The 7 Stages of Lewy Body Dementia Explained

Author

ComForCare Home Care - Bonita Springs

Posted on

Nov 05, 2024

Book/Edition

Florida - Southwest

share-this
Share This

Lewy Body Dementia (LBD) is a challenging and often confusing condition. LBD affects many families—as many as 1.4 million people in the United States are living with this condition. Though it is the third leading form of dementia, it isn’t as well-known as Alzheimer’s disease, leaving many family members wondering how the disease progresses, what to expect, and how to provide dementia care for their loved ones.

At ComForCare, we understand how tough it can be to navigate this diagnosis. However, knowing what to expect—and the resources available to you—can help you provide better care and support for your loved one. Here, we break down the 7 stages of Lewy Body Dementia, explaining what happens at each stage and how you can help.

What is Lewy Body Dementia?

Lewy Body Dementia (LBD) is a progressive neurological disorder characterized by abnormal deposits of a protein called alpha-synuclein in the brain. These deposits, known as Lewy bodies, affect brain regions involved in thinking, movement, behavior, and mood. 

LBD can cause a range of symptoms, including a decline in cognitive abilities, visual hallucinations, fluctuating attention, and Parkinson's-like motor issues such as tremors and stiffness. It's the third most common type of dementia after Alzheimer's disease and vascular dementia, and it requires comprehensive care and support due to its complex and varied symptoms.

Navigating the Stages of Dementia with Lewy Bodies

While this seven-stage system isn't universally agreed upon, it’s a common way to think about the progression of the disease. It's important to remember that these stages are not always clear-cut, and the progression can vary from person to person.

Stage 1: No Noticeable Symptoms

In the early stage, there are no noticeable symptoms. Your loved one might not show any signs of memory loss, confusion, or other typical symptoms of dementia. During this stage, Lewy bodies (abnormal protein deposits) are beginning to form in the brain, but they haven't started affecting cognitive function yet.

How You Can Help:

  • Stay informed about the condition and be prepared for changes that may come.
  • Maintain regular medical check-ups to catch any early signs.

Stage 2: Very Mild Symptoms

In stage two, symptoms are still very mild. You might notice slight changes in thinking or mood, but nothing that significantly disrupts daily life. Your loved one might have minor memory lapses or difficulty concentrating.

How You Can Help:

  • Encourage mental and physical activities to keep the brain engaged.
  • Create a routine to help with concentration and memory.

What are the first signs of Lewy body dementia?

Mild confusion, memory loss, and new problems with attention are often the first symptoms of Lewy body dementia. However, these can also be signs of mild cognitive decline or other forms of dementia, such as Alzheimer’s disease. In some cases, these symptoms can even be side effects of certain medications.

It’s important to keep an open line of communication with your loved one’s healthcare provider to establish a baseline, monitor symptoms, and obtain an accurate diagnosis.

Stage 3: Mild Symptoms

By stage three, symptoms become more noticeable. Your loved one might have more frequent memory lapses, trouble with problem-solving, or difficulty finding the right words. They might also start showing signs of confusion or slight changes in their personality.

How You Can Help:

  • Offer gentle reminders for daily tasks and help with planning activities.
  • Be patient and understanding as they struggle with finding words or remembering things.
  • Start planning for long-term care options, such as in-home dementia care.

Stage 4: Moderate Symptoms

Stage four marks a significant change. Cognitive decline becomes more evident, and your loved one might need help with daily activities like cooking, shopping, or managing finances. They might also experience increased confusion, especially in unfamiliar environments.

How You Can Help:

  • Assist with daily tasks and maintain a safe, supportive environment.
  • Begin arranging dementia home care services, if you haven’t already.
  • Use visual aids and lists to help with memory and organization.

Stage 5: Moderately Severe Symptoms

At this stage, your loved one will need more assistance with daily living. They might have significant memory problems, difficulty recognizing friends and family, and trouble with basic self-care like dressing and bathing.

How You Can Help:

  • Provide hands-on assistance with daily activities or rely on the aid of a DementiaWise®-trained home caregiver.
  • Ensure a calm, structured environment to reduce confusion and anxiety.
  • Encourage social interaction to maintain emotional well-being.

Stage 6: Severe Symptoms

In stage six, symptoms become severe as Lewy bodies build up in brain cells. Your loved one might experience major personality changes, delusions, or hallucinations. They will need extensive help with daily activities and might have trouble communicating.

How You Can Help:

  • Offer or arrange constant supervision and support.
  • Create a safe, calming environment to help manage delusions or hallucinations.
  • Use simple, clear communication to reduce frustration.

Stage 7: Very Severe Symptoms

The final stage is the most challenging. Your loved one will likely lose the ability to speak, walk, or respond to their environment. They will need round-the-clock care and assistance with all daily activities.

How You Can Help:

  • Make sure your loved one receives compassionate, around-the-clock care, ensuring comfort, dignity, and quality of life.
  • Work closely with care professionals to manage symptoms and provide the best possible care.
  • Focus on maintaining a calm, soothing environment to ease anxiety and discomfort.

Supporting Your Loved One

Caring for someone with Lewy Body Dementia can be overwhelming, but you're not alone. At ComForCare, we offer in-home dementia care services tailored to your loved one's needs at each stage of LBD. Our professional caregivers are trained to provide compassionate, effective care that supports both the individual and their family.

Tips for Caregivers:

  • Educate Yourself: Understanding Lewy Body Dementia helps you anticipate changes and respond effectively.
  • Build a Support Network: Connect with support groups, friends, and professionals who can offer advice and emotional support.
  • Prioritize Self-Care: Caring for a loved one is demanding. Make sure to take time for yourself to recharge and stay healthy.

Start Planning Your Loved One’s Care Journey Today

Lewy Body Dementia is a journey, but with the right information and support, you can provide the best care possible for your loved one. Remember, ComForCare is here to help every step of the way. Reach out to us for more information about our in-home care services and how we can assist you and your family.

Choose ComForCare: Our DementiaWise®-Certified Caregivers Are Standing By

ComForCare is leading the nation in dementia care services at home. Our DementiaWise® training program equips caregivers with the tools, training, and resources they need to help seniors live their best lives at every stage of their journey with dementia. To learn more about our services and how they can play a role in your loved one’s care, contact your nearest location or call our helpline today!

Other Articles You May Like

A bitter pill: national pharmacy closings hinder access, increase risk

 Major pharmacy chains have closed hundreds of locations in the past year, making pharmacy services harder to find in some areas and, where such services are no longer available, creating pharmacy desserts. Without a nearby pharmacy, patients may have to travel further and navigate transportation challenges to obtain critical medications. Access to a convenient pharmacy is vital because adults are taking more prescription medications every year; up to 60% of U.S. adults reported they took at least one prescription drugs. Polypharmacy, where a patient is taking at least 5 medications, is a major risk factor for adverse health outcomes, especially for patients over the age of 65. Despite representing only 13% of the population, older patients consume approximately 30% of prescription medications and 40% of over-the-counter medications. Without access to a convenient pharmacy, patients may struggle to obtain life-saving medications, resulting in more cases of unmanaged chronic conditions, extended illness, and sometimes severe health complications. Even delayed access to medications can have serious health consequences, including higher medical costs and health complications. Often, when a service is no longer available, that is when we recognize how truly important they are.  Pharmacists do more than just dispense medications. They help patients find affordable therapies and provide preventive care services including vaccines and health screenings. Pharmacies also often offer medical supplies and over-the-counter drugs. As people take more medications, pharmacists are at the forefront of medication reconciliation, which includes reviewing all the medications a patient is taking to avoid errors such as omissions, duplications, dosing errors or drug interactions. Medication therapy management is also a vital service, offering patients education and consultation on their prescriptions, over-the-counter medications, vitamins and supplements. This helps patients better understand and manage their health. Federally Qualified Health Centers (FQHCs) like Healthcare Network in Collier County provide additional benefits through their integrated pharmacy services.  Healthcare Network has two on-site pharmacies: Nichols Community Health Center in Golden Gate and Marion E. Fether in Immokalee. These locations allow patients to see a provider and fill their prescriptions in the same site. If a prescription is too costly or not covered by insurance, the provider can prescribe an alternative immediately, and refills can be expedited with providers nearby. For those with complicated medical regimens or multiple medications, pharmacists can organize pills in blister packs to help a patient track what to take and when. Healthcare Networks pharmacies provide mail-order and prescription delivery services, with support available for patients who speak languages other than English. Our multilingual pharmacy staff and language interpretation services ensure clear communication, allowing us to stay closely connected with patients, offering guidance, education, and encouragement as part of their care team.  Rising medication costs are another significant issue. According to the American Hospital Association, drug prices for nearly 2,000 medications rose between 2022 and 2023 at a rate exceeding inflation, with an average increase of 15.2%. These high costs are particularly burdensome for low-income, uninsured, and underinsured individuals, with estimates indicating that as many as 44% of patients forgo filling prescriptions due to financial constraints. As an FQHC, Healthcare Network can offer some medications at a reduced price through the 340B Drug Pricing Program, which requires pharmaceutical manufacturers to sell medications at a lower price to FQHCs. In addition, our pharmacies accept most major insurance plans, including Medicare and Medicaid, and can help patients apply for available discounts from pharmacy assistance programs.  Providing pharmacy services in areas of Collier County that already lack primary care doctors is one of the many ways that Healthcare Network is increasing access to essential medical care for the community. About the AuthorDr. Martine Woolley leads pharmacy operations at Healthcare Network, including the Federal 340B discount program, to ensure accessible, high-quality care for patients and families. Her expertise in pharmacy management and commitment to compliance drive excellence and innovation across all services. For more information about Healthcare Networks pharmacy services, visit HealthcareSWFL.org.  By Martine Woolley, PharmD, MS, MBA,  Vice President of Pharmacy      

Fun Day Trips for Seniors Near Bonita Springs

Bonita Springs is a gem for seniors seeking delightful day trips filled with adventure, relaxation, and cultural enrichment. With a blend of scenic landscapes, historical charm, and leisurely activities, theres something for everyone to enjoy. From serene beaches to scenic parks, these outings offer a chance to immerse yourself in the areas natural surroundings.Whether youre interested in exploring local history or simply enjoying a peaceful day in nature, Bonita Springs offers a variety of experiences that cater to your interests and mobility needs.Heres a guide to some of the best day trips for seniors in and around Bonita Springs, perfect for making the most of your golden years.1. Explore Natures BeautyDiscover the stunning natural landscapes near Bonita Springs:Lovers Key State ParkRenowned for its tranquil beauty, Lovers Key State Park is a paradise for nature enthusiasts. Seniors can enjoy peaceful walks along flat, well-kept trails, making it an ideal spot for bird-watching, relaxing by the water or having a picnic. The park also provides beach wheelchairs, ensuring accessibility for all visitors.Corkscrew Swamp SanctuaryImmerse yourself in a preserved swamp ecosystem. The elevated boardwalk makes it easy to navigate, providing a secure and enjoyable way to explore this natural wonder. Along the trail, you might spot alligators, turtles, and an array of bird species, making it a truly unique experience.2. Relax on the BeachesUnwind at the beautiful beaches near Bonita Springs:Bonita Beach ParkA favorite among locals and visitors alike, Bonita Beach Park offers seniors a serene spot to unwind. With ample facilities, including accessible restrooms and picnic tables, its a great place to enjoy the ocean breeze, have a leisurely meal or take a gentle stroll along the shore.Barefoot Beach PreserveBarefoot Beach Preserve provides a serene escape from the busy pace of life. Its accessible pathways, shaded picnic areas, and breathtaking sunsets make it a perfect spot for seniors to relax and see what Southwest Florida has to offer.3. Discover Local CultureEnjoy the vibrant cultural scene just a short drive from Bonita Springs:Naples Botanical GardenA short drive from Bonita Springs, the Naples Botanical Garden delights the senses. The garden is thoughtfully designed with wide, shaded paths and plenty of seating, making it easy for seniors to explore. Enjoy the beautifully themed gardens, seasonal exhibits, and educational programs that provide a deeper appreciation of the natural world.The Baker MuseumArt enthusiasts will find plenty of inspiration at The Baker Museum in Naples. Featuring a range of exhibitions from classic to contemporary, this museum is senior-friendly with its accessible layout and welcoming atmosphere. Its an excellent spot to spend a culturally enriching afternoon.ArtisNaplesBeyond The Baker Museum, ArtisNaples hosts a variety of live performances, including symphonies, theater, and ballet. Seniors who enjoy the arts will appreciate the rich cultural experiences offered here, making it a must-visit for those looking to enrich their lives with music and theater.4. Visit Historic TownsStep back in time and immerse yourself in the history and charm of nearby towns:Everglades CityVenture to Everglades City for a glimpse into Floridas rich history. This quaint town offers a laid-back atmosphere, with opportunities to visit local museums, enjoy waterfront dining, and learn about the areas unique heritage. Its a perfect destination for a relaxed yet educational outing.MatlachaStep into the vibrant world of Matlacha, a colorful fishing village known for its eclectic art galleries, charming boutiques, and cozy cafes. The towns laid-back vibe and welcoming atmosphere make it a perfect destination for seniors to explore, shop, and enjoy dining experiences.Fort Myers River DistrictExperience the charm of the historic Fort Myers River District. With its brick-lined streets, unique shops, and diverse dining options, this area is a lively yet accessible destination. Seniors will enjoy the array of cultural events, live music, and the opportunity to explore at their own pace.5. Enjoy Leisurely ActivitiesTake a break from the everyday hustle and indulge in some leisurely activities around Bonita Springs:Tin CityTin City in Naples offers a nostalgic waterfront shopping experience. Stroll through unique shops, indulge in delicious food, and take in the scenic views. The relaxed atmosphere and easy-to-navigate layout make it a favorite for seniors looking for a leisurely day out.Koreshan State ParkDiscover Koreshan State Park, where you can explore easy walking trails and historic buildings. The park offers picnic spots for a relaxing outdoor meal, making it an ideal destination for a day of leisurely exploration and enjoyment.Wonder GardensWonder Gardens in Bonita Springs is a must-visit destination for nature enthusiasts. The garden features rehabilitated and non-releasable birds and reptiles, offering visitors a unique opportunity to observe and learn about these creatures up close. With its educational exhibits, Wonder Gardens provides an engaging experience for guests to explore wildlife conservation efforts and gain a deeper understanding of the natural world.Make the Most of Your Day Trips With The Terraces at Bonita SpringsAt The Terraces at Bonita Springs, our residents enjoy the freedom to explore these wonderful destinations, making every day an opportunity for adventure and relaxation. Our community promotes an active lifestyle, encouraging residents to engage with their surroundings and participate in exciting outings.With organized group excursions and convenient transportation options, you can easily join friends for a day of exploration or relaxation, whether  a trip to a scenic nature park, a visit to a charming local town or a cultural experience at a nearby museum.Our supportive environment allows you to maintain  independence while enriching your life with new experiences. With a calendar full of activities and outings tailored to all interests, theres always something happening at The Terraces.Contact us today at 239-208-6963 to learn how The Terraces at Bonita Springs can enhance your lifestyle, support your independence, and open doors to exciting new adventures in and around Bonita Springs.

Who We Serve

We provide housing for a wide range of individuals, ensuring secure and supportive living environments for those in need. Our goal is to offer comprehensive support, promoting stability, dignity, and community involvement for every person we serve.Displaced Adults We assist people who are experiencing displacement due to life transitions, natural disasters, or economic challenges. By offering secure housing options, we aim to provide stability and emotional support as they adjust to new circumstances in their lives. Our programs include personalized case management to help individuals regain self-sufficiency.Veterans We honor those who have served our country by offering targeted housing assistance for veterans. Our services support their honorable and respectful transition back to civilian life, ensuring they have the resources needed for long-term stability. We collaborate with veteran organizations to provide additional services such as counseling, job training, and access to healthcare.Senior Citizens Our housing options for seniors are designed to support their independence and well-being. We create environments that prioritize safety, comfort, and accessibility tailored to their unique needs. Our communities encourage social interaction, wellness programs, and access to medical services to ensure a high quality of life.(SSI/SSDI) Income Recipients We provide secure housing solutions for individuals receiving SSI/SSDI income. Our goal is to guarantee them stability and a secure living arrangement based on their guaranteed income. We offer budget counseling and community support programs to ensure financial wellness and social inclusion.Families in Need We extend our services to families facing housing challenges. Our family housing programs provide safe and nurturing environments for parents and children. We focus on holistic support, including access to educational resources, childcare services, and community-building activities to empower families towards self-sufficiency.Persons with Disabilities We offer specialized housing options for individuals with disabilities, ensuring accessibility and necessary support services. Our goal is to create inclusive environments that promote independence while ensuring necessary care and accommodations are readily available.Make an Inquiry! If you or someone you know needs housing assistance, contact us today to learn more about our services and how we can help. Our team is ready to assist with compassionate and personalized support, ensuring every individual has the opportunity for a stable and dignified living environment.

Local Services By This Author

ComForCare Home Care- Bonita Springs

Non-Medical 9990 Coconut Road, Bonita Springs, Florida, 34135

ComForCare is a premier provider of in-home care with locations in U.S. and Canada. Our personalized care plans and compassionate caregivers help seniors live independently in their own home and continue to do all the things they love.We serve in any setting you call home, whether it is a private home, independent or assisted living community or skilled care facility.ComForCare Home Care- Bonita Springs provides in-home care services including Alzheimer's disease and dementia care, personal care, respite care for families, transition of care after a hospital or rehabilitation stay, chronic disease management, transportation, medication reminders, light housekeeping & laundry, shopping and errands, safety supervision, companionship and much more. Our services are available 24 hours a day, 365 days a year from compassionate caregivers who are experienced, trained, bonded and insured.The ComForCare mission is to improve the quality of life and level of independence for every client and family receiving our services.Preserve Quality of Life with Home Care ServiceComForCare offers a variety of in-home care services to fit the needs of you and your family. It is our goal to provide companionship and help with everyday activities to ensure your elderly loved ones can live safely and securely. Whether your loved ones health concerns are due to illness, injury, or aging, our personal home care packages and flexible scheduling allow your loved one to maintain a sense of freedom, dignity, and connection to friends and family. Seniors who choose to stay at home are often happier, healthier, and recover faster from illness or injury than those living in assisted living facilities. ComForCare is independent living with a little extra help! Experience True CaregivingOur health care professionals are not only highly qualified, but they are also highly compassionate and love what they do. Caregivers who meet our high standards and strict guidelines are screened for empathy, trained in senior care, and matched with clients based on their experience, skills, and compatibility. This unique approach to elder care provides the foundation for a trusted relationship between your loved one and the caregiver, and a long-lasting partnership in care between you and ComForCare. Dedicated Personal Care Tailored to YOUFrom certified nursing assistants to respite care to companionship, our care providers give you just what you need to live your best life. As an alternative to rehab outpatient centers and nursing homes, our home healthcare agency makes daily living easier. Team members partner with family caregivers and patients to develop a custom-tailored care plan. ComForCare's personal care services include non-medical care like grocery shopping, bathing assistance, medication reminders, transportation to doctors appointments, and other companion care. We can also help prepare meals and provide support with household chores on an as-needed basis, as well as incorporate specialized memory care for those with dementia or Alzheimers disease.

ComForCare Home Care- Bonita Springs

Home Health 9990 Coconut Road, Bonita Springs, Florida, 34135

ComForCare is a premier provider of in-home care with locations in U.S. and Canada. Our personalized care plans and compassionate caregivers help seniors live independently in their own home and continue to do all the things they love.We serve in any setting you call home, whether it is a private home, independent or assisted living community or skilled care facility.ComForCare Home Care- Bonita Springs provides in-home care services including Alzheimer's disease and dementia care, personal care, respite care for families, transition of care after a hospital or rehabilitation stay, chronic disease management, transportation, medication reminders, light housekeeping & laundry, shopping and errands, safety supervision, companionship and much more. Our services are available 24 hours a day, 365 days a year from compassionate caregivers who are experienced, trained, bonded and insured.The ComForCare mission is to improve the quality of life and level of independence for every client and family receiving our services.Preserve Quality of Life with Home Care ServiceComForCare offers a variety of in-home care services to fit the needs of you and your family. It is our goal to provide companionship and help with everyday activities to ensure your elderly loved ones can live safely and securely. Whether your loved ones health concerns are due to illness, injury, or aging, our personal home care packages and flexible scheduling allow your loved one to maintain a sense of freedom, dignity, and connection to friends and family. Seniors who choose to stay at home are often happier, healthier, and recover faster from illness or injury than those living in assisted living facilities. ComForCare is independent living with a little extra help! Experience True CaregivingOur health care professionals are not only highly qualified, but they are also highly compassionate and love what they do. Caregivers who meet our high standards and strict guidelines are screened for empathy, trained in senior care, and matched with clients based on their experience, skills, and compatibility. This unique approach to elder care provides the foundation for a trusted relationship between your loved one and the caregiver, and a long-lasting partnership in care between you and ComForCare. Dedicated Personal Care Tailored to YOUFrom certified nursing assistants to respite care to companionship, our care providers give you just what you need to live your best life. As an alternative to rehab outpatient centers and nursing homes, our home healthcare agency makes daily living easier. Team members partner with family caregivers and patients to develop a custom-tailored care plan. ComForCare's personal care services include non-medical care like grocery shopping, bathing assistance, medication reminders, transportation to doctors appointments, and other companion care. We can also help prepare meals and provide support with household chores on an as-needed basis, as well as incorporate specialized memory care for those with dementia or Alzheimers disease.