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Parkinsons: What do I need to know?
April is Parkinson’s Awareness month, with April 11 being World Parkinson’s Day. Parkinson’s is a type of dementia that impacts motor function and is degenerative. Currently there is still no known cure for Parkinson’s disease.
What is Parkinson’s disease?
According to the International Parkinson and Movement Disorder Society (movementdisorders.org), Parkinson’s disease is a neurogenerative disorder characterized primarily by the loss of dopamine neurons in the substantia nigra part of the brain.
Symptoms
Generally, symptoms develop on one side slowly over years, but the progression may differ due to the diversity of the disease. People with PD may experience the following:
· tremor, mainly at rest (described as pill rolling tremor in hands
· bradykinesia
· limb rigidity
· gait and balance problems.
Non-motor symptoms
Common Neuropsychiatric symptoms are:
· mood disturbances
· cognitive changes
· autonomic dysfunction
· pain
· sleep issues
· anxiety
· apathy
Prevalence is approx. 200 cases in 100K population, and about 25 cases per 100,000 population. When motor manifestations appear, people with PD have lost more than 50% of nigral dopamine cells suggesting that pathological changes may begin several decades before the appearance of clinical signs.
Causes of Parkinson’s disease
It is believed that Parkinson’s disease is multifactorial. Contributing factors are:
· Hereditary predisposition
· Environmental toxins
· Aging
· Genetic mutations (GBA, LRRK2, PRKN, SNCA)
Diagnosis
Diagnosis is still clinical and based on motor manifestations. A brain MRI or CT and molecular imaging of the striatum may be performed to support clinical evaluation.
Treatment
Levodopa has remained the cornerstone of PD treatment for more than 50 years. The challenge is after a few years of treatment the benefit lessons and motor complications appear in many patients due to disease progression. The introduction of many other medications including inhibitors and dopamine agonists have been developed due to this decline.
More recently, surgical and infusion therapies have become available to improve management in selective patients with motor complications. Surgery options include:
· deep brain stimulation.
· drug infusions based on the possibility to deliver continuously either levodopa or apomorphine.
Treatment noted is based on research according to Marcello Merello, MD Director of Neuroscience Dept. Head Movement Disorders Section Institute for Neurological Research Raul Carrea (FLENI) 2019 Updated by Angelo Antonini, MD, PhD Professor, Department of Neuroscience University of Padula, Italy.
Parkinsonism (movementdisorders.org)
A defining feature of Parkinsonism is bradykinesia (slowness with decrement and degradation of repetitive movements (Fatigue). Subtle bradykinesia is known to occur in the “normal elderly” population. The most common neuro degenerative cause of parkinsonism is Parkinson’s disease. Other causes include multiple system atrophy, progressive supranuclear palsy, and corticobasal degeneration. Often called “Parkinson-plus syndromes”, they do not respond as well to dopaminergic treatments and generally have worse prognosis compared to typical PD. Parkinsonism can also be symptomatic because of various vascular drug related, infectious, toxic, structural, and other known secondary causes. Vascular Parkinsonism tends to have a lower body emphasis with gait disturbance and concomitant cognitive impairment.
Where to get help
We are fortunate to have a Dallas Area Parkinson’s Society (DAPS). The DAPS provides not only information, but also hosts exercise groups and activities throughout the metroplex. Several churches and senior centers also host Parkinson support groups and wellness classes. Dallas Area Parkinson Society | Home (daps.org)
Parkinson's Disease Support Groups (verywellhealth.com)
· American Parkinson Disease Association
· DailyStrength Parkinson’s Disease Support Group
· Parkinson’s Foundation
· PatientsLikeMe
· Parkinson’s Movement Disorder and Alliance
· Parkinson’s Community
· NeuroTalk
Adult Day Cares and Assisted Living Communities often provide respite services for those with Parkinson’s or other conditions requiring activities of daily living (ADL) care support.
How can I help?
The Michael J Fox organization provides free scratch and sniff tests that help researchers learn more about Parkinson’s risks and contribute to research on the disease. (michaeljfox.org)
Regardless of if you are reading this because you or a loved one has been impacted by Parkinson’s disease or if you are just wanting to learn more, we hope that you are able to get the support you need and/or find ways to help cope
Britt Hemsell – Ruby Care Senior Living Advisor & Blog Contributor
Resources:
International and Movement Disorder Society https://www.movementdisorders.org
7 Parkinson's Disease Support Groups of 2023 (verywellhealth.com)
American Parkinson Disease Association https://www.apdaparkinson.org/community/
Dallas Area Parkinson Society | Home (daps.org)
Some Adult Day Cares in DFW:
Friends Place Adult Day Care Richardson 972-437-2940
Lets talk PATHWAYS: Personalized Support for Those Experiencing Cognitive DeclineDecember 5, 2024 By CC Young StaffThis time of year is filled with gatherings, which means you may be spending more quality time with your family members, particularly your parents and older relatives. While time spent together is a blessing, it can also highlight changes brought on by aging. If you believe someone you love is experiencing mild cognitive decline, there are options for keeping them safe while maintaining their independence and quality of life.This year, CC Young Senior Living in Dallas launched the Personal Assistance Toward Health and Wellness As You Succeed (PATHWAYS) program. Designed to serve as a bridge between Assisted Living and Memory Support, PATHWAYS provides extra support and structure in an intimate, small-group setting.We sat down with Nena Paris, CC Youngs Administrator, Assisted Living and Memory Support, to better understand the PATHWAYS program and who can benefit from it. Here are seven takeaways.PATHWAYS was created to fill a need between Assisted Living and Memory Support. The program came about because, often, Memory Support units can have long waitlists and fill up quickly. Truthfully, sometimes people with cognitive impairment dont necessarily need full Memory Support, as theyre not at risk of eloping, or leaving the community without supervision. CC Young has recognized that theres this middle group people who need a little more guided assistance and structure with their daily activities but are not qualified for full-blown Memory Support.PATHWAYS can actually slow cognitive decline. Research has shown that a guided program like PATHWAYS can in fact slow cognitive decline and help people stay engaged. Our program does this by providing residents with personal interaction, along with physical and emotional support, as a way to enhance their overall wellness and quality of life in a positive environment.PATHWAYS promotes resident wellness. At CC Young, we focus on whole-person wellness, using the 7 Pillars of Wellness as defined by the International Council on Active Aging: physical, social, spiritual, intellectual, emotional, vocational, and environmental wellness. Thats also the backbone of the PATHWAYS program, which promotes active aging regardless of cognitive issues. From these pillars, we have designed a comprehensive therapeutic program to support the needs of those with mild cognitive impairment in a joyful, engaging environment.PATHWAYS offers an intimate caregiver-to-resident ratio. Part of what makes PATHWAYS so successful is that the CC Young staff works closely with residents, which means the staff will notice any cognitive changes. In fact, at 1 caregiver to 7 people, the caregiver-to-resident ratio in PATHWAYS is better than both Assisted Living and Memory Support, which are 1 to 25 and 1 to 10, respectively. That also results in PATHWAYS residents becoming like family, as the staff truly gets to know them.PATHWAYS is not just for CC Young residents. Its true anyone from the Dallas community who has a need for the program can become a PATHWAYS resident. Upon entering the PATHWAYS program, your family member would also become an Assisted Living resident in The Hillside at CC Young.PATHWAYS is a less stressful transition for both family members and residents. It can certainly be stressful for families to face the decision of whether or not their family member should enter Memory Support. PATHWAYS offers a comforting solution for both them and their loved ones, as it lessens the pressure of deciding whether full Memory Support is needed now. The PATHWAYS resident may be able to live out their days in the PATHWAYS program or eventually transition to Memory Support, if the need arises.PATHWAYS keeps residents engaged and prevents isolation. To keep PATHWAYS residents engaged, the program takes an active and intentional approach to life enrichment activities, which includes participating in activities on the Assisted Living calendar as well as a specialized PATHWAYS calendar. The biggest differentiator for PATHWAYS is that a dedicated support staff member helps residents plan their day and escorts them to the activities. Since we purposely guide residents to keep them engaged, they are able to remain active and enjoy a better quality of life, while also avoiding any isolation that can be a symptom of cognitive decline.PATHWAYS is just one more service that CC Young offers current and prospective residents and their families. When we noticed an increase of older adults experiencing various levels of cognitive decline but not necessarily to the level of needing Memory Support we wanted to do something about it. We put our heads together and created a solution: PATHWAYS.If you are noticing cognitive decline in someone you love, we encourage you to have a conversation to express what youre observing. Talking to your primary care physician is a good place to start. CC Young is also happy to provide information, so feel free to give us a call at 214-305-9662.
Aging in place is becoming increasingly important for many American families. According to an AARP survey, more than half of Americans aged 50 and older plan to remain in their homes throughout their aging journey. And its no surprise whyaging at home offers familiarity, comfort, and, with proper planning, can be a more economical option that promotes independence for longer.However, the decision to age in place comes with its own set of challenges, particularly financial ones. Rising healthcare and long-term care costs make early and open financial planning crucial for families.If your parent or loved one is considering aging at home, this guide offers practical tips to support their independence while avoiding unnecessary financial strain.1. Start the Money Conversation EarlyTalking about finances with aging parents can be uncomfortable, but its an essential step to ensure their comfort and security. Approach this discussion with empathy and openness, focusing on how you can work together to maintain their quality of life.Here are key topics to cover:Income Sources: Discuss pensions, Social Security benefits, and retirement savings like 401(k)s or investments.Monthly Expenses: Understand their current spending and where adjustments might be needed.Future Costs: Highlight potential costs like home modifications, in-home care, and medical expenses.Creating a clear picture of their financial standing helps families plan effectively and reduces future stress.(Need help starting this discussion? Check out our blog, Tips for Convincing Aging Parents to Accept Help.)2. Understand the Costs of Aging in PlaceWhile aging at home is often more affordable than senior living facilities, its not without significant costs. For context, senior facilities can cost $4,500 to $5,300 per month on average, according to the National Council on Aging.Aging at home avoids some of these expenses, but families should still anticipate:Home Maintenance and Modifications: An AARP study revealed that 52% of out-of-pocket costs for aging at home go toward maintenance and accessibility updates, such as grab bars, ramps, or stairlifts.In-Home Care: Costs for personal care or medical support staff vary depending on the level of assistance needed.Medical Emergencies: Unexpected healthcare needs, especially for conditions like dementia, can lead to surprise expenses.Understanding these costs early allows families to budget appropriately and avoid financial shocks.3. Explore Long-Term Care InsuranceGiven the high cost of long-term care, investing in a long-term care insurance policy may be worth considering. These policies can cover in-home care, nursing services, or assisted living facilities, reducing financial stress when care needs arise.Timing Matters: The earlier you purchase a policy, the more affordable it will be.Evaluate Carefully: Not all policies cover every type of care, and premiums can be expensive.If insurance isnt an option, families can explore alternative strategies, such as hybrid insurance plans that combine life insurance with long-term care benefits.4. Prioritize Home Safety ModificationsCreating a safe living environment is key to helping your parent stay independent at home. Start with basic home modifications:Install grab bars in bathrooms.Add ramps or stairlifts for improved mobility.Ensure good lighting throughout the home to reduce fall risks.These changes can cost anywhere from a few hundred to several thousand dollars but are crucial for safety and peace of mind.Beyond modifications, consider investing in medical alert systems or fall-detection technology to provide an added layer of security.5. Plan for In-Home Care NeedsAs your parent ages, their care needs may increase. Early planning ensures that youre ready for the transition:Start Small: Part-time help from a home health aide may suffice initially, covering tasks like meal preparation or light housekeeping.Scale Gradually: If full-time or overnight care becomes necessary, families should prepare for costs that can exceed $100,000 annually.For lighter support, consider intermediary services like Naborforce, which connects aging adults with Nabors who assist with everyday tasks, such as transportation and grocery shopping. These services can extend independence and delay the need for more intensive care.6. Understand Medicare, Medicaid, and Additional ResourcesNavigating government programs can be daunting but essential for offsetting care costs:Medicare: Covers limited short-term in-home care, typically after a hospital stay, but not long-term care.Medicaid: Offers comprehensive coverage for long-term care, though eligibility is income-based and requires a detailed financial review.Additionally, research state-level programs, veterans benefits, or caregiver compensation opportunities that may be available in your area.7. Stay Flexible and Plan for the UnexpectedEven with careful planning, caregiving can come with unexpected twists, from sudden health changes to financial surprises. Build a cushion into your budget to account for emergencies and remain flexible in your approach.Helping your loved one age comfortably at home requires careful planning, open communication, and the right resources. By addressing finances early, making necessary home modifications, and utilizing services like Naborforce, families can create a supportive environment that fosters independence and comfort.Aging at home is not just a choice; its a commitment to ensuring your parents dignity and quality of life. With a solid plan in place, you can navigate this journey together, providing your loved one with the care and security they deserve.And when you need a helping hand, remember that Naborforce is here to support you every step of the way.A Helping Hand for Older Adults - Naborforce 844-696-2267 Were Naborforce. We match older adults who need a little help and kindness with Nabors eager to provide it, strengthening the communities we serve. Everyone can use a little help. Help around the house. Help running errands. Help preparing a meal. Help by just being a friend! Our goal is to promote joyous and independent aging and living while providing peace of mind to families.
The aging process often begins subtly, with gradual changes that seem manageable. One day, your parent is fully independent, taking care of daily tasks without issue. Then, suddenly, it feels as though the aging process accelerates, bringing new challenges all at once. This rapid shift can be difficult for family members, especially if they haven't planned ahead.Why Aging Can Seem to Happen SuddenlyWhile aging typically unfolds slowly, research suggests it doesnt always progress in a straight line. A study published in Nature Aging found that aging tends to occur in bursts, where rapid changes in areas like metabolism, immune health, and muscle strength happen. These bursts often occur around the age of 60, potentially leading to abrupt physical declines (SciTech Daily)(AARP).If you or your loved one wait too long to prepare, you may find yourselves scrambling to deal with the sudden onset of new health challenges. This lack of preparation often leaves caregivers feeling overwhelmed, under-equipped, and burned out.The Pitfalls of Delaying PreparationMany families delay planning for their parents aging, assuming they'll manage when the time comes. Others might avoid the topic altogether because it can be emotionally challenging to discuss. Unfortunately, this wait-and-see approach often leads to caregiver burnout and strained relationships, as families are forced to juggle urgent medical needs, emotional stress, and time-consuming responsibilities without a solid plan in place.If youre struggling to discuss getting help with your aging parent, check out some of our tips here. Remember, asking for assistance during the aging process doesnt mean youre powerless!How Naborforce Can Help You Plan AheadRather than waiting for a health crisis, Naborforce provides consistent support for families throughout the aging journey. As seniors age, they often need help with simple taskslike grocery shopping or getting to appointmentsthat can quickly become time-consuming for loved ones. With Naborforce, you can arrange for a friendly Nabor to assist, allowing your parent to stay independent longer while giving you peace of mind.By building a relationship with Naborforce early, your parent will already be accustomed to receiving help. When aging accelerates, youll have a reliable support system in placesomeone familiar with your parent who can step in to help with everyday tasks. This helps ease your parents transition while giving you the time and space to focus on your own responsibilities.The Importance of Having a PlanThe key to supporting your parent as they age is to start planning before their needs become urgent. With Naborforce, you can establish a flexible plan that evolves as your parents needs change. Whether its an occasional visit or regular check-ins, Naborforce can tailor its services to fit your schedule and your parents preferences. By starting early, you ensure that you and your parent have the right support in place before bigger challenges arise.Naborforce is just one of many resources available to help with the aging process. Other tools include financial planning, setting up a trust and estate plan, maintaining a healthy lifestyle, using technology designed for senior living, and understanding the care continuum.Getting Started with NaborforceIts easy to get started with Naborforce. You can customize the level of support you need, from occasional assistance to more regular visits. Take the proactive step of setting up care before it becomes urgent, so your parent can stay comfortable, independent, and supported as they age.A Helping Hand for Older Adults - Naborforce 844-696-2267 Were Naborforce. We match older adults who need a little help and kindness with Nabors eager to provide it, strengthening the communities we serve.Everyone can use a little help. Help around the house. Help running errands. Help preparing a meal. Help by just being a friend! Our goal is to promote joyous and independent aging and living while providing peace of mind to families.
When Its Time for Senior Living, We Help You Find the Perfect Community for You! With over 900 senior living options in the DFW area, Ruby Care helps families make informed decisions. We provide complimentary assistance to find the most appropriate living community including Indepenent Living, Assisted Living, Residential Care Homes, Memory Care & Nursing Home. Our ExperienceIf you've been searching for senior housing for you or your loved one, you know there are hundreds of senior living communities in the Dallas/Fort Worth area. Let Ruby Care help you. We do the legwork at no cost to you and help you find the place that is perfect for you and your family.Our professionals are well-known in the communities they serve. In order to help you best, they network with health care providers, such as home health, hospice, rehabilitation facilities, hospitals, physicians and other senior service providers.Collectively, our team has over 50 years of experience in healthcare and we are trained to listen to your needs so that we can work to find the best options for you...at no cost! Why Us?We know this can be a stressful time for you as you choose your next home. When you work with us, you will be assigned a Senior Living Advisor (SLA) who knows the community and has first-hand knowledge of the communities you are considering. Your SLA will meet with you in person and will listen to your wishes, wants and needs in order to help guide your next steps. Your SLA will also help you with senior living community tours and preparation to help guide you through the selection process. We serve as your advocate and help make this a smooth, seamless transition. Once you have selected a community, we continue to follow up for at least the next thirty days to make sure things are going well and there are no outstanding concerns. possibilities. placement. peace of mind.