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Parkinsons: What do I need to know?
April is Parkinson’s Awareness month, with April 11 being World Parkinson’s Day. Parkinson’s is a type of dementia that impacts motor function and is degenerative. Currently there is still no known cure for Parkinson’s disease.
What is Parkinson’s disease?
According to the International Parkinson and Movement Disorder Society (movementdisorders.org), Parkinson’s disease is a neurogenerative disorder characterized primarily by the loss of dopamine neurons in the substantia nigra part of the brain.
Symptoms
Generally, symptoms develop on one side slowly over years, but the progression may differ due to the diversity of the disease. People with PD may experience the following:
· tremor, mainly at rest (described as pill rolling tremor in hands
· bradykinesia
· limb rigidity
· gait and balance problems.
Non-motor symptoms
Common Neuropsychiatric symptoms are:
· mood disturbances
· cognitive changes
· autonomic dysfunction
· pain
· sleep issues
· anxiety
· apathy
Prevalence is approx. 200 cases in 100K population, and about 25 cases per 100,000 population. When motor manifestations appear, people with PD have lost more than 50% of nigral dopamine cells suggesting that pathological changes may begin several decades before the appearance of clinical signs.
Causes of Parkinson’s disease
It is believed that Parkinson’s disease is multifactorial. Contributing factors are:
· Hereditary predisposition
· Environmental toxins
· Aging
· Genetic mutations (GBA, LRRK2, PRKN, SNCA)
Diagnosis
Diagnosis is still clinical and based on motor manifestations. A brain MRI or CT and molecular imaging of the striatum may be performed to support clinical evaluation.
Treatment
Levodopa has remained the cornerstone of PD treatment for more than 50 years. The challenge is after a few years of treatment the benefit lessons and motor complications appear in many patients due to disease progression. The introduction of many other medications including inhibitors and dopamine agonists have been developed due to this decline.
More recently, surgical and infusion therapies have become available to improve management in selective patients with motor complications. Surgery options include:
· deep brain stimulation.
· drug infusions based on the possibility to deliver continuously either levodopa or apomorphine.
Treatment noted is based on research according to Marcello Merello, MD Director of Neuroscience Dept. Head Movement Disorders Section Institute for Neurological Research Raul Carrea (FLENI) 2019 Updated by Angelo Antonini, MD, PhD Professor, Department of Neuroscience University of Padula, Italy.
Parkinsonism (movementdisorders.org)
A defining feature of Parkinsonism is bradykinesia (slowness with decrement and degradation of repetitive movements (Fatigue). Subtle bradykinesia is known to occur in the “normal elderly” population. The most common neuro degenerative cause of parkinsonism is Parkinson’s disease. Other causes include multiple system atrophy, progressive supranuclear palsy, and corticobasal degeneration. Often called “Parkinson-plus syndromes”, they do not respond as well to dopaminergic treatments and generally have worse prognosis compared to typical PD. Parkinsonism can also be symptomatic because of various vascular drug related, infectious, toxic, structural, and other known secondary causes. Vascular Parkinsonism tends to have a lower body emphasis with gait disturbance and concomitant cognitive impairment.
Where to get help
We are fortunate to have a Dallas Area Parkinson’s Society (DAPS). The DAPS provides not only information, but also hosts exercise groups and activities throughout the metroplex. Several churches and senior centers also host Parkinson support groups and wellness classes. Dallas Area Parkinson Society | Home (daps.org)
Parkinson's Disease Support Groups (verywellhealth.com)
· American Parkinson Disease Association
· DailyStrength Parkinson’s Disease Support Group
· Parkinson’s Foundation
· PatientsLikeMe
· Parkinson’s Movement Disorder and Alliance
· Parkinson’s Community
· NeuroTalk
Adult Day Cares and Assisted Living Communities often provide respite services for those with Parkinson’s or other conditions requiring activities of daily living (ADL) care support.
How can I help?
The Michael J Fox organization provides free scratch and sniff tests that help researchers learn more about Parkinson’s risks and contribute to research on the disease. (michaeljfox.org)
Regardless of if you are reading this because you or a loved one has been impacted by Parkinson’s disease or if you are just wanting to learn more, we hope that you are able to get the support you need and/or find ways to help cope
Britt Hemsell – Ruby Care Senior Living Advisor & Blog Contributor
Resources:
International and Movement Disorder Society https://www.movementdisorders.org
7 Parkinson's Disease Support Groups of 2023 (verywellhealth.com)
American Parkinson Disease Association https://www.apdaparkinson.org/community/
Dallas Area Parkinson Society | Home (daps.org)
Some Adult Day Cares in DFW:
Friends Place Adult Day Care Richardson 972-437-2940
The Waxahachie High School Alumni Association, also known as the Waxahachie Ex-Students' Association, has long been a pillar of support for its graduates. Established in 1961, the association has grown to become a vital resource for alumni, providing a range of services and opportunities to stay connected with their alma mater and fellow graduates.One of the standout features of the Waxahachie High School Alumni Association is its commitment to providing valuable resources to its members. Among these resources is the Seniors Blue Book, a comprehensive guide that offers information on senior living options, healthcare services, and other essential resources for seniors. This guide is an invaluable tool for alumni who are navigating the complexities of aging and seeking reliable information to make informed decisions about their future.In addition to the Seniors Blue Book, the alumni association offers a variety of other resources and services. These include: Scholarship Programs: The association awards numerous scholarships to graduating seniors each year, helping to ease the financial burden of higher education and support the next generation of Waxahachie graduates. Reunion Planning: The association assists alumni in organizing class reunions, providing a platform for classmates to reconnect and reminisce about their high school days. Community Events: The association hosts various events throughout the year, including homecoming celebrations, community-building activities, and volunteer opportunities. Networking Opportunities: Alumni can take advantage of networking events and online platforms to connect with fellow graduates, share career advice, and explore professional opportunities. The Waxahachie High School Alumni Association's dedication to supporting its members is evident in the wide range of resources and services it offers. By providing tools like the Seniors Blue Book and fostering a strong sense of community, the association ensures that Waxahachie graduates remain connected and supported throughout their lives. Click Here for more information about the Waxahachie High School Alumni Associationand the resources it provides.
Understanding Parkinsons and Its Impact on FamiliesCaring for a loved one with Parkinsons disease presents unique challenges that require both emotional resilience and practical strategies. As the disease progresses, families often find themselves in unfamiliar territory, struggling to balance their personal and professional lives while ensuring their aging loved one receives the best care possible. This article provides an in-depth look at Parkinsons disease, how it affects families, and the essential steps to prepare for the caregiving journey.What is Parkinsons Disease?Parkinsons disease is a progressive neurological disorder that primarily affects movement, but it also has cognitive and emotional implications. It occurs when dopamine-producing neurons in the brain gradually deteriorate, leading to symptoms such as tremors, muscle stiffness, slowness of movement, and balance issues. As the disease advances, individuals may experience non-motor symptoms, including depression, sleep disturbances, and cognitive decline. Understanding these symptoms is crucial for families so they can recognize early warning signs and seek appropriate medical support.The Stages of Parkinsons DiseaseParkinsons progresses in five distinct stages, each presenting different challenges for caregivers:1. Stage One (Mild Symptoms) Symptoms are mild and may only affect one side of the body. Daily activities remain largely unaffected.2. Stage Two (Moderate Symptoms) Symptoms worsen, appearing on both sides of the body. Daily tasks become slightly more challenging.3. Stage Three (Loss of Balance and Independence Challenges) Falls become more frequent, and daily activities require more effort.4. Stage Four (Severe Mobility Limitations) Assistance is needed for most daily activities, and independent living becomes difficult.5. Stage Five (Advanced Parkinsons) The individual may be bedridden or require a wheelchair, with round-the-clock care needed. Understanding these stages allows families to anticipate changes and proactively plan for caregiving needs. Emotional and Psychological Impact on FamiliesThe emotional toll of caregiving can be overwhelming, particularly for busy professionals juggling work and family responsibilities. Watching a once-independent parents who struggle with Parkinsons can evoke feelings of sadness, frustration, and guilt. Many caregivers also experience burnout due to the constant physical and emotional demands of caregiving. To manage these challenges, families should consider the following: Seek Emotional Support Support groups for Parkinsons caregivers provide a space to share experiences and receive guidance. Practice Self-Care Caregivers must prioritize their own well-being to sustain their ability to provide care. Maintain Open Communication Honest conversations among family members can help in decision-making and stress management.The Role of Professional Caregiving ServicesAs the disease progresses, family caregivers often find themselves struggling to keep up with their loved ones increasing needs. Professional caregiving services like those offered by At Your Home Caregiving of Texas LLC provides expert assistance tailored to Parkinsons patients, ensuring they receive the highest level of care while allowing family members to focus on their own professional and personal lives. Some key benefits of professional caregiving include: Personalized Care Plans Professional caregivers develop customized care strategies based on the individuals specific symptoms and progression. Mobility Assistance Helping individuals move safely, reducing the risk of falls and injuries. Medication Management Ensuring medications are taken correctly and on time. Meal Preparation and Nutrition Support Creating Parkinsons-friendly meal plans to enhance overall well-being. Companion Care Providing social interaction and engagement, reducing feelings of isolation.Available Medical Treatments and Therapies While there is no cure for Parkinsons, several treatments and therapies can help manage symptoms and improve quality of life: Medications Dopamine-enhancing medications like Levodopa help alleviate motor symptoms. Physical Therapy Helps improve balance, strength, and flexibility. Speech Therapy Addresses difficulties with speaking and swallowing. Occupational Therapy Helps individuals adapt to daily activities using assistive devices and modified techniques. Deep Brain Stimulation (DBS) A surgical procedure that can help reduce tremors and improve motor control. By incorporating these treatments into a care plan, families can improve their loved ones comfort and independence.Early Planning for a Smooth Caregiving JourneyOne of the biggest mistakes families make is waiting until a crisis occurs before seeking professional caregiving support. High-paying geriatric care clients, such as the busy professionals looking after aging parents, benefit greatly from early planning.Some key steps include: Assessing Current and Future Needs Evaluating the stage of Parkinsons and determining what level of support is required. Exploring Home Care Options Researching caregiving services that align with the familys values and expectations. Financial and Legal Planning Consulting elder law attorneys and financial advisors to create a sustainable long-term care plan. Designating a Care Coordinator Assigning a family member or professional to oversee caregiving arrangements and medical needs.By addressing these factors early, families can avoid unnecessary stress and ensure their loved ones receive seamless, high-quality care. Why Choose At Your Home Caregiving of Texas LLC?For professional families with aging parents, finding a trustworthy and compassionate caregiving service is essential. At Your Home Caregiving of Texas specializes in providing exceptional in-home care tailored to high-net-worth families. With a commitment to dignity, independence, and personalized attention, the agency offers: Highly Trained Caregivers Experienced in Parkinsons care and advanced elder care techniques. Flexible Care Plans Ranging from part-time assistance to full-time live-in care. Seamless Communication Keeping family members informed and involved in caregiving decisions. Commitment to Excellence Prioritizing client satisfaction and quality of life.Final ThoughtsParkinsons disease is a complex condition that requires a proactive and well-thought-out caregiving plan. By understanding the diseases progression, seeking the right support, and planning early, families can ensure their loved ones receive the best possible care while maintaining their own professional and personal balance.At Your Home Caregiving of Texas LLC stands ready to support families on this journey, offering specialized in-home care solutions that provide peace of mind and exceptional care for aging loved ones. This article serves as a comprehensive guide for families navigating the challenges of Parkinsons caregiving. Future articles in this series will dive deeper into specific aspects of caregiving, from hospital stays and rehabilitation to long-term care planning and caregiver well-being.
A diagnosis of Parkinsons is a life-changing moment. However, with advances in treatment and the right support there is much an individual with Parkinsons disease can do to live every day to the fullest. Here in Massachusetts, we have many resources to help navigate the PD diagnosis and get the information you need. The American Parkinson Disease Association (APDA) is the countrys largest grassroots organization serving those touched by Parkinsons disease. What makes APDA unique is that we are in cities, towns, and communities across the U.S. In Massachusetts there is a APDA Chapter, Information & Referral Center, Centers for Advanced Research, Specialized programs in Young Onset, Veterans and Rehabilitation Resources, and countless support groups, we are able to quickly reach people and connect them to resources that will provide the best outcomes as they navigate Parkinsons disease.Parkinsons disease is a progressive neurological movement disorder. Over one million people live with Parkinsons. The results of a new study show that the incidence of Parkinsons disease (PD), or the number of new cases diagnosed per year, is 50% higher than previously estimated. Instead of past estimates of 60,000 new cases of PD diagnosed per year, the new study determined that there are approximately 90,000 new cases of PD diagnosed in the US per year. It can begin with a tremor, difficulty writing, stooped posture, stiff muscles, or slightly slurred speech; symptoms are different for every person. If you have questions reach out to your doctor. APDAs mission is to provide information, education, and support to all impacted by the disease and to fund scientific research into the causes, prevention, treatments and ultimately the cure. We take pride in the fact that we are in your community and many others across the country serving people with Parkinsons disease to provide support from the day of diagnosis throughout the Parkinson journey. We have also been a funding partner in most major Parkinsons disease discoveries, and we will continue to fund research initiatives that can stop the devastation of living with this disabling disease. The last few years have been especially challenging for the PD community and APDA has worked hard to develop programs and services that the community can access from the safety and comfort of their home. APDA has developed a library of virtual education topics, virtual support groups, caregiver programs and continues to operate the incredibly valuable APDA information and referral line that provides expert guidance without charge. APDA is here to help with the following programs some in person and others virtually: Health and wellness initiatives delivering programs to help people maintain independence and optimism starting at diagnosis. Education and support programs connecting people with Parkinsons in local communities. Expedited and innovative research to develop promising clinical approaches and better outcomes and funding the next generation of scientists dedicated to finding new treatments and a cure. For information about Massachusetts programs or to become a volunteer contact: APDA Information & Referral Center at Boston University School of Medicine Boston, MA 02118 and at 617-638-8466 or 800-651-8466 apdama@apdaparkinson.org & www.apdama.org This article was submitted by Bill Patjane- Regional Director of the APDA- Northeast bpatjane@apdaparkinson.org (617) 352-9330
When Its Time for Senior Living, We Help You Find the Perfect Community for You! With over 900 senior living options in the DFW area, Ruby Care helps families make informed decisions. We provide complimentary assistance to find the most appropriate living community including Indepenent Living, Assisted Living, Residential Care Homes, Memory Care & Nursing Home. Our ExperienceIf you've been searching for senior housing for you or your loved one, you know there are hundreds of senior living communities in the Dallas/Fort Worth area. Let Ruby Care help you. We do the legwork at no cost to you and help you find the place that is perfect for you and your family.Our professionals are well-known in the communities they serve. In order to help you best, they network with health care providers, such as home health, hospice, rehabilitation facilities, hospitals, physicians and other senior service providers.Collectively, our team has over 50 years of experience in healthcare and we are trained to listen to your needs so that we can work to find the best options for you...at no cost! Why Us?We know this can be a stressful time for you as you choose your next home. When you work with us, you will be assigned a Senior Living Advisor (SLA) who knows the community and has first-hand knowledge of the communities you are considering. Your SLA will meet with you in person and will listen to your wishes, wants and needs in order to help guide your next steps. Your SLA will also help you with senior living community tours and preparation to help guide you through the selection process. We serve as your advocate and help make this a smooth, seamless transition. Once you have selected a community, we continue to follow up for at least the next thirty days to make sure things are going well and there are no outstanding concerns. possibilities. placement. peace of mind.