Ethically Caring for Patients with Dementia and Similar Disorders

Author

Oasis Senior Advisors

Posted on

Oct 04, 2022

Book/Edition

Colorado - Denver Metro

share-this
Share This

Physicians, nurses, social workers and others who assist elderly patients daily are guided by the ethical principles of their professions. These codes of ethics share a similar purpose: to provide a set of values, principles and standards for decision-making and professional conduct.  A code of ethics holds medical professionals accountable for providing safe and compassionate care in the best interest of their patient or client. 

Occasionally, however, conditions such as dementia and other cognitive impairments can create conflicts for medical professionals as they attempt to make decisions in their patients’ best interests.

While all slightly different, the codes of ethics for doctors, nurses, and social workers share many of the same principles. These include fairness and justice, beneficence (doing good), non-malfeasance (doing no harm), and preservation of the autonomy and self-determination of the patient or client.

Those who care for patients with cognitive disorders can be challenged by seemingly conflicting ethical principles. For example, how do you preserve the autonomy and self-determination of a patient who has diminished decision-making ability or is unable to advocate for themselves?

A physician or medical social worker, for example, might believe that a patient is receiving insufficient care from a family member. The logical decision might be to recommend that the patient move to an assisted living or memory care community. However, the professional may fear that a cognitively-impaired patient would reject the recommendation and fire their doctor—leaving a vulnerable elder without a physician altogether.

It can also be challenging to present complex medical options to patients who have impaired decision-making skills while still respecting their autonomy. Medical professionals should ensure patients have ample support from their partners, friends, or family members. When possible, patients should empower a trusted loved one at the time of diagnosis. This person should attend appointments and play an active role in the patient’s care by communicating issues and advocating for the patient when they can no longer advocate for themself.

End-of-life issues can also present significant challenges for health care professionals that serve patients with dementia and similar cognitive or memory disorders.  What are the best practices when palliative care is advised, but families want to seek curative care?  What issues can occur when the patient does not have advance directives?

To assist professionals in navigating these ethical situations, Oasis Senior Advisors is happy to announce that we are sponsoring a live interactive webinar for continuing education credits for Social Workers & Certified Case Managers through Jenerations Health Education.

Stephanie Goldstein, LBSW, of Jenerations Health Education will present “Ethically Handling End of Life Issues with Alzheimer’s Disease & Dementia” on Thursday June 23, 2022, from 2pm-3:15pm EST/1pm-2:15pm CST.

Oasis Senior Advisors sponsors live interactive webinars like these on a quarterly basis, and professionals are welcome to attend at no cost. We hope that you’ll be able to join us for this upcoming program on healthcare ethics. Seats are limited and advance registration is required at https://www.jenerationshealth.com/OSAJune.

Other Articles You May Like

Finding The Right Support When Facing Alzheimer's Disease

Every day at Harmony at Diamond Ridge we serve families with loved ones who are diagnosed with dementia, Alzheimers disease, and other memory loss diseases. There is a lot of information about memory loss in seniors and the research process can be overwhelming.  Dementia is not a specific disease but rather a general term for the impaired ability to remember, think, or make decisions that interfere with everyday activities. Alzheimer's disease is the most common type of dementia The exact cause of Alzheimer's disease is not fully understood, but it is believed to be a combination of genetic, environmental, and lifestyle factors. Some of the known risk factors for Alzheimer's disease include a family history of the disease, head injuries, and certain medical conditions such as high blood pressure, high cholesterol, and diabetes. The symptoms of Alzheimer's disease typically develop slowly over time and worsen as the disease progresses. Some Alzheimers indicators include: Memory loss, especially of recent events Difficulty with language and communication Impaired judgment and decision-making Difficulty with problem-solving and planning Mood changes, such as depression or irritability Personality changes, such as becoming more withdrawn or aggressive Loss of interest in activities or hobbies Difficulty with basic activities of daily living, such as dressing and grooming Research into the causes and treatments of Alzheimer's disease is ongoing, and there is hope that future developments may lead to a better understanding of the disease and new treatments that can improve the lives of those affected by it. Harmony Senior Services Signature Memory Care Program Harmony Reflections is built on elements that support a senior living with Alzheimers disease. The Reflections Program has 5-Key Components; Family Focused, Wellness, Reflections Program: Art and Music, Dining with Dignity, and Harmony Square. Each component engages the resident's present-day experiences while stimulating positive memories through therapeutic visual and tactile aids. We partner with each resident's family to create their individual life story profile - a process for collecting and sharing the resident's life history, preferences, routines, and habits. If you are researching solutions for a loved one living with dementia or you would like to learn more about Harmonys Signature Memory Care Program, call a Harmony community today to speak with one of our dedicated caregivers.  

Preparing Your Loved Ones Home for Sale

Selling a home that has been lived in for many years can be a difficult process whether a loved one has passed or is just moving into a nursing home.  Many memories have been made that hold a multitude of emotions and it is hard to let it all go.  Here are a few steps to help ease the stress of preparing your loved ones home for sale.Be PatientIf time isnt of the essence put a 60-90 day freeze on all decision making.  During that time leave everything in the home as-is except for expiring food, medicines, and anything else that could leave a bad odor.  This hold-over time period will give friends and family time to grieve, time to process the options, and time to remember the home exactly how it was while your loved one still lived there.Get Expert HelpA lawyer should be one of your first calls as they can help get the necessary paperwork in order such as a power of attorney and will.  They can also help you navigate through probate.  Seeking legal advice about selling a home is always advised as it can greatly affect the title of the home.Next, a realtor will be able to talk about all of your options when it comes to selling. Since a realtor doesnt have any emotional attachment to the house, they will be able to be matter of fact and tell you the current market value of the home.  A realtor will also let you know which items should be updated to get the most money out of the house.DeclutterIt can be difficult to let things go, but a house must be de-personalized in order to sell for top dollar. If the process is too difficult or daunting to do on your own, you might consider hiring an estate sale company to host an estate sale. If this is the route you go, it is best to step away from the process and let the professionals do their job.If you prefer to go through items yourself, consider hiring an appraiser or specialist to look at antiques to find out their true value.  Less valuable items can be donated so you know they are going to a good home. Non-profit businesses that are usually seeking donations include Goodwill, Salvation Army, and Habitat for Humanity Restores.Update/RepairsA lived-in home will have signs of wear & tear.  At a minimum fix cracked tiles, patch holes in walls, give the home a coat of fresh neutral paint, replace burned out lightbulbs, and remove curtains to let the most light in. You might also consider installing new carpet and flooring.To get the most money out of the home, consider doing a kitchen and bathroom remodel as those spaces tend to be the biggest selling points of a house. If you dont have time for a major renovation you can update simple items such as replacing light fixtures, faucets, and hinges. In the bathrooms add a few stacked washcloths tied with a ribbon, add lightly scented candles, and buy matching bathmats & towels in a light green, blue or white tone.Your realtor might also suggest hiring a professional stager, who will bring in contemporary furniture to enhance the homes attractiveness to potential buyers.Clean, Clean, CleanOne of the last steps inside the home is to give it a good cleaning.  If you dont mind putting in the elbow grease, then begin with washing the windows, vacuuming, dusting, wiping down all surfaces, and polishing appliances. You can also consider hiring a cleaning company, who can come in and make the home sparkle in just a few hours.Curb AppealLastly, spruce up the landscaping and front entrance of the home which might have become neglected.  Trim shrubs, add flowers, mow the lawn, give the front door a fresh coat of paint, and paint faded trim.  In addition, certain buyers loan types such as FHA & VA will require rotted deck boards be replaced, that peeling paint is fixed, and any broken windows be repaired.If you are ready to take the next step in selling, call lMike Lies with Gold Compass Real Estate at 303-325-5690.

Resources Every Family Caregiver Should Know About

Caring for a loved one can be one of the most rewarding experiences, but it also comes with its challenges. Family caregivers often wear multiple hats, juggling work, family, and caregiving responsibilities. Knowing where to turn for help can make all the difference in managing the stress and ensuring your loved one receives the best possible care. Here are some essential resources every family caregiver should be aware of:Local Area Agencies on Aging (AAAs)AAAs provide a wealth of information and services tailored to seniors and their caregivers. From meal delivery and transportation to caregiver training and respite care programs, these agencies are a critical first step for many caregivers. You can find your local AAA through the Eldercare Locator.Support GroupsCaregiving can feel isolating, but youre not alone. Support groupsboth in-person and onlineconnect you with others who understand your journey. Platforms like Family Caregiver Alliance or local support groups can offer emotional support, practical tips, and a sense of community.Respite Care ServicesTaking care of yourself is vital to being an effective caregiver. Respite care offers short-term relief by providing professional caregiving services, either at home or in a care facility. Check with local senior care providers, such as our team at Elderlink Home Care, Inc., to learn more about these options.Financial Assistance ProgramsThe costs of caregiving can add up quickly. Programs like Medicaid Waivers, Veterans Aid and Attendance benefits, and local state assistance programs can provide financial relief. Additionally, many states offer stipends or tax credits for family caregivers.Technology Tools for CaregivingModern technology has made caregiving more manageable. Apps like CaringBridge and CareZone help you organize medical records, schedules, and communication with other family members. Medication reminder tools and wearable devices can also provide peace of mind.Caregiver Education and TrainingBecoming a caregiver often requires learning new skills. Organizations like the Alzheimers Association and AARP offer online courses, workshops, and guides to help you handle medical tasks, improve communication, and navigate the complexities of caregiving.Professional Home Care ServicesSometimes, partnering with a professional caregiver can provide the support you need. Home care services like those offered by Elderlink Home Care, Inc. allow your loved one to remain in the comfort of their home while receiving expert assistance with daily activities, personal care, and companionship.Legal and Financial Planning ResourcesHaving the proper legal and financial documents in place is crucial. Organizations like Legal Aid and National Academy of Elder Law Attorneys (NAELA) can guide you in preparing essential documents, such as powers of attorney and advanced directives, ensuring your loved ones wishes are honored.Caregiver Counseling ServicesThe emotional toll of caregiving is real. Many mental health professionals specialize in helping caregivers navigate stress, grief, and burnout. Look for local therapists or online counseling services to prioritize your mental health.Meals on Wheels and Nutrition ServicesEnsuring your loved one eats well is a top priority. Programs like Meals on Wheels provide healthy, affordable meals delivered right to their door. Many community centers and churches also offer meal services for seniors.Final ThoughtsBeing a family caregiver is no small task, but you dont have to go it alone. By tapping into these resources, you can find the support you need to provide the best care possible for your loved one while maintaining your own well-being.At Elderlink Home Care, Inc., were here to help. Whether you need professional caregiving services or advice on navigating the complexities of senior care, feel free to contact us for guidance and support.Remember: Taking care of yourself is just as important as taking care of your loved one. Dont hesitate to reach out for helpits a sign of strength, not weakness!Question, please call us at 303-734-0641.