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How Long Can You Be on Hospice Care?
One of the most
common questions about hospice care is, “how long can someone be on hospice?”
Understanding the duration and criteria for hospice can help patients and their
families make informed decisions during challenging times.
While most
patients only experience its benefits for days and weeks, hospice is available
when a patient’s physician certifies that they have six months or less to live,
as explained further below, with recertification available if the patient
outlives that six-month period and continues to meet hospice criteria.
What is Hospice Care?
Hospice is
defined as supportive care that focuses on comfort and quality of life. Hospice
is available for patients with a terminal illness and a life expectancy of six
months or less if their illness runs its normal course, as certified by a
physician.
Can hospice help?
Hospice
services include:
Some companies
like Amedisys also offer specialized programs to care for certain diagnoses
like dementia, heart failure and more.
Understanding
how long hospice care can be provided first starts with having a strong grasp
of the eligibility criteria.
To be eligible
for hospice, the patient must be considered terminally ill with a life
expectancy of six months or less if the disease runs its normal course, as
certified by a physician. The hospice physician uses their clinical expertise
and information from a comprehensive assessment to determine life expectancy.
Signs the patient is declining from the terminal illness include progressive
weight loss, frequency of hospitalizations, increasing weakness or fatigue,
difficulty with daily activities and more.
The patient
must also elect to stop curative treatments in favor of the comfort and quality
of life measures hospice provides. The physician will work closely with the
hospice care team on a personalized plan of care focused on pain and symptom
management and comfort so patients and families can make the most of their
remaining time together.
How Long Can Patients
Receive Hospice Care?
Patients can
receive the benefits of hospice care as long as they continue to meet the
eligibility criteria. If a patient lives longer than the original six-month
certification period, physicians can re-certify them to remain on hospice care
if the disease progression still indicates a life expectancy of six months or
less.
Although
patients cannot receive curative treatment while on hospice care, if a
patient’s condition improves significantly so that they are no longer
considered terminally ill, they will be discharged from hospice care. Patients
can also choose to opt out of hospice care at any time during the service.
One of the most
famous examples of how hospice can extend beyond six months is former President
Jimmy Carter. As of this publication, Jimmy Carter has received hospice care
for more than a year, spending that precious remaining time with his family in
his home. His legacy will be one of normalizing end-of-life conversations,
sparking hope that more patients and families will seek out the benefits of
hospice and embrace them sooner rather than later.
What are the Benefits of
Hospice Care?
One of the most
common phrases we hear from families is, “we wish we had chosen hospice
sooner.” By accepting help early, patients and families can expect a range of
benefits at the end of life:
Pain and
Symptom Management
Pain and
symptom management is a central tenant of hospice care, providing comfort and
the best quality of life possible for patients at home. Hospice care combines
pharmacological and non-medication tactics to manage physical, emotional,
psychosocial and spiritual pain for the patient and caregiver.
Holistic
Care
Hospice is a
unique Medicare benefit providing care with a full, interdisciplinary care
team. Holistic care is a patient-centered approach that focuses on caring for
the whole person, including their physical, emotional, psychosocial, and
spiritual well-being.
Supportive
Care Environment
Having hospice
care at home fosters a sense of security, familiarity and peace, which can
contribute to a patient’s overall sense of well-being.
Advance Care Planning
Hospice care
encourages open communication and advance care planning discussions, allowing
patients to express their desires for the final weeks and months of their life.
This can help avoid unwanted medical interventions that could diminish quality
of life by ensuring patients are getting the care they need and want.
How Do You Know When It’s
Time for Hospice?
If you’re
caring for a loved one with a terminal diagnosis, there are several key signs
that it may be time to start talking about hospice care:
Their doctor
has given a prognosis of six months or less.
Their health or
disease symptoms are worsening with frequent trips to the hospital or doctor’s
office.
They have
decreased appetite or pain/nausea interfering with their ability to eat and
drink.
They sleep more
throughout the day and night.
There are
noticeable behavior changes in mental clarity, confusion, forgetfulness, or
irritability.
Activities of
daily living like feeding oneself, bathing and dressing independently become
more difficult.
Caregivers are
overwhelmed and unable to manage care on their own.
What Are the Four Levels of
Hospice Care?
As you research
hospice, you may come across different levels of hospice care. Moving into
different levels can be triggered by changing circumstances or needs of the
patient or caregiver. Here are the four levels of hospice care all
Medicare-certified agencies provide:
Routine Home
Care
This is the
most common type of hospice care. The full team conducts intermittent visits
wherever the patient calls home, providing a comfortable and familiar
environment.
Respite Care
Respite care is
available when caregivers need a break. Patients are admitted to a long-term
care facility or other inpatient facility with 24-hour nursing available. The
patient can stay in the facility for up to five days/five nights and returns to
routine level of care on day 6. The hospice team coordinates the plan of care
and can arrange transport patients to and from the facility as needed.
Continuous
Home Care
This level of
care is for short-term urgent healthcare needs or symptom crises that can still
be feasibly addressed at home. The hospice team provides at least eight hours
of continuous care within a 24-hour period. When symptoms are controlled, the
patient returns back to routine care.
General Inpatient Care
If pain and
symptoms related to the patient’s terminal illness can no longer be controlled
at home, the patient may be appropriate for General Inpatient (GIP) care. The
hospice team facilitates the patient’s transfer to a hospital, long-term care
facility or hospice inpatient unit and will continue coordinating the plan of
care. Patients will return home to routine home care once pain and symptoms are
managed.
How to Get Started with
Hospice Care
If you’re ready
to start talking about hospice care with your family, Amedisys is here to
support you through every stage. Contact Amedisys Hospice in Mobile, Alabama
at 251-343-0989 for more information.
A Delicate Dance: Discussing Food and Comfort at the End of LifeFor referral partners transitioning patients to hospice care, a common source of tension arises: the practice of regular solid food feeding. Families, often driven by love and cultural norms, may struggle to accept that forced feeding can be detrimental to their loved ones comfort in the final stages of life. This article equips medical professionals with talking points to navigate these sensitive conversations, prioritizing the patients well-being while acknowledging familial concerns. The Bodys Changing Needs:The human bodys metabolic needs decrease significantly near death [1]. The digestive system weakens, making food absorption difficult and potentially uncomfortable. Studies have shown that artificial hydration and nutrition dont improve lifespan or patient outcomes [2]. In fact, they can increase the risk of aspiration pneumonia, a serious lung infection caused by inhaling fluids [3].Focus on Comfort, Not Calories:When discussing food with families, emphasize that the goal is comfort, not sustenance. Offer mouth swabs dipped in cool water or flavored ice chips to alleviate dryness. Small, soft food pieces the patient enjoys might be acceptable, but prioritize their wishes. Research by Kelley et al. (2017) suggests focusing on the sensory experience of food, allowing patients to savor familiar tastes without the burden of a full meal [4].Addressing Emotional Concerns:Families often equate food with love and nurturing. Acknowledge these emotions and explain how forcing food can create a negative association. Highlight the importance of spending quality time, holding hands, and offering emotional support [5].Clear Communication is Key:Open communication is paramount. Use clear, concise language, avoiding medical jargon, and answer questions honestly (Gabb et al., 2019) [6]. Explain the physiological changes and potential complications of forced feeding. Shared Decision-Making:Empower families to participate in decision-making. Present the evidence, but respect their cultural and religious beliefs. Guide them towards prioritizing their loved ones comfort while offering emotional support throughout the process [7].Collaboration with the Hospice Team:Hospice nurses and social workers are experts in navigating these discussions. The hospice team will work collaboratively to develop a care plan that aligns with the patients needs and the familys wishes [8].Conversations about food at the end-of-life can be emotionally charged. Equipping medical professionals with clear communication strategies can guide families toward prioritizing patient comfort while respecting their wishes. By focusing on the bodys changing needs and prioritizing comfort over forced feeding, healthcare teams can ensure a peaceful transition for patients and their loved ones during this sensitive time.References: Wright, B. M., & Sinclair, S. (2000). Palliative care for the dying patient. The Lancet, 356(9242), 1658-1661. Sinuff, T. M., & Schenker, Y. (2005). Palliative care: The evidence base for opioid therapy, artificial nutrition and hydration, and other interventions. The Journal of Pain, 6(2), 113-125. Marik, P., & Rivera, D. (2013). Does artificial hydration prolong life in the critically Ill? A systematic review of the literature. Chest Journal, 144(1), 336-345. Kelley, L. M., Mitchell, G. D., & Carlson, L. E. (2017). Oral care and feeding practices at the end of life in long-term care settings: A review of the literature. Journal of Gerontological Nursing, 43(1), 32-40. Ferrell, B. R., Coyle, N., & Paice, J. A. (2010). The Ferrell model of physical symptoms management. Journal of Palliative Care, 26(2), 115-123. Gabb, J. M., Morrison, R. S., & Clayton, J. M. (2019). Communication with families about artificial nutrition and hydration at the end of life. Current Opinion in Supportive and Palliative Care, 13(2), 118-123. Wright, K. J., & Eluchard, J. M. (2015). Shared decision-making at the end of life: A review of the role of communication. Nursing Ethics, 22(4), 444-459. Zimmermann, C. K., Knauf, H., Greer, T. L., & LeClerc, C. M. (2007). The role of hospice and palliative
The Intersection of Post-Traumatic Stress Disorder (PTSD) and End-of-Life Care: How Hospice Can HelpPTSD is a mental health condition that can develop after exposure to a traumatic event. While often associated with veterans, PTSD can affect anyone at any age, including the elderly. This population may have experienced war, accidents, violence, or other traumas throughout their lives, leaving them vulnerable to PTSD symptoms at the end-of-life stage. Hospice care, with its holistic approach, is uniquely positioned to support patients with both the physical and emotional challenges of PTSD alongside the dying process.PTSD in the Aging PopulationResearch suggests a potential overlap between PTSD and age-related cognitive decline [1]. Symptoms like flashbacks, nightmares, and hypervigilance can be particularly distressing for elderly patients already facing anxieties about mortality. Furthermore, social isolation, a common consequence of PTSD, can be exacerbated by the physical limitations often experienced in later life.How Hospice Can HelpHospice care offers a comprehensive support system that can significantly benefit patients with PTSD: Symptom Management: Hospice providers can address physical symptoms that may worsen PTSD, such as pain and insomnia, allowing for better emotional regulation. Psychological Support: Hospice teams often include social workers and chaplains who can provide individual and group therapy to help patients process trauma and develop coping mechanisms. Spiritual Care: Hospice chaplains can offer spiritual guidance and support, fostering a sense of peace and acceptance for patients struggling with trauma. Family Support: Hospice programs educate and support families on how to best care for their loved ones with PTSD, fostering open communication and reducing caregiver burden. PTSD can be a significant challenge at the end of life. Hospice care, with its focus on comprehensive symptom management, emotional support, and spiritual guidance, is uniquely equipped to address the complex needs of patients with PTSD. By partnering with hospice care, medical professionals can ensure their aging patients with PTSD receive the compassionate and holistic care they deserve in their final journey.References: [1] Schnurr, PP & McNally, RJ (2005). PTSD in late life: Theory, research, and treatment implications. The American Journal of Psychiatry, 162(2), 131-148. (https://academic.oup.com/edited-volume/34728/chapter/296497498)
Ensuring Safety in Hospice Care: A Commitment to ExcellenceThe importance of safety in the workplace for healthcare providers cannot be overstated. As we approach OSHAs Safe and Sound Week in August, it is an opportune moment to highlight the critical measures we undertake to ensure a safe work environment for our staff and patients. This communication aims to inform our referral sources about our safety protocols and provide valuable tips that medical professionals may find beneficial for maintaining safety in their workplaces.Our Commitment to SafetyIn hospice care, where the environment can be unpredictable and emotionally charged, maintaining rigorous safety standards is paramount. Our commitment to safety is evidenced by our comprehensive safety programs, continuous staff training, and adherence to OSHA guidelines. According to the Bureau of Labor Statistics (2023), healthcare workers face a higher rate of workplace injuries than workers in most other sectors, with nearly 5.5 injuries per 100 full-time workers annually. This statistic underscores the importance of our ongoing efforts to mitigate risks and promote a culture of safety.Staff Training and EducationOngoing Training: All our staff undergo regular training sessions that cover the latest safety protocols, emergency procedures, and the proper use of personal protective equipment (PPE). Research has shown that continuous education significantly reduces the incidence of workplace injuries (Smith et al., 2022).Ergonomic InterventionsProper Lifting Techniques: Back injuries are a common concern in healthcare settings. We emphasize training on proper lifting techniques and the use of mechanical lifts when necessary to prevent musculoskeletal injuries (Anderson et al., 2020).Infection Control MeasuresStrict Hygiene Protocols: Adherence to stringent hygiene protocols, including regular handwashing, use of sanitizers, and appropriate use of PPE, is mandatory. These measures are crucial in preventing the spread of infections among staff and patients (CDC, 2022).Mental Health SupportCounseling Services: Recognizing the emotional toll that hospice work can take, we offer counseling services to support our staffs mental health. Studies have indicated that mental health support reduces burnout and improves job satisfaction among healthcare workers (Jones et al., 2021).Safety Tips for Medical ProfessionalsWhile our safety protocols are robust, there are additional tips that medical professionals may find useful in enhancing their safety at work:Use Technology WiselyTelehealth Services: Where appropriate, leverage telehealth services to reduce the need for physical interactions, thereby minimizing exposure to infectious diseases.Stay InformedContinuing Education: Keep abreast of the latest safety guidelines and best practices through continuing education programs. This knowledge is vital for adapting to new challenges and improving workplace safety.Promote a Safety CultureOpen Communication: Foster an environment where staff feel comfortable reporting safety concerns without fear of retribution. An open communication culture is essential for identifying and addressing potential hazards promptly (Davis et al., 2019).Personal Protective Equipment (PPE)Proper Use and Disposal: Ensure the correct use and disposal of PPE. Improper handling can negate the benefits and increase the risk of contamination.Safety in the workplace is a fundamental aspect of providing high-quality hospice care. By implementing rigorous safety measures and continuously educating our staff, we strive to create a secure environment for both our employees and patients. We encourage our referral sources to adopt similar practices to enhance safety within their own organizations. Together, we can build a safer healthcare system for everyone. Call us today to learn more!ReferencesAnderson, J., Williams, M., & Smith, T. (2020). Ergonomic interventions in healthcare: A review of the evidence. Journal of Occupational Health, 62(4), 311-319. https://doi.org/10.1002/joh.22023Centers for Disease Control and Prevention (CDC). (2022). Infection control in healthcare settings. Retrieved from https://www.cdc.gov/infectioncontrol/index.htmlDavis, K., Turner, M., & Wrenn, G. (2019). Promoting a culture of safety in healthcare. Healthcare Management Review, 44(2), 123-135. https://doi.org/10.1097/HMR.0000000000000199Jones, A., Phillips, R., & Brown, L. (2021). Mental health support for healthcare workers: A systematic review. Journal of Occupational and Environmental Medicine, 63(1), 54-62. https://doi.org/10.1097/JOM.0000000000002025Smith, R., Johnson, P., & Martinez, S. (2022). The impact of continuous education on workplace safety in healthcare. American Journal of Industrial Medicine, 65(3), 233-245. https://doi.org/10.1002/ajim.23394U.S. Bureau of Labor Statistics. (2023). Occupational injuries and illnesses among healthcare workers. Retrieved from https://www.bls.gov/iif/
About Amedisys Hospice Care in Mobile, ALWe provide high-quality hospice care in Mobile, wherever you call home. Hospice care gives people facing a terminal illness comfort and a better quality of life. Your personalized care plan may include nursing care, pain and symptom management, hospice aides, emotional and spiritual support, and more. We are here for you 24/7, with a strong commitment to quality and patient satisfaction. We are also here for your loved ones, offering social work services, respite care and bereavement counseling. Hospice costs are usually 100% covered by Medicare, Medicaid and private insurance for eligible patients. Tell us your goals and wishes. Were listening. Pain Management: The hospice team may prescribe medications to help ensure that pain and other symptoms are well-managed ensuring your loved one feels as comfortable and alert as possible.Hospice Aide Services: Hospice aides provide at-home help with basic self-care and hygiene needs to support activities of daily living.Social Work Services: Social workers provide emotional support and counseling for how to cope with grief, help with end-of-life conversations, planning and more.Skilled Nursing Care: The hospice nurse visits regularly to check on the patient and assess how your loved one feels, to administer medications and coordinate with the rest of the hospice team.Hospice Volunteer Companionship: Families in hospice can receive additional support from trained volunteers who provide companionship and some help with transportation or other practical needs.Chaplain Spiritual Support: Families have different spiritual needs about the end of life, and our chaplains provide spiritual care and bereavement support for all.Bereavement Support: After the loss of a loved one, families can receive up to one year of support and guidance from trained bereavement counselors.Therapy Services: The Amedisys bereavement support team facilitates both virtual and in-person bereavement support groups.Hospice Care for Veterans: Amedisys is proud to participate in the We Honor Veterans program to cater to veterans unique end-of-life-needs.Amedisys Hospice-Mobile, services these Alabama counties: Baldwin, Butler, Conecuh, Escambia, Mobile, Monroe, & Wilcox.Call us today at 251-343-0989 to find out how Amedisys Hospice Care in Mobile can help.