In-Patient vs. Home: Choosing the Right End-of-Life Care

At Vincentian, Patient and Family Centered Care is a fundamental approach that shapes every aspect of healthcare delivery. This philosophy places individuals at the heart of all decisions and actions, recognizing that each person has unique needs, preferences, and communication styles.Core PrinciplesThe cornerstone of this approach is the partnership between caregivers, patients, residents, and their families. This collaborative model ensures that care is tailored to individual needs, promoting not just health but overall thriving.Understanding the Patient ExperienceTo truly grasp the patient and resident experience, Vincentian employs several strategies:Shadowing: Staff members may follow patients or residents throughout their day to gain firsthand insights into their experiences.Observation: Careful monitoring of daily routines and interactions helps identify areas for improvement.Continuous Learning: The organization maintains an open dialogue with those they serve, constantly adapting to feedback and new information.Practical ApplicationsPatient and Family Centered Care manifests in various practical ways:Personalized Scheduling: Therapy sessions are arranged around preferred mealtimes or sleep patterns.Tailored Welcome: New residents receive personalized invitations to activities matching their interests.Flexible Care Plans: Care routines are adjusted to accommodate individual preferences and habits.Fostering ConnectionVincentian recognizes that the need for human connection doesn't diminish with age or in care settings; in fact, it becomes even more crucial. Their approach emphasizes:Intergenerational Interaction: Programs that bring together different age groups, fostering mutual learning and growth.Holistic Wellness: Strategies addressing all aspects of well-being, from physical health to social and emotional needs.Community Building: Creating environments where residents don't just coexist but thrive together.Designing for Individual NeedsThe organization goes beyond basic care to create living spaces that truly feel like home. This is achieved through:Resident Councils: Groups that provide input on community decisions and improvements.Experience Workgroups: Teams dedicated to enhancing the overall resident experience.Adaptive Design: Spaces and programs that evolve based on resident feedback and changing needs.Inclusive EnvironmentVincentian strives to create an atmosphere that is welcoming and accommodating to all. This includes:Diverse Programming: Activities and events that cater to a wide range of interests and abilities.Accessible Spaces: Physical environments designed to be navigable by residents with varying levels of mobility.Cultural Sensitivity: Recognition and celebration of the diverse backgrounds of residents and staff.Continuous ImprovementThe organization maintains a commitment to ongoing enhancement of their care model. This involves:Regular Feedback Loops: Mechanisms for residents and families to share their experiences and suggestions.Staff Training: Continuous education for caregivers on the principles of Patient and Family Centered Care.Innovation in Care: Exploring new technologies and methodologies to improve care delivery and resident quality of life.By embracing this comprehensive approach to Patient and Family Centered Care, Vincentian creates a nurturing environment where individuals are not just cared for but truly valued and empowered. This model recognizes that each person's journey is unique, and by tailoring care to individual needs and preferences, Vincentian helps ensure that every resident can live their life to the fullest, maintaining dignity, autonomy, and a sense of community throughout their care journey.  Give them a call today to learn more about what makes them different.

A Delicate Dance: Discussing Food and Comfort at the End of LifeFor referral partners transitioning patients to hospice care, a common source of tension arises: the practice of regular solid food feeding. Families, often driven by love and cultural norms, may struggle to accept that forced feeding can be detrimental to their loved ones comfort in the final stages of life. This article equips medical professionals with talking points to navigate these sensitive conversations, prioritizing the patients well-being while acknowledging familial concerns. The Bodys Changing Needs:The human bodys metabolic needs decrease significantly near death [1]. The digestive system weakens, making food absorption difficult and potentially uncomfortable. Studies have shown that artificial hydration and nutrition dont improve lifespan or patient outcomes [2]. In fact, they can increase the risk of aspiration pneumonia, a serious lung infection caused by inhaling fluids [3].Focus on Comfort, Not Calories:When discussing food with families, emphasize that the goal is comfort, not sustenance. Offer mouth swabs dipped in cool water or flavored ice chips to alleviate dryness. Small, soft food pieces the patient enjoys might be acceptable, but prioritize their wishes. Research by Kelley et al. (2017) suggests focusing on the sensory experience of food, allowing patients to savor familiar tastes without the burden of a full meal [4].Addressing Emotional Concerns:Families often equate food with love and nurturing. Acknowledge these emotions and explain how forcing food can create a negative association. Highlight the importance of spending quality time, holding hands, and offering emotional support [5].Clear Communication is Key:Open communication is paramount. Use clear, concise language, avoiding medical jargon, and answer questions honestly (Gabb et al., 2019) [6]. Explain the physiological changes and potential complications of forced feeding. Shared Decision-Making:Empower families to participate in decision-making. Present the evidence, but respect their cultural and religious beliefs. Guide them towards prioritizing their loved ones comfort while offering emotional support throughout the process [7].Collaboration with the Hospice Team:Hospice nurses and social workers are experts in navigating these discussions. The hospice team will work collaboratively to develop a care plan that aligns with the patients needs and the familys wishes [8].Conversations about food at the end-of-life can be emotionally charged. Equipping medical professionals with clear communication strategies can guide families toward prioritizing patient comfort while respecting their wishes. By focusing on the bodys changing needs and prioritizing comfort over forced feeding, healthcare teams can ensure a peaceful transition for patients and their loved ones during this sensitive time.References: Wright, B. M., & Sinclair, S. (2000). Palliative care for the dying patient. The Lancet, 356(9242), 1658-1661. Sinuff, T. M., & Schenker, Y. (2005). Palliative care: The evidence base for opioid therapy, artificial nutrition and hydration, and other interventions. The Journal of Pain, 6(2), 113-125. Marik, P., & Rivera, D. (2013). Does artificial hydration prolong life in the critically Ill? A systematic review of the literature. Chest Journal, 144(1), 336-345. Kelley, L. M., Mitchell, G. D., & Carlson, L. E. (2017). Oral care and feeding practices at the end of life in long-term care settings: A review of the literature. Journal of Gerontological Nursing, 43(1), 32-40. Ferrell, B. R., Coyle, N., & Paice, J. A. (2010). The Ferrell model of physical symptoms management. Journal of Palliative Care, 26(2), 115-123. Gabb, J. M., Morrison, R. S., & Clayton, J. M. (2019). Communication with families about artificial nutrition and hydration at the end of life. Current Opinion in Supportive and Palliative Care, 13(2), 118-123. Wright, K. J., & Eluchard, J. M. (2015). Shared decision-making at the end of life: A review of the role of communication. Nursing Ethics, 22(4), 444-459. Zimmermann, C. K., Knauf, H., Greer, T. L., & LeClerc, C. M. (2007). The role of hospice and palliative

The Intersection of Post-Traumatic Stress Disorder (PTSD) and End-of-Life Care: How Hospice Can HelpPTSD is a mental health condition that can develop after exposure to a traumatic event. While often associated with veterans, PTSD can affect anyone at any age, including the elderly. This population may have experienced war, accidents, violence, or other traumas throughout their lives, leaving them vulnerable to PTSD symptoms at the end-of-life stage. Hospice care, with its holistic approach, is uniquely positioned to support patients with both the physical and emotional challenges of PTSD alongside the dying process.PTSD in the Aging PopulationResearch suggests a potential overlap between PTSD and age-related cognitive decline [1]. Symptoms like flashbacks, nightmares, and hypervigilance can be particularly distressing for elderly patients already facing anxieties about mortality. Furthermore, social isolation, a common consequence of PTSD, can be exacerbated by the physical limitations often experienced in later life.How Hospice Can HelpHospice care offers a comprehensive support system that can significantly benefit patients with PTSD: Symptom Management: Hospice providers can address physical symptoms that may worsen PTSD, such as pain and insomnia, allowing for better emotional regulation. Psychological Support: Hospice teams often include social workers and chaplains who can provide individual and group therapy to help patients process trauma and develop coping mechanisms. Spiritual Care: Hospice chaplains can offer spiritual guidance and support, fostering a sense of peace and acceptance for patients struggling with trauma. Family Support: Hospice programs educate and support families on how to best care for their loved ones with PTSD, fostering open communication and reducing caregiver burden. PTSD can be a significant challenge at the end of life. Hospice care, with its focus on comprehensive symptom management, emotional support, and spiritual guidance, is uniquely equipped to address the complex needs of patients with PTSD. By partnering with hospice care, medical professionals can ensure their aging patients with PTSD receive the compassionate and holistic care they deserve in their final journey.References: [1] Schnurr, PP & McNally, RJ (2005). PTSD in late life: Theory, research, and treatment implications. The American Journal of Psychiatry, 162(2), 131-148. (https://academic.oup.com/edited-volume/34728/chapter/296497498)