout must be addressed and acknowledged for caregivers to feel supported and recognized for their challenging work. The hospice team and its services are a fundamental part of bringing this awareness to the forefront.
Feeling overwhelmed as a family caregiver? Learn the 9 warning signs of burnout and how Comfort Keepers' respite care in Delta, CO, can help you rest and recharge.Caring for an aging loved one is one of the most selfless and rewarding things you can do. In fact, 43.5 million Americans serve as unpaid family caregivers, ensuring their loved ones receive the support and care they need at home. However, caregiving is also physically, emotionally, and mentally demanding. Even the most devoted caregivers need time to rest and recharge.If youre feeling drained, overwhelmed, or stretched too thin, it may be time to consider respite care. This article will guide you through what respite care is, when to consider it, and the key signs of caregiver burnout that indicate its time for a break.What is Respite Care for Family Caregivers in Delta, CO?Respite care is a temporary caregiving service designed to provide relief for family caregivers while ensuring their loved ones continue to receive high-quality care. It allows you to step back, focus on your well-being, and take care of personal responsibilities without disrupting your loved ones routine.Respite care services include:Meal Preparation Ensuring your loved one has nutritious meals and snacks.Transportation Helping with doctors appointments, errands, or social visits.Household Support Light housekeeping, laundry, and organization.Personal Care Assistance Help with bathing, dressing, and hygiene.Companionship Providing meaningful social interaction to keep your loved one engaged.By incorporating respite care into your routine, you can maintain a balance between caregiving and personal well-being, ensuring both you and your loved one thrive.When to Consider Respite CareRespite care is designed to be flexible and customizable. Whether you need support for a few hours, a few days, or even a few weeks, professional respite care can help you navigate the demands of caregiving without feeling overwhelmed.You should consider respite care if you need to:Take a vacation or a weekend getaway.Attend a business trip or work-related obligation.Run errands or manage household tasks.Recover from an illness, surgery, or injury.Tend to personal matters or simply recharge.While these are all great reasons to seek respite care, the most critical reason is caregiver burnout. When caregiving starts affecting your health, well-being, and ability to provide care, its time to get professional support.The Top 9 Signs of Caregiver BurnoutRecognizing the signs of caregiver burnout is essential for maintaining both your health and the quality of care you provide. If youre experiencing any of the following, it may be time to seek respite care:Feeling OverwhelmedDo you feel like theres too much on your plate? Are household tasks, appointments, and responsibilities piling up? If you constantly feel like youre drowning in to-dos, its a sign that you need support. Respite care can help by giving you time to breathe, regroup, and return to caregiving with renewed energy.Constant ExhaustionFeeling physically and emotionally drained, even after a full nights sleep, is a clear sign of burnout. Caregiving requires a great deal of energy, and without breaks, fatigue can become chronic. Respite care offers you the opportunity to get the rest you need and maintain your health in the long run.Increased IrritabilityIf you find yourself snapping at loved ones, losing patience easily, or feeling frustrated over small things, its a sign that stress is taking its toll. The emotional strain of caregiving can lead to short tempers and strained relationships. Taking a break allows you to reset and approach caregiving with a more positive mindset.Neglecting Your Own NeedsAre you skipping meals, canceling doctors appointments, or not getting enough rest? Many caregivers prioritize their loved ones needs over their own, often at the expense of their health. However, you cant provide the best care for someone else if youre running on empty. Respite care gives you the time and space to take care of yourself, ensuring you stay healthy and strong.ForgetfulnessIf youre forgetting important dates, appointments, or tasks, it may be a sign that stress and exhaustion are affecting your cognitive function. Mental fog and forgetfulness can be dangerous, especially when managing medications or appointments. Taking time to rest and reset can help restore your focus and clarity.Social IsolationWhen was the last time you spent time with friends or did something just for yourself? Caregiving can be isolating, leaving little time for social activities or hobbies. However, maintaining social connections is crucial for emotional well-being. Respite care enables you to step away for a bit and engage with your friends, family, and favorite activities without worry.Concern from Family and FriendsIf your family or friends express concern about your well-being, listen to them. Sometimes, those around us recognize burnout before we do. If your loved ones are urging you to take a break, consider their perspective. Respite care is an easy way to ensure your loved one is well cared for while you recharge.Declining Mental HealthFeelings of sadness, anxiety, or hopelessness should never be ignored. Caregiving can be emotionally taxing, and prioritizing your mental health is just as important as physical health. If you find yourself feeling down, overwhelmed, or unable to enjoy things that once made you happy, respite care can provide the relief you need to focus on your well-being.Making Frequent MistakesMissing medication doses, forgetting doctors appointments, or neglecting essential tasks can have serious consequences. If you notice an increase in mistakes, its a sign that you need to take a step back and recharge. Respite care can help you regain control and ensure that your loved one continues to receive the best possible care.If you recognize any of these signs in yourself, dont wait until burnout takes a toll on your health. Seeking respite care is a proactive step toward maintaining your well-being and ensuring your loved one receives the best possible care. If you have any questions, please call us at 970-240-4121.
Every day at Harmony at Diamond Ridge we serve families with loved ones who are diagnosed with dementia, Alzheimers disease, and other memory loss diseases. There is a lot of information about memory loss in seniors and the research process can be overwhelming. Dementia is not a specific disease but rather a general term for the impaired ability to remember, think, or make decisions that interfere with everyday activities. Alzheimer's disease is the most common type of dementia The exact cause of Alzheimer's disease is not fully understood, but it is believed to be a combination of genetic, environmental, and lifestyle factors. Some of the known risk factors for Alzheimer's disease include a family history of the disease, head injuries, and certain medical conditions such as high blood pressure, high cholesterol, and diabetes. The symptoms of Alzheimer's disease typically develop slowly over time and worsen as the disease progresses. Some Alzheimers indicators include: Memory loss, especially of recent events Difficulty with language and communication Impaired judgment and decision-making Difficulty with problem-solving and planning Mood changes, such as depression or irritability Personality changes, such as becoming more withdrawn or aggressive Loss of interest in activities or hobbies Difficulty with basic activities of daily living, such as dressing and grooming Research into the causes and treatments of Alzheimer's disease is ongoing, and there is hope that future developments may lead to a better understanding of the disease and new treatments that can improve the lives of those affected by it. Harmony Senior Services Signature Memory Care Program Harmony Reflections is built on elements that support a senior living with Alzheimers disease. The Reflections Program has 5-Key Components; Family Focused, Wellness, Reflections Program: Art and Music, Dining with Dignity, and Harmony Square. Each component engages the resident's present-day experiences while stimulating positive memories through therapeutic visual and tactile aids. We partner with each resident's family to create their individual life story profile - a process for collecting and sharing the resident's life history, preferences, routines, and habits. If you are researching solutions for a loved one living with dementia or you would like to learn more about Harmonys Signature Memory Care Program, call a Harmony community today to speak with one of our dedicated caregivers.
Ellen Latham, the visionary founder of Orangetheory Fitness, has a remarkable story of resilience and determination that continues to inspire fitness enthusiasts worldwide. In a recent interview, Latham opened up about her journey, revealing how she turned career setbacks into a multimillion-dollar fitness empire. Her success story highlights the power of perseverance, adaptability, and a strong belief in ones abilities.Lathams journey began when she faced a significant career challengeshe was unexpectedly let go from her job as a physiologist at a prestigious spa. This setback could have been devastating, but Latham chose to channel her energy into creating something new. Drawing on her expertise in fitness and physiology, she began hosting Pilates classes in her spare bedroom. This modest start would eventually blossom into the foundation of Orangetheory Fitness.The concept behind Orangetheory emerged from Lathams deep understanding of the science of exercise. She developed a heart rate-based interval training system designed to optimize calorie burn and boost overall fitness. The program combines cardiovascular and strength training exercises with heart rate monitoring to ensure participants stay within a target "orange zone," where their metabolism remains elevated even after their workout ends. This unique method has been key to the brand's success, appealing to fitness enthusiasts seeking measurable results.Despite the challenges of building a business, Latham's unwavering dedication kept her motivated. She partnered with fitness professionals and business experts to expand Orangetheory into a global franchise. Today, Orangetheory boasts over 1,500 studios worldwide and continues to grow rapidly. Latham's ability to innovate and respond to market trends has been instrumental in this expansion.In addition to her entrepreneurial achievements, Latham has been an advocate for empowering women in business and fitness. She frequently shares her insights on overcoming obstacles and finding success, encouraging others to pursue their passions fearlessly. Her story resonates with individuals from all walks of life, demonstrating that setbacks can be stepping stones to greater achievements.Lathams advice for those facing professional or personal hurdles emphasizes the importance of persistence and adaptability. She highlights the value of focusing on what you can control, building on your strengths, and embracing new opportunities. This mindset, combined with her innovative fitness model, has solidified her legacy in the health and wellness industry.Orangetheory Fitness has earned a loyal following due to its science-backed approach and welcoming community. Members appreciate the structured yet flexible workout format, which allows individuals of all fitness levels to participate. The brand's focus on results-driven exercise continues to attract thousands of new members each year, solidifying its reputation as a leader in the fitness industry.In summary, Ellen Lathams inspiring journey from professional setback to entrepreneurial success is a testament to the power of resilience and innovation. Her story encourages individuals to embrace challenges, focus on their strengths, and pursue their dreams with confidence. Orangetheory Fitness remains a powerful example of how dedication, creativity, and a passion for helping others can transform an idea into a global phenomenon.
Make the Choice of Quality End of LifeGrane Hospice Care provides Comfort for the Body, Mind, and Soul through unique, individualized and professional care plans allowing you to live comfortably in your home, surrounded by loved ones. We will tailor an experienced team to meet your individual needs and deliver a personalized, focused care plan. With almost 20 years of experience, Grane Hospice is the right choice for the best quality of care for you and your loved ones. Our mission is to provide premium comfort care to patients, families, and caregivers through an interdisciplinary team approach that understands, respects, and meets individual needs. In addition to our well-known clinical care, our aides provide supplemental personal care through bathing, feeding and dressing assistance. Our volunteers are also available for visits, errands and companionship. We are a leading provider for hospice care services in Pennsylvania.Physician Services Will Address All NeedsAt Grane Hospice Care, we provide the physician services you would expect of hospice and go above and beyond to provide premier care for our patients. The patients Primary Care Physician remains the director for their care, and our staff works to keep them informed of the patients condition, wants, and needs. Working in conjunction with our Medical Director, our clinical team provides all necessary education and home visits that are outlined in each care plan.Taking Care of Pain and Symptom ManagementCare plans for pain and medication coordination are essential aspects of hospice care. We work with your loved one to understand their needs, and then we create a strategy for pain and symptom management throughout their time with us. Our nurses will administer the necessary medications and treatments during their home visits to keep your loved one as comfortable as possible.Personalized Comfort Care for Your Loved OneThere are few things that are more dehumanizing than being treated like just another number. At Grane Hospice Care, we create individualized care plans that treat your loved one as a human being. Our nurses and nurse aides add a personal touch to their daily care plans, so you can rest assured your loved one is in good hands.Unlimited Bereavement SupportIt is an understatement to say dealing with the loss of a loved one is difficult. That is why Grane Hospice Care is committed to providing unlimited bereavement services to families of loved ones. You will meet with a qualified bereavement coordinator during the admission process and will receive their support throughout the entire hospice care process. If you would prefer a group approach, contact your local Grane Hospice location for more information about community support groups in your area.Assisting Beyond Physical NeedsJust as important as the physical needs, social and spiritual support are prioritized during the care process. Our Medical Social Workers are available to help you navigate the required paperwork associated with the admission process to hospice care. Also, should you have a religious affiliation, our chaplain and bereavement teams will assist you with spiritual needs during end of life and any special arrangements you prefer, such as funeral arrangements and memorial services.Volunteers Add an Extra Personal TouchIn addition to the knowledgeable care team, Grane Hospice has a dedicated volunteer staff available for our hospice patients. Our volunteers are compassionate, friendly individuals aimed to providing extra care for your loved one. These volunteers go for walks, read to patients, create personalized crafts, or simply provide conversations. Our volunteers are also available to offer you and your family support through the grieving process.We Take Care of the Supplies You NeedThe cost of medication can put an undue burden on a patients family. Luckily, Grane Hospice will handle the costs associated with medication, medical equipment, and other supplies related to the patients terminal diagnosis. We are well-equipped to coordinate with insurance companies to ensure all medical supplies are readily available.Indicators that are hospice-eligible can include but are not limited to:Weight LossIncreased assistance with daily activitiesIncreased weakness and fatigueFrequent and multiple fallsDifficulty swallowingShortness of breath or chest painContinuous oxygenIncrease/changes in medicationRecurring or multiple infectionsFrequent phone calls to physicianFrequent hospitalizations or ER visits
About Grane Hospice CareA wise person once said that life is a journey, not a destination. This adage holds true, even if you are living with a terminal illness. At Grane Hospice Care, we are with you every step of the way and will help ensure that the last stages of your life are as fulfilling, enjoyable, and comfortable as possible.What Is Grane Hospice Care?Grane Hospice Care is a leading provider of premium comfort care services aimed at helping you manage pain, stay comfortable, and improve your overall well-being during the last stages of life if you are living with a terminal illness.Our professional care team include physicians, nurses, social workers, certified nursing assistants and others who function as part of a large interdisciplinary team. We are devoted to supporting your emotional, physical, mental, and spiritual health, and to helping you, your loved ones, and your caregivers navigate your illness and final days.Grane Hospice Care has been serving Pennsylvanians since 2005. We have several locations throughout Pennsylvania and are licensed to provide care services for in-state residents within a 60-mile radius of our office locations.Services Available from Grane Hospice CareAll our services at Grane Hospice Care can be tailored for you based on your unique health situation and on your personal goals and desires. We want you to feel comfortable and happy under our care and will do what it takes to make sure you have everything you need.Some of our services include: 24/7 on-call hospice support Symptom management, to reduce symptoms including nausea, anxiety, and breathing difficulty Pain management Medication management and coordination Nursing Aide visits to help with daily activities, including bathing, dressing, and eating. Registered Nurse visits Medical equipment and supplies services, for help with setting up equipment, including hospital beds and oxygen tanks. Volunteer visits for companionship and help with running errands Bereavement program for your friends, relatives, and loved ones Inpatient respite care, general inpatient care, and continuous care programs Social and spiritual services We Honor Veterans program.What Are the Benefits of Hospice Care?Hospice care provides you with wholesome, personalized health care and support in the comfort of your home, surrounded by your loved ones as you cope with a life-limiting, terminal illness. This is one of the greatest benefits of hospice care, especially for those who want to avoid spending their last days in sterile and unfamiliar hospital settings.There are a countless number of benefits to receiving hospice care. Some of these benefits include: Feeling more in control of your health Reduction in symptoms, including pain More quality time with friends and loved ones Comprehensive health care from an interdisciplinary team of hospice care professionals Around-the-clock medical care, including on weekends and holidays Help with daily activities you may not be able to perform efficiently on your own Financial savings A sense of dignity during your last days Respect for your wishes Counseling and bereavement for your loved onesWho Is Eligible to Receive Hospice Care?Your healthcare provider may recommend hospice care if you are living with a terminal illness and its prognosis is a life expectancy of six months or less, given the illness runs its natural course. Anyone can make a referral to hospice carewhich can include referring yourself to care or having a loved one reach out for a hospice care consultation.Illnesses that may be eligible for hospice care include: Cancer Stroke Congestive heart failure Dementia and Alzheimers disease AIDS Liver disease Chronic obstructive pulmonary disease (COPD) End-of-stage renal disease Parkinsons disease Huntingtons disease Multiple sclerosisConsult with us to determine whether you qualify for end-of-life care with Grane Hospice based on your condition.Tips for Finding the Best Hospice Care ProviderA great, quality hospice care provider will respect your end-of-life wishes and deliver unparalleled medical care that involves an interdisciplinary team of experienced physicians and hospice care professionals. The medical professionals with whom you interact should make you feel comfortable, relaxed, and content while navigating a life-limiting terminal illness.Follow these tips to select a quality hospice care provider: Ask friends and relatives for referrals to local hospice care providers. Seek professional opinions from your current healthcare provider. Browse and read online reviews of hospice care providers written by the loved ones of former patients. Choose a Medicare-certified provider that will uphold certain requirements related to patient care and management. All Grane Hospice Care offices are Medicare-certified. Make sure it offers highly individualized care plans. Confirm it offers all the services and programs you want or that are required for your condition. Learn how often you will receive visits from hospice care workers. Find out whether the providers hospice care services are covered by your insurance plan. Choose a provider that offers bereavement and counseling services for your loved ones. Confirm whether the provider will honor and respect your culture, beliefs, traditions, and needs. Pay attention during interactions with hospice care staff to look for signs of empathy, kindness, compassion, and other traits you value in medical professionals. Ask the hospice care provider how it can enhance your quality of life while living with a terminal illness. Find out whether the hospice care provider specializes in treating your specific illness or comorbid conditions, if applicable.Grane Hospice Care is where life is celebrated, and we are devoted to becoming a member of your family during your last days and to providing premium comfort care. Contact us today at 1-800-379-0129 to learn more about our hospice care services.