Six Essentials for a Higher Quality of Life with Parkinson’s Disease
The Windsor of Venice
Dec 20, 2022
Florida - Sarasota, Bradenton & Charlotte Counties
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At Legend Senior Living, we observe National Parkinson’s Month every April, and it’s a special month for us, because many residents face the challenges of living with Parkinson’s Disease. If you’re new as a caregiver, loved one or a patient yourself, the path ahead may seem obscure, complex and uncertain. We’re offering a primer on a few resources we’ve found essential for living at home with Parkinson’s and for providing care and support to a loved one with Parkinson’s.
Education – Know the Symptoms and Causes
The first important thing to know and to keep at the top of your mind and heart is that a very good quality of life may be maintained with Parkinson’s. The disease itself is not fatal but can cause serious complications. Next, never attempt a diagnosis on your own, as with any health-related symptoms. Rely on your doctor and seek immediate advice. With that in mind, here’s a general list of symptoms from the Parkinson’s Foundation:
Tremor (shaking) usually at rest, often in a characteristic "pill rolling" motion of the thumb and forefinger, among other forms.
Bradykinesia – sluggish movement
Limb rigidity
Gait and balance problems
Those are the more obvious "motor" or movement-related symptoms. Others less obvious: apathy, depression, constipation, sleep behavior disorders, loss of sense of smell and cognitive impairment.
Parkinson’s destroys dopamine-producing nerve cells – neurons – in the the brain stem. There’s no cure for Parkinson’s or recovering the nerve cells, but patients can respond very well to treatment. This is the most basic description of Parkinson’s and its effects. The wealth of research and advice from Parkinson’s patients would fill a good-sized library.
The Parkinson’s Foundation is one single source for comprehensive information on care, treatment, support, research – virtually everything Parkinson’s-related. Rely on their website at parkinson.org for a more detailed description of the disease and ways to manage it.
Authoritative resources for Parkinson’s patients and their families:
Mayo Clinic
Parkinson.org
American Brain Society
Care.com
Caregiver
Dealing with Parkinson’s is not a solo endeavor. Even the most self-reliant among us find that help from a spouse, loved ones and friends is essential for both the physical and mental challenges. Sometimes comfort and reassurance is as key as physical therapy. Professional caregivers bring the advantage of skilled, experienced care that can take some of the mystery and fear out of the symptoms. These are generally compassionate, committed people who are also good company. There is, however, no substitute for a friend or relative close to the patient being knowledgable and engaged in their treatment and therapy. This can be a time of growth, sharing the achievements and the struggles. There’s much support for family caregivers in the Parkinson’s support organizations and in the medical community. Care.com offers a very comprehensive guide for caregivers: Caring for Seniors with Parkinson’s Disease: Advice for families and caregivers.
Support Group
The support online or in live groups near you is usually free, confidential, thorough and gives a personal angle on care and self-help that you may not get from the medical community.
Parkinson’s Foundation Helpline specialists help people with PD, caregivers and healthcare providers navigate every aspect of Parkinson’s, offering emotional support, sharing current PD-related medical information and guiding callers to local resources. The Helpline is available at (800) 4PD-INFO (473-4636) or helpline@parkinson.org.
Patient Safety Kit The Aware in Care hospital kit protects, prepares and empowers people with Parkinson’s before, during and after a hospital visit. It contains tools and information to share with hospital staff during a planned or emergency hospital visit.
Parkinson’s Foundation Expert Briefings offer first-hand access to Parkinson’s research and care leaders. Each free, hour-long online seminar offers practical tips for managing PD from experts.
Podcasts Episodes on medication delivery methods, exercise, clinical trials and nutrition.
PD Conversations A forum for those going through similar experiences, with subgroups for newly diagnosed, symptoms, caregiving, español and others.
Bookstore: A large collection of Parkinson’s disease publications to order (many free) or download on PD symptoms, diagnosis, treatment, research and ways to live well.
PD Library provides a free search engine that lets you search broadly or narrow your search to specific topics and is certain to turn up a wealth of sources.
Physical Therapist or Trainer
You’ll want a specialist who knows the particulars of Parkinson’s Disease. Physical therapy can achieve remarkable results if your therapist has a comprehensive program for you. Johns Hopkins Medicine lists all of the following:
Amplitude Training – This is generally repeated exercise in which you make exaggerated, "big" physical movements, like high steps and arm swings. The goal is to counteract hyperkinesia, or the small shuffling movements common to PD. Similar "big" exercises may be done for the voice.
Reciprocal Training – Reciprocal means equal movement on both sides, like swinging your arms while you walk, which Parkinson’s can affect. A recumbent bicycle or elliptical machine may be useful, but without machine assistance, just walking with a focus on the arm swing is very effective. So are dancing and tai chi.
Balance and Gait – Let your therapist guide you to improve balance and confidence in walking. The therapist will recognize the issues and give you specific ways to compensate.
Stretching and Strength – Stiff hips, hamstrings and calves are common to Parkinson’s. Daily work with a trainer is recommended. Strength training is great for any senior to prevent muscle atrophy, but especially important for Parkinson’s patients.
Psychologist or Counselor
We’ve focused a lot on the physical aspects of Parkinson’s, but the need for treating the mind and spirit is equally compelling. Some of the psychological challenges more apparent to caregivers and loved ones also have biomedical origins: dementia, hallucination and disorientation. Others are typical feelings of depression and anxiety that are aggravated and exaggerated by living with Parkinson’s. Severe anxiety is common and may take the caregiver by surprise. A qualified therapist with a specialty in Parkinson’s will be invaluable to both caregiver and patient. Consult your primary physician first for an assessment and referral.
See: “Tips for Daily Living: 6 Psychotherapy and Counseling Myths, Debunked” on parkinson.org.
Purposefully Designed Living Space
Adapting your home for living with Parkinson’s can seem daunting if you try to do everything at once. It may be advisable to begin in the early stages and gradually modify your living space with features you know you’ll need eventually. Johns Hopkins provides a succinct list of essential adaptations, by no means exhaustive, but certainly bases you’ll want to cover:
Overall Safety – smoke and carbon monoxide detectors are essential on every floor. You should avoid space heaters and electric blankets, which can be fire hazards.
Communication Ease – Easy-to-reach phones with oversized buttons and a voice amplifier are smart additions, along with a list of emergency numbers.
Adaptive Products – Your therapist can recommend assistive living devices to help with simple tasks that may become progressively more challenging: pen grips, reach-and-grab devices, canes and a walker or wheelchair.
Safer Living Areas – Handrails along walls and stairs are essential. Furniture should be arranged to allow more freedom of movement and escape routes from enclosed areas.
Adapted Kitchen – Switch foods and beverages to smaller, easier-to-handle containers. Consider special easy-to-grip forks and spoons, a lowered countertop and generally wheelchair-level access.
Bed and Bath – Bedrails and grab bars on the bath are useful, and clear a path between the bed and bathroom, with a nighlight for both. Showers are better than tubs for getting in and out.
Residences Designed for Senior Living
This is where a purposefully designed residence relieves many seniors in need of assisted living of the hassle of converting the home to a more mobility-friendly place. A well-designed senior living residence will have wider halls without sharp corners to make for unobstructed navigation. Apartments will already be fully equipped with emergency call systems, and bathrooms, bedrooms and storage built for easy access on walkers.
Generally, senior health is the focus of an Assisted Living and Memory Care residence like those of Legend Senior Living. So, residents often needn’t hire separate caregivers or home nursing for the particular demands of Parkinson’s. Family members find it much easier to visit and dine with their loved ones. As purposefully designed as the residence is, so are the activities that promote movement and mental stimulation. Residents find a vibrant social life, which aids greatly in dealing with depression and anxiety. Emergency assistance is right on the other side of the door at all times. Many find that such a residence can address all the challenges of living Parkinson’s at once and that they can spend their days focusing on the high quality of life possible when body, mind and spirit are well cared for.
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Managing Parkinson's Symptoms at Home
Managing Parkinsons Symptoms at HomeThis article is part of The Parkinsons Care Compass, an educational series from At Your Home Caregiving of Texas. Managing Parkinsons symptoms at home takes preparation, compassion, and the right support and we are honored to guide families every step of the way.Managing Parkinsons disease at home requires a careful balance of patience, knowledge, and proactive strategies. Parkinsons affects not only mobility but also speech, mood, memory, and overall daily living activities. As symptoms progress, the home environment and caregiving approach must evolve to meet new challenges and ensure that the individuals dignity, comfort, and independence are preserved.At Your Home Caregiving of Texas specializes in providing customized home caregiving solutions that empower families to manage Parkinsons symptoms effectively while preserving the quality of life for their loved ones.The Importance of a Symptom Management PlanParkinsons symptoms are highly individual no two people experience the disease in exactly the same way. Creating a personalized symptom management plan is essential to addressing the patients physical, cognitive, and emotional needs.A well-rounded plan typically addresses: Mobility and fall prevention Medication management Cognitive and emotional changes Speech and swallowing difficulties Nutrition and hydration Daily routines and activities for mental and physical engagement At Your Home Caregiving of Texas helps families design care plans that respond to their loved ones unique symptoms, preferences, and goals.Mobility Challenges and Fall PreventionMobility issues are among the most recognizable symptoms of Parkinsons disease. Slowed movements (bradykinesia), stiffness, and balance problems increase the risk of falls and injuries.Strategies for Safer Mobility: Home Modifications: Remove trip hazards (like loose rugs), install grab bars in bathrooms, and ensure adequate lighting throughout the home. Use of Assistive Devices: Canes, walkers, and specially designed furniture can aid in safe movement. Clear Walking Paths: Maintain wide, unobstructed paths through frequently used areas like bedrooms, bathrooms, and kitchens. Encouraging Movement Techniques: Techniques like "freezing" drills and cueing strategies (using rhythmic music or counting steps) can help when patients feel stuck or rigid. At Your Home Caregiving of Texas caregivers are trained in fall prevention and can assist clients safely with standing, walking, and transferring from beds or chairs.Medication Management at HomeStrict adherence to medication schedules is critical in Parkinsons care. Medications like levodopa/carbidopa must be taken precisely to control motor symptoms and prevent sudden worsening.Medication Management Tips: Use pill organizers clearly labelled with times of day. Set alarms or use medication reminder apps. Keep a written medication schedule visible for caregivers and family members. Monitor for side effects like dizziness, hallucinations, or sudden involuntary movements (dyskinesias). Our professional caregivers ensure that medication regimens are followed accurately, reducing the risk of complications and hospitalizations.Addressing Cognitive and Emotional ChangesCognitive changes such as memory loss, slowed thinking, and difficulty concentrating are common in Parkinsons, especially as the disease progresses. Emotional changes, including depression and anxiety, may also develop.Support Strategies: Cognitive Engagement: Activities like puzzles, reading, and conversation help keep the mind active. Routine and Structure: A consistent daily routine minimizes confusion and frustration. Patience and Understanding: Allow extra time for decision-making and avoid rushing tasks. Mental Health Support: Professional counselling and medication management can help address depression and anxiety. At Your Home Caregiving of Texas, we prioritize emotional support alongside physical care, creating a nurturing environment for both the patient and their family.Managing Speech and Swallowing DifficultiesSpeech difficulties (dysarthria) and swallowing problems (dysphagia) are common but manageable aspects of Parkinsons.Tips for Speech Challenges: Encourage slow, deliberate speech. Use voice exercises, sometimes under the guidance of a speech therapist. Practice reading aloud or singing to strengthen vocal muscles. Tips for Swallowing Challenges: Consult a speech-language pathologist for swallowing assessments. Offer smaller, more frequent meals. Use thickened liquids if needed to prevent choking. Monitor for signs of aspiration, such as coughing during meals. Our caregivers are trained to notice changes in speech and swallowing and can assist with appropriate interventions to maintain safety and nutrition.Nutrition, Hydration, and ExerciseProper nutrition and hydration are vital for maintaining strength, energy, and medication effectiveness. Constipation, a common non-motor symptom of Parkinsons, can often be alleviated through diet.Key Nutrition Strategies: Focus on fiber-rich foods (vegetables, fruits, whole grains). Maintain hydration offer water throughout the day. Time protein intake carefully, as large amounts of protein can interfere with medication absorption (consult with a physician or dietitian). Incorporate antioxidant-rich foods to support brain health. The Role of ExerciseExercise is one of the most powerful non-medication tools for managing Parkinsons symptoms. Regular movement improves: Balance and gait Flexibility and strength Mood and cognitive function Simple exercises like walking, gentle stretching, yoga, and chair exercises can make a significant difference. Specialized programs like Parkinsons-specific boxing or dance classes can also offer tremendous benefits.At Your Home Caregiving of Texas, our caregivers incorporate gentle movement and stretching routines into the daily care plan, promoting physical vitality and emotional well-being.Creating an Emotionally Supportive Home EnvironmentBeyond managing symptoms, creating a positive and emotionally supportive home environment is essential.Key Elements: Respect and Dignity: Involve the patient in decision-making whenever possible. Companionship: Regular conversation, laughter, and shared activities prevent isolation. Patience and Flexibility: Parkinsons symptoms can vary from day to day caregivers must adapt with grace and understanding. Empowerment: Focus on what the patient can do, not what they cant. Celebrating small victories boosts confidence. Families often find it overwhelming to balance these emotional needs with the physical demands of caregiving. Thats where trusted professional caregivers make a tremendous difference.How At Your Home Caregiving of Texas Supports In-Home Parkinsons CareOur specialized Parkinsons care services are designed to ease the burden on families while maximizing the comfort and independence of the individual living with the disease.Our Parkinsons Home Care Includes: Assistance with personal care, mobility, and safety Medication management and reminders Nutrition support and meal preparation Exercise encouragement and participation Cognitive stimulation activities Emotional support and companionship Home safety evaluations and fall prevention Coordination with therapists, physicians, and family members Every care plan is customized, compassionate, and flexible evolving as the patients needs change over time.Final ThoughtsManaging Parkinsons symptoms at home is both an art and a science. It requires deep understanding, careful planning, and a loving, patient approach. With the right tools, support systems, and caregiving partnerships, families can help their loved ones live meaningful, dignified lives at home for as long as possible.At Your Home Caregiving of Texas is honored to be a trusted partner in this journey. Our expertise in Parkinsons care, our compassionate caregivers, and our commitment to excellence ensure that families receive the support they need, every step of the way.If you are caring for a loved one with Parkinsons disease, reach out to us today. Together, we can build a personalized care plan that brings peace of mind, safety, and hope into your home. At Your Home Caregiving of Texas is committed to helping families manage Parkinsons symptoms at home with expertise, compassion, and customized support. To learn more about creating a safe, empowering home environment for your loved one, explore the Parkinsons Care Compass series or contact us today. Together, we can make every day safer, stronger, and filled with possibility.Contact us at 469-830-8414
Functional Transformation Mobile Rehab Expands Northward to Serve Seniors in Greater Tampa Bay
Compassionate, In-Home Therapy Services Now Reaching More of Floridas West CoastFunctional Transformation Mobile Rehab, Floridas trusted provider of mobile therapy services, is proud to announce the expansion of its service area north now reaching residents up to just below Tampa International Airport. This growth allows them to offer expert in-home therapy to seniors and adults in Ellenton, Palmetto, Ruskin, Sun City Center, Apollo Beach, Riverview, Gibsonton, and parts of Town N Country, bridging the gap between Sarasota and the greater Tampa area.As the senior population across Florida continues to rise, so does the demand for quality, convenient healthcare services that promote independence and support aging in place. Functional Transformation Mobile Rehab (FTMR) answers that call with certified, personalized therapy provided in the comfort of patients homes.Why This Expansion MattersMany seniors face mobility challenges, chronic conditions, or post-surgical limitations that make traveling to outpatient clinics difficult or even impossible. FTMR eliminates these barriers by bringing certified therapists directly to patients' homes, offering a range of services tailored to meet individual health goals.From Sarasota to Tampa, patients will benefit from:In-home Physical TherapyOccupational TherapyCertified Lymphedema TherapyWound Care by Wound Care Certified CliniciansDurable Medical Equipment (DME) Support and Compression GarmentsThe ability to receive care at home not only enhances recovery and comfort but also increases consistency and outcomessomething particularly critical for seniors managing long-term conditions.Medicare PatientsFunctional Transformation Mobile Rehab is proud to be a Medicare-approved provider, making expert therapy services more accessible for those on a fixed income. With Medicare covering medically necessary therapy services under Part B, eligible patients can receive care with little to no out-of-pocket cost, depending on their deductible and secondary insurance. This is a crucial benefit for seniors who need rehabilitation after hospital stays, surgeries, or ongoing management of conditions like arthritis, balance disorders, stroke, or lymphedema.For families and caregivers, knowing that their loved one can receive certified, licensed therapy services covered by Medicare offers both peace of mind and financial relief. Please keep in mind that Functional Transformation Mobile Rehab follows Medicare guidelines, but cannot guarantee coverage.Specialized Care for Lymphedema and DME FittingsOne of the standout specialties of FTMR is Complete Decongestive Therapy (CDT) for lymphedema. Patients dealing with swelling, heaviness, or limb discomfortoften due to cancer treatment, venous insufficiency, or other chronic conditionsbenefit from a comprehensive approach that includes manual lymphatic drainage, exercise, skin care, and compression therapy.FTMR will measure, order, and fit your custom compression garments. These garments help patients maintain results from therapy, reduce recurrence, and improve quality of life.FTMR offers access to high-quality brands including:mediJuzoJOBSTSigvarisPatients are guided through proper usage and educated on maintaining their garments, empowering them to manage their condition long-term.Meet the Team Behind the CareAt the heart of Functional Transformation Mobile Rehab is James Ferrara, OTR/L, CLT, WCC, a seasoned Occupational Therapist and Certified Lymphedema Therapist with over two decades of experience in both outpatient therapy and home health settings. He is also Wound Care Certified, allowing him to serve patients with chronic or complex wounds safely and effectively.James and the FTMR team approach every case with compassion, clinical excellence, and a deep understanding of the unique needs of each patient. Therapy sessions are customized, one-on-one, and built on trustfar from the rushed or impersonal care that some may experience in traditional settings.With a patient-first philosophy and a mission rooted in helping people regain function, mobility, and confidence, FTMR is redefining what healthcare at home can look like.Serving With Integrity and CompassionFunctional Transformation Mobile Rehab operates with one goal in mind: to bring expert care to those who need it, without sacrificing comfort, dignity, or independence. Their expansion into the greater Tampa area means more seniors can now experience therapy that truly meets them where they arein every sense.Whether you live in Apollo Beach, Sun City Center, Riverview, Gibsonton, or any area in between Sarasota and the Tampa Airport, FTMR is now your local resource for in-home rehabilitation care.Schedule an Appointment or Make a Referral TodayIf you or someone you love could benefit from therapy at home, or if youre a provider looking to refer a patient to a trusted therapy partner, Functional Transformation Mobile Rehab is ready to help.Learn more or refer online at:https://suncoastftmrehab.com/in-home-therapy-expansion-tampa-bay/Experience the difference of Functional Transformation Mobile Rehabwhere healing happens at home.
Navigating Parkinsons and Alzheimers Support in Utah: A Guide for Families and Caregivers
When a loved one is diagnosed with Parkinsons disease or Alzheimers, it can feel overwhelming. These progressive neurological conditions impact not only the individual but also their families and caregivers. Accessing the right support early on can make a significant difference in managing symptoms, maintaining independence, and improving quality of life. For residents of Utah, there are a range of Parkinsons and Alzheimers support resources availabletailored to meet the unique needs of those living in the state.Understanding the Importance of Support ServicesSupport for individuals with Parkinsons or Alzheimers spans far beyond medical treatment. It includes emotional support, educational resources, caregiver training, memory care, and access to specialized programs. Early planning allows families to make informed decisions and adapt to the evolving challenges of these diseases.In Utah, families benefit from a combination of statewide programs, nonprofit organizations, and local community services that aim to assist with both physical and emotional care needs. Key Types of Parkinsons and Alzheimers Support in Utah1. Caregiver Support Groups and CounselingCaregivers often face emotional fatigue, burnout, and isolation. Support groupsboth in-person and virtualoffer a safe space to share experiences, learn from others, and gain practical advice. Many Utah-based organizations also offer one-on-one counseling and educational seminars to help families manage day-to-day care.2. Memory Care and Cognitive TherapyMemory care services are specifically designed for individuals in the later stages of Alzheimers and Parkinsons with dementia. These services are typically provided in a secure residential setting with trained staff who specialize in cognitive health. In Utah, families can explore a range of memory care facilities tailored to various stages of cognitive decline.3. In-Home Support and Respite CareFor those who prefer to age at home, Utah offers in-home support services such as personal care aides, medication management, and home safety evaluations. Respite care is also available to give family caregivers a much-needed break while ensuring their loved one is still receiving high-quality care.4. Therapies and Wellness ProgramsOccupational, physical, and speech therapies can help manage symptoms of Parkinsons and Alzheimers. Utah is home to several wellness centers and rehabilitation facilities that offer tailored therapy programs to maintain mobility and communication skills. Finding Parkinsons and Alzheimers Support in UtahOne of the most effective ways to navigate the landscape of senior resources is through trusted local directories and platforms. Seniors Blue Book provides a comprehensive listing of senior resources in Utah, including specialized support services for Parkinsons and Alzheimers care. Whether youre looking for caregiver assistance, memory care options, or medical support programs, you can find vetted and updated listings all in one place.To specifically view resources related to Alzheimers and Parkinsons, you can explore the Parkinsons / Alzheimers Support section for Utah. Tips for Choosing the Right Support ServiceCheck qualifications: Ensure staff are trained in dementia and Parkinsons care.Consider location: Find services that are accessible to your home or community.Ask about personalization: Good programs offer individualized care plans.Review feedback: Look at family reviews or testimonials to assess the quality of care. Final Thoughts Navigating the challenges of Parkinsons and Alzheimers can be daunting, but you dont have to do it alone. Utah offers a wealth of support services that are compassionate, specialized, and dedicated to preserving the dignity and comfort of those affected. By taking proactive steps and using trusted local resources, families can feel empowered to face these conditions with confidence and care.
Local Services By This Author
The Windsor of Venice
Assisted Living 1600 Center Rd., Venice, Florida, 34292The Windsor of Venice in Venice, FL, offers a nurturing and empowering environment for residents in assisted living. The emphasis on balancing independence with support reflects a commitment to promoting residents' autonomy and well-being. With caregivers available to assist with personal care tasks and household chores, residents can enjoy peace of mind knowing that their needs are taken care of while still maintaining a sense of independence. The focus on removing maintenance tasks allows residents to focus on what truly matters to them, whether it's building friendships, exploring new opportunities, or engaging in activities they love. The thoughtful design of the residence encourages socialization and connection, providing plenty of spaces for residents to interact and participate in a variety of activities. The busy event and program calendar ensures that there's always something exciting happening, catering to residents' diverse interests and preferences. Dining at The Windsor of Venice appears to be a highlight, not only offering delicious meals but also creating opportunities for socializing and forging lasting memories. The Gold Leaf Dining program enhances the dining experience, providing comforting and seasonal culinary delights that add to the overall enjoyment of residents' lives. Overall, The Windsor of Venice seems to offer a supportive and enriching environment where residents can thrive, make meaningful connections, and enjoy a vibrant senior living experience. It's clear that the community prioritizes residents' well-being and happiness, fostering a sense of belonging and fulfillment.
The Windsor of Venice
Memory Care 1600 Center Rd., Venice, Florida, 34292The Windsor of Venice offers a comprehensive approach to senior living, with specialized services tailored to meet the needs of residents in both memory care and assisted living. The focus on personal preferences and abilities ensures that each resident receives individualized care and support.The range of amenities, including an onsite salon and spa, fitness center, and outdoor courtyard with lush landscaping, promotes both relaxation and socialization. These spaces are designed to enhance residents' quality of life and encourage engagement with their surroundings.Attention to detail in the design of the residence, such as natural lighting, low-pile carpeting, and intentional color selection, reflects a commitment to creating a safe and accessible environment for residents. By reducing the risk of falls and promoting confidence in movement, residents can enjoy greater independence and peace of mind.Overall, The Windsor of Venice strives to provide a welcoming and supportive home where residents can thrive and enjoy a fulfilling senior living experience.