How Keeping a Journal Helps Dementia Caregivers

Author

Right at Home

For more information about the author, click to view their website: Right at Home

Posted on

Aug 27, 2024

Book/Edition

Colorado - Northern Colorado

Caring for a loved one with dementia presents unique challenges that can be overwhelming. It means coping not just with the loved one's illness and the huge life changes that will come, but with the caregiver's own feelings and struggles too. 

Keeping a detailed journal is an organized way to record the progress and effects of the patient's dementia helpful information for their doctors. But it can also provide emotional and psychological benefits for caregivers themselves.

Whether you're caring for someone with dementia or another illness, here are some things to consider when keeping a journal. 

What To Track in Your Journal 

Why record what the dementia patient is experiencing? Two reasons: because it will help their doctors and because it will help the caregiver understand and adapt to the effects of the disease.

•  Daily activities and behaviors: Note any changes in mood, unusual behaviors, or shifts in routine. This can help identify triggers for agitation or anxiety and reveal patterns or changes over time.

•  Medications and side effects: Record the times and doses of medications. If their medications change, note any side effects or noticeable changes in the person's condition. This can be crucial for managing the drugs' effectiveness and any potential drug interactions.

•  Eating and drinking habits: What and how much is your loved one eating and drinking? Tracking this information can help prevent malnutrition and dehydration, which are common issues in people with dementia.

•  Physical health and symptoms: Record any physical symptoms, such as coughs, changes in mobility, or signs of discomfort. This information can be vital for detecting emerging health issues that may not be directly related to dementia.

•  Sleep patterns: How much and how well are they sleeping? Do they wake up during the night? Sleep disturbances can exacerbate the symptoms of dementia and affect the health of both the caregiver and the patient.

•  Falls: Research shows that falls are not only more common among people with dementia, but they can also accelerate cognitive decline. Details about any falls-where, when, and how they occurred-are important information for the doctors. 

Journaling: A Safe Space and a Helpful Tool 

Keeping a journal helps the caregiver process the complex emotions they're likely experiencing. A journal is a private, safe space where the caregiver can express frustrations, celebrate successes, and acknowledge hardships. Journaling can help them protect their mental health stability, which in turn can help them feel better able to support their loved one effectively. 

A journal can also be a place for the caregiver to track the effectiveness of care strategies and treatments. For example, the caregiver may notice that the timing of dinner is causing their loved one distress. Their notes can help them adjust their caregiving as needed. 

The caregiver may even decide to keep two separate journals-one for themselves and the other journal (or calendar) about their loved one's condition. 

"There is something about recording what is happening to us and our emotional reactions that enables family caregivers to stand apart from the onrush of tasks and crises they're immersed in," said Barry J. Jacobs in an article for AARP. A caregiver himself, Jacobs noted that journaling can help the writer "feel more in control." 

How the Journal Can Help Doctors 

A detailed journal is a valuable resource during medical appointments. It provides data and examples that help doctors understand the patient's current state beyond what a memory recall or short visit can reveal. This is crucial in diagnosing issues, adjusting medications, or changing treatment plans. 

Doctors rely on accurate, detailed information to make informed decisions about treatments and care strategies. For example, if the journal shows that the patient has fallen repeatedly, the doctor may use that information to assess the patient's need for mobility aids, physical therapy, or further neurological evaluation. The doctor may end up identifying a treatable condition, such as an inner ear disorder or vision problems. 

Moreover, the journal can help identify early signs of complications or side effects of medications that the patient might not be able to express because of their cognitive condition. This helps the doctor make a change before the complications cause a potentially serious health issue. 

Write for Them and for Yourself 

Keeping a journal is a simple yet effective tool that can greatly improve the caregiving experience

for those managing the care of someone with dementia. You'll help not just your loved one, but yourself as well. Do it in whatever way works best for you. "This is not a school assignment," Jacobs reminds other caregivers. "No one is grading you. Just empty the contents of your mind without judging yourself."

If you have any questions, please call Right at Home at 970-494-1111.

Other Articles You May Like

Do Therapy Dogs Help Alzheimers Dementia Patients?

Visit any critical care unit, childrens hospital, or other specialty inpatient facility, and youll find a common feature: therapy dogs. For decades, healthcare practitioners have understood the surprisingly positive effects on patients of time spend with cute and cuddly dogs. Therapy dogs reduce stress, improve mood, and can help patients reframe their outlook on whatever condition ails them. The positive effects of patient interactions with therapy dogs are a well-documented fact of the medical world. Senior citizens with limited mobility and other health conditions also benefit from the companionship of dogs. Owning a pet reduces feelings of loneliness among seniors living at home or in a retirement facility, which in turn greatly reduces the risk of diseases associated with loneliness and isolation. Pets can also decrease the number of stress hormones in a persons blood, lower blood pressure, and contribute to a more positive outlook on life. Dogs and other pets, it seems, have tremendous healing powers!Since Alzheimers patients cannot adequately care for a pet, owning one is out of the question. Considering the nature of Alzheimers dementia, it is easy to assume that a loved one may not benefit from a pet since they will not remember the interaction. Researchers, convinced therapy dogs would have a positive effect on Alzheimers patients, put this question to the test: Do Therapy Dogs Help Alzheimers Dementia Patients?Short-Term Benefits of Therapy Dogs for Patients with Alzheimers Dementia.A study conducted in the early 2000s looked carefully at the subject of therapy dogs and Alzheimers dementia patients. They measured the incidence of behavioral disturbances among patients in a nursing home for a period of four weeks, then introduced therapy dogs. Their initial findings showed that the dogs helped to reduce behavioral disturbances in the short term, meaning they helped to immediately calm patients. The short-term effects proved that therapy dogs do have a positive effect on patients with Alzheimers disease, particularly in regards to anxiety, anger, and changes in behavior associated with the disease.Long-Term Benefits of Therapy Dogs for Patients with Alzheimers Dementia.The same study did not stop at the short-term effects of therapy dogs on Alzheimers patients. Previous assumptions suggested that since patients would not remember their encounters with the therapy dogs, the effects of spending time with them would vanish from one day to the next. Not true, the study authors found. Although most of the patients did not remember their interactions with the therapy dogs (some did), the behavioral disturbances noted in the four weeks prior to the study reduced. In fact, the longer and more frequently patients interacted with the therapy dogs, the less they exhibited behavioral disturbances.Therapy Dogs As A Long-Term Therapy.The study findings confirmed what clinicians suspected all along: dogs are an excellent long-term therapy for persons with Alzheimers dementia to reduce the incidence of behavioral disturbances. Therapy dogs also had the same effect on Alzheimers patients as they do on other kinds of patients, including reduced stress and anxiety, lower blood pressure, better appetite, and fewer feelings of loneliness. These effects continued to increase the longer and more frequently patients interacted with the dogs.What Makes Dogs Such Good Therapy?Dogs are wired to give unconditional love and devotion. They can provide physical and social contact where it is missing, and they are not picky. what sets dogs apart, particularly those trained as therapy dogs, is that they will approach anyone regardless of their physical or mental deterioration, and initiate contact. Patients can pet, hug, and cuddle dogs unlike any other kind of pet. These positive interactions provide a distraction to the other goings-on around them and provide relief for those suffering from sadness, anger, or angst.The Takeaway.Dogs have a tremendous healing power. While studies have focused specifically on Alzheimers dementia patients, their positive effects will benefit anyone suffering from general dementia. Families of patients will feel relief that their loved ones have fewer outbursts of anger, sadness, or angst. While dementia impairs memory, it does not interrupt the long-term benefits of regularly interacting with a therapy dog. In fact, the more they interact with a therapy dog, the fewer behavioral problems they exhibit.

Successful Communication When Your Loved One Has Dementia

When someone you love has dementia, youll notice that things are changing quickly. When they make mistakes and fumble with the little things, our instinct is to correct and remind. Thats to be expected. After all, youre hoping that a little push and a dose of reality would be enough to lead them back to the person you know and love.As you will see below, corrections and reminders wont always work. Effective communication with a dementia patient requires an adjustment of expectations. In the following, well get you started.Forced choicesEveryone likes to have a choice. But having too many options can actually be confusing to a patient with dementia. Thats because their working memory is operating in limited capacity. Working memory is where the brain retains just the right amount of information to finish a task think of dialing a new phone number. So you can see how loss of working memory can be problematic in conversation and hinder decision-making.Thats where the forced choice method can lift that burden for your loved one, and cut the confusion. Watch the video here.Help with sequencingWe take basic daily tasks for granted: eating, standing, brushing our teeth. Though these tasks feel natural and automatic, we rely on the frontal lobe to help us complete these tasks. When someone is experiencing dementia, the brain degeneration can make them lose their ability to access this command center. When you see your loved one freeze, as if in confusion, you can help them through the basic task with sequencing, by breaking down the tasks into simple steps. This video about sequencing provides some examples.The therapeutic fibYou can never go wrong with the truth, or so youre taught. But when it comes to dementia and Alzheimers, the truth actually has a cruel side. Because when someone is living with degenerative memory, they sometimes lose track of key details of their loved ones. The fact that a partner or a child is deceased or gone can literally be forgotten. In cases like these, telling the truth can be devastating it will be as if theyre hearing this horrible news for the first time. This is where a therapeutic fib can get you both through the difficult moment, and this video explains how.Admit wrongdoing when youre rightSpeaking of truth, sometimes your loved one with dementia will get basic things wrong. They may insist, for example, that they cant possibly be a grandparent because in their mind, theyre only 25 years old! This can be a painful moment, because this represent a loss in your relationship with them and you want to hold on. But fighting these beliefs is futile. This video will show you how to gently move past the conversation.Repeating themselvesHearing the same story, especially if they think youre hearing it for the first time, can get frustrating. The wrong response is trying to make them understand theyve already told it. In this segment, well show you how to get through the moment.The important thing to remember is when a person has dementia or Alzheimers, the brain is going through massive changes. That can be difficult to take. Take a look at this video, Whats Happening to Their Brain?, so you can put yourself in their shoes. Understanding whats at work can go a long way in good communication when your loved one has dementia.Learn more about how we provide specialized care in our series Insights from Arthurs featuring educational videos from Arthurs Director of Development and Senior Care Consultant Deb Nygaard. 

How St. Pauls Dementia Care Programs Enhance Quality of Life

Dementia can be a challenging journey for both seniors and their families. However, with the right care and support, individuals living with dementia can experience a fulfilling and meaningful life. At Sholom, we are committed to providing top-tier dementia care in the St. Paul area, focusing on enhancing the quality of life for our residents. Through personalized care plans, engaging activities, and a compassionate approach, we create an environment where residents can thrive.Personalized Dementia Care Plans for Individual NeedsEvery individuals experience with dementia is unique, which is why Sholoms St. Paul dementia care programs are designed to cater to the individual needs of each resident. Our dedicated team of professionals works closely with families to develop personalized care plans that address the specific challenges and preferences of each person. These plans are regularly reviewed and updated to ensure they evolve with the residents needs, promoting comfort, safety, and well-being.Dementia Care AssessmentsAt the heart of our personalized care approach is a comprehensive assessment that helps us understand the physical, emotional, and cognitive needs of each resident. This assessment allows us to create a care plan that not only addresses medical requirements but also focuses on enhancing daily living experiences.Regular Care Plan ReviewsAs dementia progresses, the needs of our residents may change. Sholoms team continuously monitors and adjusts the dementia care plans to reflect these changes, ensuring that each resident receives the most appropriate and effective care throughout their journey.Engaging Activities to Stimulate Mind and BodyAt Sholom, we believe that staying active is essential to maintaining a high quality of life. Our St. Paul dementia care programs include a variety of activities designed to stimulate both the mind and body. These activities are tailored to the abilities and interests of our residents, providing opportunities for social interaction, cognitive stimulation, and physical exercise.A Compassionate Approach to Dementia CareCompassion is at the core of everything we do at Sholom. Our St. Paul dementia care programs are built on a foundation of respect, dignity, and understanding. We recognize that dementia affects not just the individual but their entire family, which is why we provide emotional support and resources for families as well.Family Involvement and SupportAt Sholom, we encourage family involvement in the care process. We offer regular updates, family meetings, and support groups to ensure that families feel informed and supported. Our team is always available to answer questions and provide guidance, helping families navigate the challenges of dementia care.A Warm and Welcoming EnvironmentCreating a home-like environment is essential for the well-being of our residents. Sholoms facilities in the St. Paul area are designed to be safe, comfortable, and welcoming. Our staff is trained to provide care with kindness and patience, ensuring that every resident feels valued and loved.Experience Quality Dementia Care at Sholom in St. PaulAt Sholom, we are dedicated to enhancing the quality of life for seniors with dementia. Our St. Paul dementia care programs are designed to provide personalized, compassionate care that meets the unique needs of each resident. Through engaging activities, personalized care plans, and a supportive environment, we strive to make every day meaningful for our residents. Contact us today for more information. 

Local Services By This Author

Right at Home

Non-Medical 330 East Mulberry Street, Fort Collins, Colorado, 80524

Right at Home is a licensed non-medical agency that provides in-home care to seniors through out Larimer and Weld counties.At Right at Home Northern Colorado, we pride ourselves on offering compassionate and reliable non-medical home care services tailored to the unique needs of seniors throughout Larimer and Weld counties. As a licensed and trusted agency, we specialize in delivering personalized in-home care that enhances the quality of life for our clients, ensuring they receive the support they need to maintain their independence and well-being in the comfort of their own homes.Our comprehensive range of non-medical home care services is designed to cater to various needs and preferences. Whether its running errands, meal preparation, companionship, or personal care, our dedicated caregivers are here to provide the highest standard of support. We understand that each individual has distinct requirements, and we are committed to creating customized care plans that address those specific needs effectively.Running Errands: Our caregivers can assist with a wide array of errands, from grocery shopping and picking up prescriptions to managing household tasks and appointments. This service ensures that seniors can continue their daily routines with minimal stress and without compromising their safety.Meal Preparation: Proper nutrition is crucial for maintaining health and vitality. At Right at Home Northern Colorado, we offer meal preparation services that include planning, cooking, and serving nutritious meals tailored to dietary preferences and restrictions. Our caregivers are skilled in preparing balanced, delicious meals that cater to individual dietary needs.Companionship: Social interaction is vital for emotional well-being. Our compassionate caregivers provide companionship that goes beyond mere presence. They engage in meaningful conversations, participate in recreational activities, and offer emotional support, helping to combat loneliness and enhance overall happiness.Personal Care: For seniors who require assistance with daily personal care tasks, our caregivers offer respectful and professional support. This includes help with bathing, grooming, dressing, and other personal hygiene needs. We prioritize dignity and comfort while ensuring that all care is delivered with the utmost respect.At Right at Home Northern Colorado, we recognize that the decision to seek home care can be challenging. Thats why we offer a FREE in-home assessment to evaluate your specific needs and preferences. Our team will work closely with you to develop a personalized care plan that aligns with your requirements and provides the best possible care.Our caregivers are not only skilled and experienced but also undergo thorough background checks and ongoing training to ensure they meet our high standards of care. We are dedicated to maintaining a safe and supportive environment where seniors can thrive.To learn more about our non-medical home care services and how we can assist you or your loved one, please call 970-494-1111. We are here to provide the support you need, and we look forward to the opportunity to serve you with our exceptional care services. At Right at Home Northern Colorado, your comfort, safety, and satisfaction are our top priorities. Let us help you create a care plan that is as unique as you are.