At Legend Senior Living, we observe National Parkinson’s Month every April, and it’s a special month for us, because many residents face the challenges of living with Parkinson’s Disease. If you’re new as a caregiver, loved one or a patient yourself, the path ahead may seem obscure, complex and uncertain. We’re offering a primer on a few resources we’ve found essential for living at home with Parkinson’s and for providing care and support to a loved one with Parkinson’s.
Education – Know the Symptoms and Causes
The first important thing to know and to keep at the top of your mind and heart is that a very good quality of life may be maintained with Parkinson’s. The disease itself is not fatal but can cause serious complications. Next, never attempt a diagnosis on your own, as with any health-related symptoms. Rely on your doctor and seek immediate advice. With that in mind, here’s a general list of symptoms from the Parkinson’s Foundation:
Tremor (shaking) usually at rest, often in a characteristic "pill rolling" motion of the thumb and forefinger, among other forms.
Bradykinesia – sluggish movement
Limb rigidity
Gait and balance problems
Those are the more obvious "motor" or movement-related symptoms. Others less obvious: apathy, depression, constipation, sleep behavior disorders, loss of sense of smell and cognitive impairment.
Parkinson’s destroys dopamine-producing nerve cells – neurons – in the the brain stem. There’s no cure for Parkinson’s or recovering the nerve cells, but patients can respond very well to treatment. This is the most basic description of Parkinson’s and its effects. The wealth of research and advice from Parkinson’s patients would fill a good-sized library.
The Parkinson’s Foundation is one single source for comprehensive information on care, treatment, support, research – virtually everything Parkinson’s-related. Rely on their website at parkinson.org for a more detailed description of the disease and ways to manage it.
Authoritative resources for Parkinson’s patients and their families:
Mayo Clinic
Parkinson.org
American Brain Society
Care.com
Caregiver
Dealing with Parkinson’s is not a solo endeavor. Even the most self-reliant among us find that help from a spouse, loved ones and friends is essential for both the physical and mental challenges. Sometimes comfort and reassurance is as key as physical therapy. Professional caregivers bring the advantage of skilled, experienced care that can take some of the mystery and fear out of the symptoms. These are generally compassionate, committed people who are also good company. There is, however, no substitute for a friend or relative close to the patient being knowledgable and engaged in their treatment and therapy. This can be a time of growth, sharing the achievements and the struggles. There’s much support for family caregivers in the Parkinson’s support organizations and in the medical community. Care.com offers a very comprehensive guide for caregivers: Caring for Seniors with Parkinson’s Disease: Advice for families and caregivers.
Support Group
The support online or in live groups near you is usually free, confidential, thorough and gives a personal angle on care and self-help that you may not get from the medical community.
Parkinson’s Foundation Helpline specialists help people with PD, caregivers and healthcare providers navigate every aspect of Parkinson’s, offering emotional support, sharing current PD-related medical information and guiding callers to local resources. The Helpline is available at (800) 4PD-INFO (473-4636) or helpline@parkinson.org.
Patient Safety Kit The Aware in Care hospital kit protects, prepares and empowers people with Parkinson’s before, during and after a hospital visit. It contains tools and information to share with hospital staff during a planned or emergency hospital visit.
Parkinson’s Foundation Expert Briefings offer first-hand access to Parkinson’s research and care leaders. Each free, hour-long online seminar offers practical tips for managing PD from experts.
Podcasts Episodes on medication delivery methods, exercise, clinical trials and nutrition.
PD Conversations A forum for those going through similar experiences, with subgroups for newly diagnosed, symptoms, caregiving, español and others.
Bookstore: A large collection of Parkinson’s disease publications to order (many free) or download on PD symptoms, diagnosis, treatment, research and ways to live well.
PD Library provides a free search engine that lets you search broadly or narrow your search to specific topics and is certain to turn up a wealth of sources.
Physical Therapist or Trainer
You’ll want a specialist who knows the particulars of Parkinson’s Disease. Physical therapy can achieve remarkable results if your therapist has a comprehensive program for you. Johns Hopkins Medicine lists all of the following:
Amplitude Training – This is generally repeated exercise in which you make exaggerated, "big" physical movements, like high steps and arm swings. The goal is to counteract hyperkinesia, or the small shuffling movements common to PD. Similar "big" exercises may be done for the voice.
Reciprocal Training – Reciprocal means equal movement on both sides, like swinging your arms while you walk, which Parkinson’s can affect. A recumbent bicycle or elliptical machine may be useful, but without machine assistance, just walking with a focus on the arm swing is very effective. So are dancing and tai chi.
Balance and Gait – Let your therapist guide you to improve balance and confidence in walking. The therapist will recognize the issues and give you specific ways to compensate.
Stretching and Strength – Stiff hips, hamstrings and calves are common to Parkinson’s. Daily work with a trainer is recommended. Strength training is great for any senior to prevent muscle atrophy, but especially important for Parkinson’s patients.
Psychologist or Counselor
We’ve focused a lot on the physical aspects of Parkinson’s, but the need for treating the mind and spirit is equally compelling. Some of the psychological challenges more apparent to caregivers and loved ones also have biomedical origins: dementia, hallucination and disorientation. Others are typical feelings of depression and anxiety that are aggravated and exaggerated by living with Parkinson’s. Severe anxiety is common and may take the caregiver by surprise. A qualified therapist with a specialty in Parkinson’s will be invaluable to both caregiver and patient. Consult your primary physician first for an assessment and referral.
See: “Tips for Daily Living: 6 Psychotherapy and Counseling Myths, Debunked” on parkinson.org.
Purposefully Designed Living Space
Adapting your home for living with Parkinson’s can seem daunting if you try to do everything at once. It may be advisable to begin in the early stages and gradually modify your living space with features you know you’ll need eventually. Johns Hopkins provides a succinct list of essential adaptations, by no means exhaustive, but certainly bases you’ll want to cover:
Overall Safety – smoke and carbon monoxide detectors are essential on every floor. You should avoid space heaters and electric blankets, which can be fire hazards.
Communication Ease – Easy-to-reach phones with oversized buttons and a voice amplifier are smart additions, along with a list of emergency numbers.
Adaptive Products – Your therapist can recommend assistive living devices to help with simple tasks that may become progressively more challenging: pen grips, reach-and-grab devices, canes and a walker or wheelchair.
Safer Living Areas – Handrails along walls and stairs are essential. Furniture should be arranged to allow more freedom of movement and escape routes from enclosed areas.
Adapted Kitchen – Switch foods and beverages to smaller, easier-to-handle containers. Consider special easy-to-grip forks and spoons, a lowered countertop and generally wheelchair-level access.
Bed and Bath – Bedrails and grab bars on the bath are useful, and clear a path between the bed and bathroom, with a nighlight for both. Showers are better than tubs for getting in and out.
Residences Designed for Senior Living
This is where a purposefully designed residence relieves many seniors in need of assisted living of the hassle of converting the home to a more mobility-friendly place. A well-designed senior living residence will have wider halls without sharp corners to make for unobstructed navigation. Apartments will already be fully equipped with emergency call systems, and bathrooms, bedrooms and storage built for easy access on walkers.
Generally, senior health is the focus of an Assisted Living and Memory Care residence like those of Legend Senior Living. So, residents often needn’t hire separate caregivers or home nursing for the particular demands of Parkinson’s. Family members find it much easier to visit and dine with their loved ones. As purposefully designed as the residence is, so are the activities that promote movement and mental stimulation. Residents find a vibrant social life, which aids greatly in dealing with depression and anxiety. Emergency assistance is right on the other side of the door at all times. Many find that such a residence can address all the challenges of living Parkinson’s at once and that they can spend their days focusing on the high quality of life possible when body, mind and spirit are well cared for.
Navigating Hospital Stays and Rehabilitation for Parkinsons Patients. This article is part of The Parkinsons Care Compass: A Caregiving Roadmap Guiding Families Through Every Stage, an educational series presented by At Your Home Caregiving of Texas. We are honored to walk beside families, offering specialized in-home care solutions to support every step of the Parkinsons journey. Hospital stays are a stressful experience for any family, but for individuals living with Parkinsons disease, hospitalization poses unique challenges that can significantly impact recovery and long-term health. When a Parkinsons patient requires surgery, treatment for complications, or recovery after a fall, family caregivers must act as advocates, organizers, and partners in care. Being prepared and informed is the key to ensuring a safe hospital stay and a smooth transition back home.At Your Home Caregiving of Texas understands these complexities and stands ready to help families through every step of the journey, providing expert support for rehabilitation and home-based recovery.Unique Hospitalization Challenges for Parkinsons PatientsParkinsons disease complicates hospital care in several critical ways: Medication Management: Parkinsons medications must be administered on a strict schedule to manage symptoms effectively. Delays or missed doses can lead to severe motor symptoms, confusion, and even hospitalization complications. Mobility and Fall Risks: Hospital environments are unfamiliar, and Parkinsons patients face an increased risk of falls due to balance issues and muscle rigidity. Cognitive Changes: Hospitalization can sometimes trigger or worsen confusion, memory problems, or delirium, especially in older adults with Parkinsons. Communication Difficulties: Some patients experience soft speech (hypophonia) or facial masking, making it difficult to express needs clearly to hospital staff unfamiliar with Parkinsons care. Being aware of these risks allows families to take a proactive role during the hospital stay, minimizing complications and ensuring the best possible outcome.Preparing for a Hospital Stay: Advocacy and PlanningIf hospitalization is scheduled (for surgery or planned treatments), preparation can make a significant difference:1. Create a Hospital Parkinsons PlanPrepare a simple one-page document outlining your loved ones: Current medications and exact times for administration Mobility limitations and fall risk status Communication needs Cognitive changes or dementia symptoms Preferences for therapy, rehabilitation, and home care after discharge Provide this information to the hospital staff immediately upon admission.2. Bring Medications to the HospitalBring a full list and ideally the actual medications in their original containers. In some hospitals, families can administer Parkinsons medications if theres a risk of delays.3. Assign an AdvocateDesignate a family member or professional caregiver to be present as much as possible, especially during medication times, shift changes, and physician rounds. Having a consistent advocate can prevent critical mistakes and advocate for the patients specialized needs.The Importance of Medication TimingOne of the biggest risks for Parkinsons patients in the hospital is missed or mistimed medications. Parkinsons medications like carbidopa-levodopa must be administered exactly as prescribed, sometimes multiple times a day, to prevent a sudden worsening of motor and non-motor symptoms.Tips for ensuring proper medication administration: Clearly document the medication schedule and insist it be incorporated into the hospitals care orders. Politely but firmly remind nursing staff of the critical importance of on-time dosing. Advocate for medication self-administration if allowed by hospital policy. Watch for any substitutions generic or alternate medications can sometimes affect symptom control. Families should feel empowered to respectfully advocate for their loved ones medical needs. Delay in Parkinsons medication can lead to avoidable setbacks in recovery.Understanding Rehabilitation OptionsAfter hospitalization, rehabilitation is essential for helping Parkinsons patients regain strength, balance, and function. Depending on the situation, rehabilitation may occur in: Inpatient Rehabilitation Facilities (IRFs): Specialized centers offering intensive physical, occupational, and speech therapy. Skilled Nursing Facilities (SNFs): Short-term stays focused on medical monitoring and therapy. Home-Based Rehabilitation: Therapy provided at home, which may be the best option for patients with significant mobility challenges or those at high risk of hospital-acquired infections. At Your Home Caregiving of Texas partners with rehabilitation therapists to support continuity of care at home, ensuring that exercises, safety measures, and care plans are followed consistently.Key Rehabilitation Goals for Parkinsons Patients Improving strength and flexibility Reducing fall risk through balance and gait training Enhancing fine motor skills (handwriting, eating, dressing) Improving swallowing and speech if affected Maintaining independence as much as possible Early rehabilitation after hospitalization is crucial for Parkinsons patients. Without it, the risk of decline, injury, and readmission significantly increases.Transitioning Safely Back HomeThe transition from hospital to home is a vulnerable time. Planning ahead is critical to prevent setbacks.Steps for a Successful Transition: Arrange Home Care Services Early: Schedule in-home caregiving services to assist with mobility, medication reminders, and personal care. Conduct a Home Safety Evaluation: Adapt the home environment to minimize fall risks remove tripping hazards, install grab bars, ensure proper lighting, and use assistive devices. Coordinate Medication Management: Update prescriptions, confirm medication supply, and create a clear medication schedule. Schedule Follow-Up Appointments: Ensure post-discharge physician and therapy visits are scheduled before leaving the hospital. Implement a Rehabilitation Plan: Continue physical therapy and exercise routines at home, guided by professional caregivers and therapists. At Your Home Caregiving of Texas specializes in providing comprehensive transitional care for Parkinsons patients. Our caregivers work alongside families and healthcare professionals to ensure that recovery continues safely and effectively at home.How At Your Home Caregiving of Texas Supports RecoveryFamilies managing Parkinsons care dont have to do it alone. Our services are designed to ease the burden of post-hospitalization recovery by providing: Personalized Care Plans: Tailored to the individuals stage of Parkinsons and rehabilitation needs. Medication Reminders and Assistance: Helping maintain the critical medication schedule. Mobility Support: Assisting with walking, transferring, and exercises to rebuild strength and prevent falls. Nutrition and Meal Support: Preparing nutritious meals that support energy and healing. Companionship and Emotional Support: Reducing anxiety, confusion, and isolation during the recovery process. Coordination with Healthcare Providers: Keeping families informed and ensuring therapy recommendations are carried out at home. We work hard to create an environment where patients can heal comfortably, maintain dignity, and reduce the risk of hospital readmission.Final ThoughtsHospital stays are never easy, especially when Parkinsons disease adds another layer of complexity. But with the right preparation, strong advocacy, and a smooth rehabilitation plan, families can help their loved ones achieve the best possible recovery.At Your Home Caregiving of Texas stands beside you every step of the way from hospital bedside to a safe and healing home environment. Our specialized Parkinsons care services ensure that patients get the compassionate, expert support they need to regain strength, confidence, and independence.When its time to transition home after hospitalization, trust At Your Home Caregiving of Texas to be your partner in care and recovery. At Your Home Caregiving of Texas is proud to support families living with Parkinsons disease through compassionate, expert care. For more resources and personalized caregiving solutions, explore the full Parkinsons Care Compass series or contact us today at 469-830-8414. Together, we can create a safer, stronger path to recovery one step at a time. If someone you care about is facing the challenges of Parkinson's, know that you're not alonewe're always here to help.
From the bottom of my heart, thank you. Your support as a valued sponsor means more to me and our team at My Care Finders than words can truly express. This open house and ribbon-cutting celebration is such a special milestone not just for our business, but for the community were so honored to serve. And it wouldnt be possible without you. Your belief in what we do helping families navigate senior care with compassion, clarity, and purpose is what fuels us every day. Knowing that we have partners like you standing beside us makes all the difference. Were expecting a wonderful turnout, and we truly believe this will be a joyful, memorable event for everyone involved. Light bites, music, laughter, and connection a true celebration of community. Attached is our event flyer created by Jesse, the owner of My Sanctuary of Wellness. A HUGE shoutout to Jesse for your patience and constantly updating the flyer when needed Thank you Jesse!!!!! Please be sure to bring your own table and chairs. Wed love it if you could help us spread the word by sharing it on Facebook and other social media outlets, along with your friends, family, colleagues, and even your patients. The more, the merrier! Lets make this an unforgettable evening. Additionally, our assistance, Becca will be sending each of you our w-9, along with an invoice for the event. Thank you again for being such an important part of this journey. I cant wait to celebrate with you!With sincere gratitude,Heather Tetrault
April is National Parkinsons Awareness Montha time to elevate understanding around a condition that affects nearly one million Americans and countless families. Parkinsons disease is a progressive neurological disorder that impacts movement, coordination, and mood, often creating daily challenges for both those diagnosed and their care partners. At Premier Care Management of Florida, we meet those challenges head-on with a specialized service model known as the Parkinsons Disease Coach Approach.Introducing the Parkinsons Disease Coach Approach Our Parkinsons Disease Coach Approach is a personalized, client-centered model designed to empower individuals and families living with Parkinsons. Delivered by Certified Premier Care Managers, this program provides expert coaching, care coordination, and proactive planning to reduce crisis events and improve quality of lifeespecially during times of transition, like hospitalization, rehab stays, or returning home.A Holistic and Compassionate Support System What sets our approach apart is its focus on the whole person. We begin with a comprehensive Parkinsons assessment that includes motor and non-motor symptom evaluation, medication review, cognitive screening, and functional analysis. We then conduct a full home safety assessment, identifying fall risks, recommending adaptive equipment, and improving medication routines. Everything is tailored to each clients unique needs, values, and goals.Advocacy When It Matters Most Parkinsons medications must be taken on a precise schedule to remain effective, especially during hospitalization. Our care managers advocate directly with hospital staff to ensure proper medication timing and prevent the use of contraindicated drugs. We also coordinate smooth discharge plans, ensuring continuity of care whether clients are transitioning to rehab, returning home, or considering long-term care options.Emotional Support and Family Coaching Living with Parkinsons can bring changes in mood, behavior, and family dynamics. Thats why our program also includes emotional support for both clients and caregivers, coaching calls to guide decision-making, and education around topics like freezing episodes, fall prevention, and disease progression. Families gain clarity, confidence, and peace of mind knowing theyre not facing this alone.Connected, Collaborative, and Client-Driven We work closely with neurologists, primary care providers, therapists, and other specialists to make sure everyone involved in your care is on the same page. From managing appointments and insurance details to connecting families with trusted local resources, our team ensures that nothing slips through the cracks.Who Benefits from This Program? Our Parkinsons Disease Coach Approach is ideal for individuals newly diagnosed with Parkinsons, those transitioning between care settings, families overwhelmed by coordination responsibilities, or clients facing cognitive or behavioral changes in later stages of the disease. Its also a lifeline for individuals who dont have a local advocate during hospital stays or complex medical decisions. At Premier Care Management of Florida, we are honored to walk alongside Sarasotas seniors and families impacted by Parkinsons. With expert advocacy, education, and support, our Coach Approach helps clients preserve their independence and live with confidence at every stage.To learn more or schedule a free consultation, contact us today. Were here to be your partner in this journey. Serving Sarasota, Bradenton, Venice, and surrounding communities 941-400-2387 www.PremierCMFL.com
The Windsor of Venice in Venice, FL, offers a nurturing and empowering environment for residents in assisted living. The emphasis on balancing independence with support reflects a commitment to promoting residents' autonomy and well-being. With caregivers available to assist with personal care tasks and household chores, residents can enjoy peace of mind knowing that their needs are taken care of while still maintaining a sense of independence. The focus on removing maintenance tasks allows residents to focus on what truly matters to them, whether it's building friendships, exploring new opportunities, or engaging in activities they love. The thoughtful design of the residence encourages socialization and connection, providing plenty of spaces for residents to interact and participate in a variety of activities. The busy event and program calendar ensures that there's always something exciting happening, catering to residents' diverse interests and preferences. Dining at The Windsor of Venice appears to be a highlight, not only offering delicious meals but also creating opportunities for socializing and forging lasting memories. The Gold Leaf Dining program enhances the dining experience, providing comforting and seasonal culinary delights that add to the overall enjoyment of residents' lives. Overall, The Windsor of Venice seems to offer a supportive and enriching environment where residents can thrive, make meaningful connections, and enjoy a vibrant senior living experience. It's clear that the community prioritizes residents' well-being and happiness, fostering a sense of belonging and fulfillment.
The Windsor of Venice offers a comprehensive approach to senior living, with specialized services tailored to meet the needs of residents in both memory care and assisted living. The focus on personal preferences and abilities ensures that each resident receives individualized care and support.The range of amenities, including an onsite salon and spa, fitness center, and outdoor courtyard with lush landscaping, promotes both relaxation and socialization. These spaces are designed to enhance residents' quality of life and encourage engagement with their surroundings.Attention to detail in the design of the residence, such as natural lighting, low-pile carpeting, and intentional color selection, reflects a commitment to creating a safe and accessible environment for residents. By reducing the risk of falls and promoting confidence in movement, residents can enjoy greater independence and peace of mind.Overall, The Windsor of Venice strives to provide a welcoming and supportive home where residents can thrive and enjoy a fulfilling senior living experience.