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Insider information on accessing the underutilized gifts available to the public through the healthcare system: Palliative Care and Hospice
Most people do not understand what “Palliative Care and Hospice” actually is, and how it could apply to them when dealing with a family health crisis. Those who think they understand what it is, are often scared off by the presumption that these are “death benefits” and change the subject. Either they feel It is too unpleasant to contemplate, or they feel that it would be like giving up on their loved one.
But, Palliative Care and Hospice are really quality of life benefits, and not just for the terminally ill patients, but also for the caregivers. Caregivers get access to expert partners who will join with them in providing the best possible support for their loved one.
These underutilized benefits of the health care system, many legally encoded, offer amazing support for those who are in the know. Taking advantage of these perks requires a certain mindset and proper information. By not availing ourselves of these amazing benefits, we are under serving ourselves and our loved one suffering with a serious or life-threatening illness.
Palliative Care is easier to accept for most of us because it is a dual path: Using it when seeking a cure for the illness, and also for the best quality of life and symptom management, at the same time.
When To Consider Palliative Care
If you or your loved one has been diagnosed with a serious or life - limiting illness, you may want to consider Palliative Care. The focus of Palliative Care is to relieve the pain and symptoms associated with the illness, while you continue to receive curative treatment for your diagnosis. Its main goal is to provide the best possible quality of life for the patient, regardless of their age, or the stage of the disease.
Palliative Care is delivered by a team that typically consists of a clinician (physician or nurse practitioner), a nurse manager, and/or a social worker. The team may also include a nutritionist, creative arts therapist (music and art) and mental health or spiritual care providers such as a chaplain. These professionals can help lead discussions about the patient's goals of care, while providing support throughout all stages of the disease trajectory.
Palliative Care services are billed the same as any specialist-level visit (e.g. cardiology), and most insurance programs cover them, possibly with a co-pay. They may be offered in addition to - and not instead of - a primary care physician's services. Nowadays, most urban hospitals have a Palliative Care department, although it may not be widely advertised, and patients may have to specifically ask for a consultation. Patients can receive care anywhere they call home, including hospitals, nursing homes, outpatient clinics, or in your or your loved one’s home.
Palliative Care Information Act of 2011
In New York, the Palliative Care Information Act was passed into law in February 2011 to ensure that patients are fully informed of the options available to them when faced with a life-limiting or terminal illness. Health care practitioners are required to offer seriously ill patients information and counseling about Palliative Care and end-of-life options, including prognosis, range of options appropriate for this patient, risks and benefits of the various options, and the patient's legal right to comprehensive pain and symptom management at the end of life. If the patient is no longer competent to have these conversations, they must be held with the patient's health care agent (surrogate).
Of course, not every patient wishes to hear this information from their physician, and they have the right to refuse it. And not every physician or nurse practitioner feels equipped to have these serious conversations. In the latter case, the healthcare provider must arrange for another qualified physician or Nurse Practitioner to hold them.
What is Hospice?
Hospice, also known as comfort care, is for patients who have made the personal decision to no longer pursue curative treatment for an illness. Instead, they have decided to focus on quality of life and time with family and friends. The decision to seek hospice care is an important one. If you or a loved one has been diagnosed with a terminal illness, there may come a time when efforts to cure or even slow the illness are no longer working and become debilitating rather than helpful. If that time comes, you might want to consider the benefits of hospice care.
Patients usually transition to hospice care when they have decided to stop curative or aggressive treatments. "Hospice" focuses on comfort, not curing, respecting the fundamental principle that each of us has the right to live pain-free and die without suffering, and with dignity.
Who Qualifies For Hospice
Any person, at any age, can receive hospice care if the following criteria are met: 1. A licensed physician would not be surprised if this patient were no longer alive in six months if the disease runs its usual course, and, 2. The patient agrees to no longer pursue curative treatments.
Hospice Care is a personalized inter-disciplinary, specialist-level of care delivered by a team consisting of a board-certified physician or nurse practitioner, a registered nurse case manager, a social worker, clinical pastoral care providers (chaplains) and volunteers. The team may also include a licensed creative arts therapist (music and art). Goals of care discussions between the clinical staff, patient and loved ones help form the plan of care and lend support to the patient and the family throughout the course of the disease. Pre- and post- bereavement support is provided and extends to 13 months following a patient's death.
Most hospice care is delivered in the home setting, wherever the patient resides. This may include an apartment, home, nursing home, assisted living facility, etc. If the hospice care is provided at a skilled nursing or assisted living facility, it does not take the place of the facility’s existing staff. The hospice team supplements the facility’s care and coordinates with its clinical teams. Hospice care can also be provided in special units of contracted hospitals and in separate hospice residences.
Who Pays For Care?
Medicare, Medicaid, and all insurance programs offer hospice benefits. Many hospice agencies will also take on some patients who are unable to pay for their care through access to their internal foundation, grants or donations.
If you would like to learn more about Palliative and Hospice Care, as well as what is available to you, contact Miryam Rabner at mrabner@MJHS.org.
To good health!
About the author
Miryam Rabner, M.Phil., has been a community outreach liaison for MJHS Hospice and Palliative care in the Bronx and Manhattan for the past 16 years. MJHS is one of the largest not-for-profit health systems in the eastern seaboard region. MJHS provides home care services, hospice and palliative care for adults and children, rehabilitation and nursing care, and the research-based MJHS Institute for Innovation in Palliative Care.
Miryam is a guest poster and friend of Senior Care Authority of New York and Southwest Florida.
Senior Care Authority of New York and Southwest Florida offers assistance with quality-of-life preparation, planning and care. Contact us to schedule a complimentary consultation to learn more about this and our other services, by emailing info@scanyfl.com
When a loved one is seriously ill, finding the best care available is your top priority. You may be familiar with the terms palliative care, and hospice care, but do you know the difference between the two? While the two are often conflated, palliative care and hospice care differ greatly.Hospice provides medical care during terminal illnesses, in addition to emotional, spiritual, and physical support, following a prognosis of six-months or less. Medicare, which covers a significant portion of hospice care, also requires that the patient cease any treatments intended to cure the illness. These treatments might include chemotherapy, drugs to combat psychosomatic conditions, and more. Ultimately, hospice care aims to keep the patient as comfortable as possible as terminal illness progresses into its final stages.On the other hand, palliative care may be provided at any time following the diagnosis of a serious illness, such as renal disease and any progressive disease (pulmonary, cardiac, etc.). Unlike hospice, palliative care does not require the cessation of curative treatments, while still providing the same relief from pain and symptoms. Ultimately, palliative care focuses on improved quality of life for both the patient and his or her family.The Larsen Pavilion at Shell Point has partnered with Hope Hospice to offer hospice care through a 9-bed, general inpatient unit. The Larsen Pavilions compassionate, personalized healthcare is complemented by its scenic waterfront setting. To learn more about this and other services at the Larsen Pavilion, including memory care and specialized rehabilitative therapy, call (239) 415-5432.
As we age, planning for the future becomes more than just a good ideait becomes essential. For seniors and their families, understanding which legal documents are needed can make the difference between smooth transitions and emotional, financial, or medical complications down the road.Whether you're a caregiver, a senior exploring option, or a professional in the senior care industry, knowing the essential legal documents for seniors is a must. This guide will walk you through the most important oneslike powers of attorney, living wills, and advance directivesand explain how they protect the wishes and well-being of older adults.Why Legal Planning is Critical for SeniorsToo often, families wait until a crisis strikes to talk about legal documents and end-of-life preferences. But by planning early, seniors can ensure their medical, financial, and personal decisions are honored. Legal documents also ease the burden on loved ones, removing ambiguity and preventing disputes.Key Benefits of Having Essential Legal Documents in Place:Clear communication of healthcare wishesProtection of assets and financesDesignation of trusted decision-makersPrevention of family disagreementsEmpowerment and peace of mindLets explore the key documents every senior should have in place. Power of Attorney for Elderly Parents One of the most important legal tools for seniors is a power of attorney (POA). This document allows a trusted individualoften an adult child or close family memberto make decisions on behalf of the senior if they become unable to do so.Types of Power of Attorney:Financial POA: Grants authority to manage bank accounts, pay bills, and handle property or investments.Medical POA: Authorizes someone to make healthcare decisions if the senior becomes incapacitated.Durable POA: Remains in effect even after the senior becomes mentally or physically unable to make decisions.Why It Matters: Without a POA, family members may have to go through a lengthy court process to gain control of financial or healthcare matters. A power of attorney for an elderly parent is not just a legal formits a vital safeguard for their well-being. Advance Directive for Seniors An advance directivesometimes called a living willis another foundational document in senior legal planning. It outlines the types of medical care a person wishes to receive (or avoid) if they become seriously ill or unable to communicate.Key Elements in an Advance Directive:Preferences regarding life-sustaining treatments (CPR, ventilators, feeding tubes)Pain management choicesOrgan and tissue donation instructionsDo-not-resuscitate (DNR) ordersWhy It Matters: Advance directives help medical providers and family members honor a seniors wishes. Without one, loved ones may struggle to make decisions in emotionally charged situations. Living Will A living will is often included within an advance directive but may also exist as a separate document. It explicitly outlines a person's preferences about medical treatment in situations where recovery is unlikely.Why It Matters: This document ensures that seniors retain control over their end-of-life care, helping to avoid unwanted procedures and offering clarity to caregivers and physicians. HIPAA Authorization The Health Insurance Portability and Accountability Act (HIPAA) protects sensitive medical informationbut it can also create roadblocks for caregivers who need access to that information.A HIPAA authorization allows designated individuals (like adult children or caregivers) to speak with healthcare providers and receive updates on a seniors condition.Why It Matters: Without this document, even close family members may be denied vital medical information during emergencies. Last Will and Testament A will ensures a senior's property and assets are distributed according to their wishes after their passing. It can also name a guardian for dependent adults or pets, and designate an executor to manage the estate.Why It Matters: Without a will, state laws determine who inherits whatoften leading to delays, expenses, and family disputes. Trust Documents (Optional but Valuable) While not essential for everyone, some seniors may benefit from establishing a trust, which allows for greater control over assets during life and after death. Trusts can also help avoid probate and protect assets from certain taxes or creditors.Why It Matters: Trusts offer flexibility and privacy and are especially useful for seniors with complex estates, property in multiple states, or specific financial goals.Best Practices for Seniors and CaregiversReview and update legal documents regularlyespecially after major life events like moving, divorce, or a diagnosis.Store documents in a safe but accessible place. Share copies with family members, doctors, or legal representatives.Discuss decisions openly with loved ones to avoid confusion later.Consult with an elder law attorney to ensure all documents comply with state laws.How Seniors Blue Book Can HelpAt Seniors Blue Book, we understand how overwhelming legal planning can feelbut you dont have to navigate it alone. Whether you're seeking information for yourself, a parent, or a client, our resources are designed to empower and guide you through each step.Our platform connects families with trusted professionals in senior care, elder law, home health services, and more. We also offer a free listing to help senior-focused providers gain visibility and reach the families who need them most.Final ThoughtsLegal documents arent just paperworktheyre acts of care, foresight, and protection. Having the right tools in place helps seniors maintain autonomy, reduce stress for their families, and ensure their wishes are honored.From powers of attorney to advance directives and beyond, these essential legal documents for seniors create a clear path forward for aging with dignity and peace of mind.Need help connecting with local elder law professionals or understanding your options? Seniors Blue Book is here for you.Contact us today at hello@seniorsbluebook.com or call us at 800-201-9989 for trusted resources and a FREE digital marketing listing that can help your senior care business grow visibility and build trust with the families who matter most. Your peace of mindand theirsstarts here.
We know that navigating senior care options can be overwhelming for you and your family. As your advocate, we can do the homework for you.Well help you sort through and understand all your care options, traverse a complex healthcare system, get accurate and up-to-date information, and connect you to vetted local resources. How can we help you make the best choices for your loved one?
We know that navigating senior care options can be overwhelming for you and your family. As your advocate, we can do the homework for you.Well help you sort through and understand all your care options, traverse a complex healthcare system, get accurate and up-to-date information, and connect you to vetted local resources. How can we help you make the best choices for your loved one?
We know that navigating senior care options can be overwhelming for you and your family. As your advocate, we can do the homework for you.Well help you sort through and understand all your care options, traverse a complex healthcare system, get accurate and up-to-date information, and connect you to vetted local resources. How can we help you make the best choices for your loved one?