The Caregiver’s Guide to Hospice and Palliative Care at Home

For women, eldercare should not mean sacrificing your careerMany women, especially those in mid-career, find themselves facing the difficult decision of whether to leave the workforce to care for aging parents. The demands of eldercare can pile up with little warning or predictability and quickly become overwhelming. The "easiest" solution for many women in this position may seem like stepping away from their professional lives altogether.However, leaving the workforce can have long-term, unseen consequencesfinancially, emotionally, and professionally. Before women make this decision, we want to bring to light to some of the costs of stepping away, as well as share options that are available to help women care for aging parents or loved ones without sacrificing their career.The elephant in the room - what about men?It's a systemic problem that the large majority of caregiving responsibilities fall on women. We believe fully this should not be the case - and will continue to advocate for a future where men and women are expected to share, and do share, these responsibilities more equally. That said, this article is going to focus on the impact of eldercare on women, and options available, because the data shows the women are the ones who are much more likely to pay the price of eldercare.Female caregivers are more likely than males to ask for a less demanding job, take unpaid leave, or give up work entirely to support caregivingWomen lose an estimated $325K over their lifetime due to caregivingThe Unseen Costs of Leaving the WorkforceWomen who exit the workforce early face immediate income loss, diminished retirement savings, and a reduction in Social Security benefits. AARP reports that caregivers can expect to spend an average of $7K annually on out-of-pocket expenses.Additionally, exiting the workforce comes with professional setbacks that may be hard to recover from. Studies show that women who take time off for caregiving often find it difficult to re-enter their fields, and when they do, they may face lower wages, fewer opportunities for advancement, or the need to start in less demanding roles.The Unseen Costs of "Daughterhood"A less recognized aspect of womens caregiving burden is eldercare (i.e. daughterhood), which is frequently overshadowed by the attention given to childcare (i.e. motherhood). While businesses have made strides in supporting working mothers, they have largely ignored the unique challenges posed by eldercare. The emotional and physical toll of eldercare, which often includes managing chronic illnesses, dementia, and end-of-life care, cannot be underestimated.According to the Federal Reserve, four times as many people have left the workforce due to adult caregiving compared to childcare, yet corporate policies and benefits packages rarely address these realities.Why You Shouldn't Quit: There Are OptionsBalancing work, children, aging parents, mental and physical health, a "clean" home, and the semblance of a social life - it's simply not sustainable. It would make Superwoman run for the exit. It's no wonder that women leave their jobs in order to quickly take something off their plate. But before putting in your notice, let's talk about resources and options that may be available.Workplace Benefits: Find out what your company offers. Some offer paid caregiver leave, flexible work schedules, Employee Assistance Programs (EAPs) that provide counseling and eldercare resources.Even if your employer is moving away from remote work post-pandemic, you can advocate for more flexibility, such as flexible hours or a partial work-from-home arrangement.According to experts, a flexible workplace arrangement is often the most important factor for caregivers trying to juggle their professional and personal lives.External Support Systems: there are local and national organizations that can provide assistance. Naborforce is one of these organizations - our founder Paige Wilson lived all of the stark truths discussed in this article, and that is why she decided to do something about it! And if Naborforce isn't in your area or isn't an option for you - there are other resources to check out: care.com, Bright Horizons, home care agencies, caregiving forums, etc.Note: Naborforce partners with employers to provide discounted hourly rates. If your employer doesn't have Naborforce as an option, reach out to us and we will see if there is an opportunity to collaborate!Talk to your people: Many organizations are beginning to create employee resource groups for caregivers, offering a safe space to share experiences and tips for managing eldercare. These groups can be a lifeline for employees who feel isolated in their caregiving roles.Making Eldercare an Employee BenefitEmployers play a crucial role in supporting women who are caregivers. Unfortunately, 79% of caregivers do not have access to benefits that support them in this role.Supporting working women is not just about helping parents; its about addressing the needs of adult daughters (and sons) who are balancing caregiving with their professional lives. As 10,000 people turn 65 every day in the U.S., this challenge is only going to grow. Employers must adapt to this reality if they want to retain top female talent.The Bottom Line: You Have OptionsWhile caregiving can feel like an all-consuming role, women should not have to choose between their careers and their families. By tapping into workplace benefits, seeking flexible arrangements, and exploring external resources, women can navigate the challenges of eldercare without sacrificing their professional futures.A Helping Hand for Older Adults - Naborforce 844-696-2267 Were Naborforce. We match older adults who need a little help and kindness with Nabors eager to provide it, strengthening the communities we serve.Everyone can use a little help. Help around the house. Help running errands. Help preparing a meal. Help by just being a friend! Our goal is to promote joyous and independent aging and living while providing peace of mind to families.

How Long Can You Be on Hospice Care?One of the most common questions about hospice care is, how long can someone be on hospice? Understanding the duration and criteria for hospice can help patients and their families make informed decisions during challenging times.While most patients only experience its benefits for days and weeks, hospice is available when a patients physician certifies that they have six months or less to live, as explained further below, with recertification available if the patient outlives that six-month period and continues to meet hospice criteria.What is Hospice Care?Hospice is defined as supportive care that focuses on comfort and quality of life. Hospice is available for patients with a terminal illness and a life expectancy of six months or less if their illness runs its normal course, as certified by a physician.Can hospice help?Hospice services include:Skilled nurses making intermittent visits to assess the patient, provide care and coordinate care from other disciplines.Hospice aides to support activities of daily living.Medical social workers to support the patient and family and make connections to community resources.Chaplains for spiritual support.Hospice volunteers for companionship and support.Bereavement support for the family for up to 13 months following the patients passing.Some companies like Amedisys also offer specialized programs to care for certain diagnoses like dementia, heart failure and more. Eligibility Criteria for HospiceUnderstanding how long hospice care can be provided first starts with having a strong grasp of the eligibility criteria.To be eligible for hospice, the patient must be considered terminally ill with a life expectancy of six months or less if the disease runs its normal course, as certified by a physician. The hospice physician uses their clinical expertise and information from a comprehensive assessment to determine life expectancy. Signs the patient is declining from the terminal illness include progressive weight loss, frequency of hospitalizations, increasing weakness or fatigue, difficulty with daily activities and more.The patient must also elect to stop curative treatments in favor of the comfort and quality of life measures hospice provides. The physician will work closely with the hospice care team on a personalized plan of care focused on pain and symptom management and comfort so patients and families can make the most of their remaining time together.How Long Can Patients Receive Hospice Care?Patients can receive the benefits of hospice care as long as they continue to meet the eligibility criteria. If a patient lives longer than the original six-month certification period, physicians can re-certify them to remain on hospice care if the disease progression still indicates a life expectancy of six months or less.Although patients cannot receive curative treatment while on hospice care, if a patients condition improves significantly so that they are no longer considered terminally ill, they will be discharged from hospice care. Patients can also choose to opt out of hospice care at any time during the service.One of the most famous examples of how hospice can extend beyond six months is former President Jimmy Carter. As of this publication, Jimmy Carter has received hospice care for more than a year, spending that precious remaining time with his family in his home. His legacy will be one of normalizing end-of-life conversations, sparking hope that more patients and families will seek out the benefits of hospice and embrace them sooner rather than later.What are the Benefits of Hospice Care?One of the most common phrases we hear from families is, we wish we had chosen hospice sooner. By accepting help early, patients and families can expect a range of benefits at the end of life:Pain and Symptom ManagementPain and symptom management is a central tenant of hospice care, providing comfort and the best quality of life possible for patients at home. Hospice care combines pharmacological and non-medication tactics to manage physical, emotional, psychosocial and spiritual pain for the patient and caregiver.Holistic CareHospice is a unique Medicare benefit providing care with a full, interdisciplinary care team. Holistic care is a patient-centered approach that focuses on caring for the whole person, including their physical, emotional, psychosocial, and spiritual well-being.Supportive Care EnvironmentHaving hospice care at home fosters a sense of security, familiarity and peace, which can contribute to a patients overall sense of well-being.Advance Care PlanningHospice care encourages open communication and advance care planning discussions, allowing patients to express their desires for the final weeks and months of their life. This can help avoid unwanted medical interventions that could diminish quality of life by ensuring patients are getting the care they need and want.How Do You Know When Its Time for Hospice?If youre caring for a loved one with a terminal diagnosis, there are several key signs that it may be time to start talking about hospice care:Their doctor has given a prognosis of six months or less.Their health or disease symptoms are worsening with frequent trips to the hospital or doctors office.They have decreased appetite or pain/nausea interfering with their ability to eat and drink.They sleep more throughout the day and night.There are noticeable behavior changes in mental clarity, confusion, forgetfulness, or irritability.Activities of daily living like feeding oneself, bathing and dressing independently become more difficult.Caregivers are overwhelmed and unable to manage care on their own.What Are the Four Levels of Hospice Care?As you research hospice, you may come across different levels of hospice care. Moving into different levels can be triggered by changing circumstances or needs of the patient or caregiver. Here are the four levels of hospice care all Medicare-certified agencies provide:Routine Home CareThis is the most common type of hospice care. The full team conducts intermittent visits wherever the patient calls home, providing a comfortable and familiar environment.Respite CareRespite care is available when caregivers need a break. Patients are admitted to a long-term care facility or other inpatient facility with 24-hour nursing available. The patient can stay in the facility for up to five days/five nights and returns to routine level of care on day 6. The hospice team coordinates the plan of care and can arrange transport patients to and from the facility as needed.Continuous Home CareThis level of care is for short-term urgent healthcare needs or symptom crises that can still be feasibly addressed at home. The hospice team provides at least eight hours of continuous care within a 24-hour period. When symptoms are controlled, the patient returns back to routine care.General Inpatient CareIf pain and symptoms related to the patients terminal illness can no longer be controlled at home, the patient may be appropriate for General Inpatient (GIP) care. The hospice team facilitates the patients transfer to a hospital, long-term care facility or hospice inpatient unit and will continue coordinating the plan of care. Patients will return home to routine home care once pain and symptoms are managed.How to Get Started with Hospice Care If youre ready to start talking about hospice care with your family, Amedisys is here to support you through every stage. Contact Amedisys Hospice in Mobile, Alabama at 251-343-0989 for more information.

Ensuring Safety in Hospice Care: A Commitment to ExcellenceThe importance of safety in the workplace for healthcare providers cannot be overstated. As we approach OSHAs Safe and Sound Week in August, it is an opportune moment to highlight the critical measures we undertake to ensure a safe work environment for our staff and patients. This communication aims to inform our referral sources about our safety protocols and provide valuable tips that medical professionals may find beneficial for maintaining safety in their workplaces.Our Commitment to SafetyIn hospice care, where the environment can be unpredictable and emotionally charged, maintaining rigorous safety standards is paramount. Our commitment to safety is evidenced by our comprehensive safety programs, continuous staff training, and adherence to OSHA guidelines. According to the Bureau of Labor Statistics (2023), healthcare workers face a higher rate of workplace injuries than workers in most other sectors, with nearly 5.5 injuries per 100 full-time workers annually. This statistic underscores the importance of our ongoing efforts to mitigate risks and promote a culture of safety.Staff Training and EducationOngoing Training: All our staff undergo regular training sessions that cover the latest safety protocols, emergency procedures, and the proper use of personal protective equipment (PPE). Research has shown that continuous education significantly reduces the incidence of workplace injuries (Smith et al., 2022).Ergonomic InterventionsProper Lifting Techniques: Back injuries are a common concern in healthcare settings. We emphasize training on proper lifting techniques and the use of mechanical lifts when necessary to prevent musculoskeletal injuries (Anderson et al., 2020).Infection Control MeasuresStrict Hygiene Protocols: Adherence to stringent hygiene protocols, including regular handwashing, use of sanitizers, and appropriate use of PPE, is mandatory. These measures are crucial in preventing the spread of infections among staff and patients (CDC, 2022).Mental Health SupportCounseling Services: Recognizing the emotional toll that hospice work can take, we offer counseling services to support our staffs mental health. Studies have indicated that mental health support reduces burnout and improves job satisfaction among healthcare workers (Jones et al., 2021).Safety Tips for Medical ProfessionalsWhile our safety protocols are robust, there are additional tips that medical professionals may find useful in enhancing their safety at work:Use Technology WiselyTelehealth Services: Where appropriate, leverage telehealth services to reduce the need for physical interactions, thereby minimizing exposure to infectious diseases.Stay InformedContinuing Education: Keep abreast of the latest safety guidelines and best practices through continuing education programs. This knowledge is vital for adapting to new challenges and improving workplace safety.Promote a Safety CultureOpen Communication: Foster an environment where staff feel comfortable reporting safety concerns without fear of retribution. An open communication culture is essential for identifying and addressing potential hazards promptly (Davis et al., 2019).Personal Protective Equipment (PPE)Proper Use and Disposal: Ensure the correct use and disposal of PPE. Improper handling can negate the benefits and increase the risk of contamination.Safety in the workplace is a fundamental aspect of providing high-quality hospice care. By implementing rigorous safety measures and continuously educating our staff, we strive to create a secure environment for both our employees and patients. We encourage our referral sources to adopt similar practices to enhance safety within their own organizations. Together, we can build a safer healthcare system for everyone.  Call us today to learn more!ReferencesAnderson, J., Williams, M., & Smith, T. (2020). Ergonomic interventions in healthcare: A review of the evidence. Journal of Occupational Health, 62(4), 311-319. https://doi.org/10.1002/joh.22023Centers for Disease Control and Prevention (CDC). (2022). Infection control in healthcare settings. Retrieved from https://www.cdc.gov/infectioncontrol/index.htmlDavis, K., Turner, M., & Wrenn, G. (2019). Promoting a culture of safety in healthcare. Healthcare Management Review, 44(2), 123-135. https://doi.org/10.1097/HMR.0000000000000199Jones, A., Phillips, R., & Brown, L. (2021). Mental health support for healthcare workers: A systematic review. Journal of Occupational and Environmental Medicine, 63(1), 54-62. https://doi.org/10.1097/JOM.0000000000002025Smith, R., Johnson, P., & Martinez, S. (2022). The impact of continuous education on workplace safety in healthcare. American Journal of Industrial Medicine, 65(3), 233-245. https://doi.org/10.1002/ajim.23394U.S. Bureau of Labor Statistics. (2023). Occupational injuries and illnesses among healthcare workers. Retrieved from https://www.bls.gov/iif/