For more information about the author, click to view their website: ADPA Information and Referal Center
A diagnosis of Parkinson’s is a life-changing moment. However,
with advances in treatment and the right support there is much an individual
with Parkinson’s disease can do to live every day to the fullest. Here in
Massachusetts, we have many resources to help navigate the PD diagnosis and get
the information you need.
The American
Parkinson Disease Association (APDA) is the country’s largest grassroots
organization serving those touched by Parkinson’s disease. What makes APDA
unique is that we are in cities, towns,
and communities across the U.S. In Massachusetts there is a APDA Chapter,
Information & Referral Center, Centers for Advanced Research, Specialized
programs in Young Onset, Veterans and Rehabilitation Resources, and countless
support groups, we are able to quickly reach people and connect them to
resources that will provide the best outcomes as they navigate Parkinson’s
disease.
Parkinson’s
disease is a progressive neurological movement disorder. Over one million
people live with Parkinson’s. The results of a new study show that the
incidence of Parkinson’s disease (PD), or the number of new cases diagnosed per
year, is 50% higher than previously estimated. Instead of past estimates of
60,000 new cases of PD diagnosed per year, the new study determined that there
are approximately 90,000 new cases of PD diagnosed in the US per year. It can begin with a tremor, difficulty writing, stooped posture,
stiff muscles, or slightly slurred speech; symptoms are different for every person. If
you have questions reach out to your doctor.
APDA’s
mission is to provide information, education, and support to all impacted by the
disease and to fund scientific research into the causes, prevention, treatments
and ultimately the cure. We take pride
in the fact that we are in your community and many others across the country
serving people with Parkinson’s disease to provide support from the day of
diagnosis throughout the Parkinson journey. We have also been a funding
partner in most major Parkinson’s disease discoveries, and we will continue to
fund research initiatives that can stop the devastation of living with this
disabling disease.
The
last few years have been especially challenging for the PD community and APDA
has worked hard to develop programs and services that the community can access
from the safety and comfort of their home. APDA has developed a library of
virtual education topics, virtual support groups, caregiver programs and
continues to operate the incredibly valuable APDA information and referral line
that provides expert guidance without charge. APDA is here to help with the
following programs some in person and others virtually:
·
Health and wellness initiatives delivering
programs to help people maintain independence and optimism starting at diagnosis.
·
Education and support programs connecting
people with Parkinson’s in local communities.
·
Expedited and innovative research to
develop promising clinical approaches and better outcomes and funding the next generation of scientists dedicated
to finding new treatments and a cure.
For
information about Massachusetts programs or to become a volunteer contact: APDA Information & Referral Center
at Boston University School of Medicine Boston, MA 02118 and at 617-638-8466 or
800-651-8466 apdama@apdaparkinson.org & www.apdama.org This article was submitted by Bill Patjane- Regional Director of the APDA- Northeast bpatjane@apdaparkinson.org (617) 352-9330
Managing Parkinsons Symptoms at HomeThis article is part of The Parkinsons Care Compass, an educational series from At Your Home Caregiving of Texas. Managing Parkinsons symptoms at home takes preparation, compassion, and the right support and we are honored to guide families every step of the way.Managing Parkinsons disease at home requires a careful balance of patience, knowledge, and proactive strategies. Parkinsons affects not only mobility but also speech, mood, memory, and overall daily living activities. As symptoms progress, the home environment and caregiving approach must evolve to meet new challenges and ensure that the individuals dignity, comfort, and independence are preserved.At Your Home Caregiving of Texas specializes in providing customized home caregiving solutions that empower families to manage Parkinsons symptoms effectively while preserving the quality of life for their loved ones.The Importance of a Symptom Management PlanParkinsons symptoms are highly individual no two people experience the disease in exactly the same way. Creating a personalized symptom management plan is essential to addressing the patients physical, cognitive, and emotional needs.A well-rounded plan typically addresses: Mobility and fall prevention Medication management Cognitive and emotional changes Speech and swallowing difficulties Nutrition and hydration Daily routines and activities for mental and physical engagement At Your Home Caregiving of Texas helps families design care plans that respond to their loved ones unique symptoms, preferences, and goals.Mobility Challenges and Fall PreventionMobility issues are among the most recognizable symptoms of Parkinsons disease. Slowed movements (bradykinesia), stiffness, and balance problems increase the risk of falls and injuries.Strategies for Safer Mobility: Home Modifications: Remove trip hazards (like loose rugs), install grab bars in bathrooms, and ensure adequate lighting throughout the home. Use of Assistive Devices: Canes, walkers, and specially designed furniture can aid in safe movement. Clear Walking Paths: Maintain wide, unobstructed paths through frequently used areas like bedrooms, bathrooms, and kitchens. Encouraging Movement Techniques: Techniques like "freezing" drills and cueing strategies (using rhythmic music or counting steps) can help when patients feel stuck or rigid. At Your Home Caregiving of Texas caregivers are trained in fall prevention and can assist clients safely with standing, walking, and transferring from beds or chairs.Medication Management at HomeStrict adherence to medication schedules is critical in Parkinsons care. Medications like levodopa/carbidopa must be taken precisely to control motor symptoms and prevent sudden worsening.Medication Management Tips: Use pill organizers clearly labelled with times of day. Set alarms or use medication reminder apps. Keep a written medication schedule visible for caregivers and family members. Monitor for side effects like dizziness, hallucinations, or sudden involuntary movements (dyskinesias). Our professional caregivers ensure that medication regimens are followed accurately, reducing the risk of complications and hospitalizations.Addressing Cognitive and Emotional ChangesCognitive changes such as memory loss, slowed thinking, and difficulty concentrating are common in Parkinsons, especially as the disease progresses. Emotional changes, including depression and anxiety, may also develop.Support Strategies: Cognitive Engagement: Activities like puzzles, reading, and conversation help keep the mind active. Routine and Structure: A consistent daily routine minimizes confusion and frustration. Patience and Understanding: Allow extra time for decision-making and avoid rushing tasks. Mental Health Support: Professional counselling and medication management can help address depression and anxiety. At Your Home Caregiving of Texas, we prioritize emotional support alongside physical care, creating a nurturing environment for both the patient and their family.Managing Speech and Swallowing DifficultiesSpeech difficulties (dysarthria) and swallowing problems (dysphagia) are common but manageable aspects of Parkinsons.Tips for Speech Challenges: Encourage slow, deliberate speech. Use voice exercises, sometimes under the guidance of a speech therapist. Practice reading aloud or singing to strengthen vocal muscles. Tips for Swallowing Challenges: Consult a speech-language pathologist for swallowing assessments. Offer smaller, more frequent meals. Use thickened liquids if needed to prevent choking. Monitor for signs of aspiration, such as coughing during meals. Our caregivers are trained to notice changes in speech and swallowing and can assist with appropriate interventions to maintain safety and nutrition.Nutrition, Hydration, and ExerciseProper nutrition and hydration are vital for maintaining strength, energy, and medication effectiveness. Constipation, a common non-motor symptom of Parkinsons, can often be alleviated through diet.Key Nutrition Strategies: Focus on fiber-rich foods (vegetables, fruits, whole grains). Maintain hydration offer water throughout the day. Time protein intake carefully, as large amounts of protein can interfere with medication absorption (consult with a physician or dietitian). Incorporate antioxidant-rich foods to support brain health. The Role of ExerciseExercise is one of the most powerful non-medication tools for managing Parkinsons symptoms. Regular movement improves: Balance and gait Flexibility and strength Mood and cognitive function Simple exercises like walking, gentle stretching, yoga, and chair exercises can make a significant difference. Specialized programs like Parkinsons-specific boxing or dance classes can also offer tremendous benefits.At Your Home Caregiving of Texas, our caregivers incorporate gentle movement and stretching routines into the daily care plan, promoting physical vitality and emotional well-being.Creating an Emotionally Supportive Home EnvironmentBeyond managing symptoms, creating a positive and emotionally supportive home environment is essential.Key Elements: Respect and Dignity: Involve the patient in decision-making whenever possible. Companionship: Regular conversation, laughter, and shared activities prevent isolation. Patience and Flexibility: Parkinsons symptoms can vary from day to day caregivers must adapt with grace and understanding. Empowerment: Focus on what the patient can do, not what they cant. Celebrating small victories boosts confidence. Families often find it overwhelming to balance these emotional needs with the physical demands of caregiving. Thats where trusted professional caregivers make a tremendous difference.How At Your Home Caregiving of Texas Supports In-Home Parkinsons CareOur specialized Parkinsons care services are designed to ease the burden on families while maximizing the comfort and independence of the individual living with the disease.Our Parkinsons Home Care Includes: Assistance with personal care, mobility, and safety Medication management and reminders Nutrition support and meal preparation Exercise encouragement and participation Cognitive stimulation activities Emotional support and companionship Home safety evaluations and fall prevention Coordination with therapists, physicians, and family members Every care plan is customized, compassionate, and flexible evolving as the patients needs change over time.Final ThoughtsManaging Parkinsons symptoms at home is both an art and a science. It requires deep understanding, careful planning, and a loving, patient approach. With the right tools, support systems, and caregiving partnerships, families can help their loved ones live meaningful, dignified lives at home for as long as possible.At Your Home Caregiving of Texas is honored to be a trusted partner in this journey. Our expertise in Parkinsons care, our compassionate caregivers, and our commitment to excellence ensure that families receive the support they need, every step of the way.If you are caring for a loved one with Parkinsons disease, reach out to us today. Together, we can build a personalized care plan that brings peace of mind, safety, and hope into your home. At Your Home Caregiving of Texas is committed to helping families manage Parkinsons symptoms at home with expertise, compassion, and customized support. To learn more about creating a safe, empowering home environment for your loved one, explore the Parkinsons Care Compass series or contact us today. Together, we can make every day safer, stronger, and filled with possibility.Contact us at 469-830-8414
When a loved one is diagnosed with Parkinsons disease or Alzheimers, it can feel overwhelming. These progressive neurological conditions impact not only the individual but also their families and caregivers. Accessing the right support early on can make a significant difference in managing symptoms, maintaining independence, and improving quality of life. For residents of Utah, there are a range of Parkinsons and Alzheimers support resources availabletailored to meet the unique needs of those living in the state.Understanding the Importance of Support ServicesSupport for individuals with Parkinsons or Alzheimers spans far beyond medical treatment. It includes emotional support, educational resources, caregiver training, memory care, and access to specialized programs. Early planning allows families to make informed decisions and adapt to the evolving challenges of these diseases.In Utah, families benefit from a combination of statewide programs, nonprofit organizations, and local community services that aim to assist with both physical and emotional care needs. Key Types of Parkinsons and Alzheimers Support in Utah1. Caregiver Support Groups and CounselingCaregivers often face emotional fatigue, burnout, and isolation. Support groupsboth in-person and virtualoffer a safe space to share experiences, learn from others, and gain practical advice. Many Utah-based organizations also offer one-on-one counseling and educational seminars to help families manage day-to-day care.2. Memory Care and Cognitive TherapyMemory care services are specifically designed for individuals in the later stages of Alzheimers and Parkinsons with dementia. These services are typically provided in a secure residential setting with trained staff who specialize in cognitive health. In Utah, families can explore a range of memory care facilities tailored to various stages of cognitive decline.3. In-Home Support and Respite CareFor those who prefer to age at home, Utah offers in-home support services such as personal care aides, medication management, and home safety evaluations. Respite care is also available to give family caregivers a much-needed break while ensuring their loved one is still receiving high-quality care.4. Therapies and Wellness ProgramsOccupational, physical, and speech therapies can help manage symptoms of Parkinsons and Alzheimers. Utah is home to several wellness centers and rehabilitation facilities that offer tailored therapy programs to maintain mobility and communication skills. Finding Parkinsons and Alzheimers Support in UtahOne of the most effective ways to navigate the landscape of senior resources is through trusted local directories and platforms. Seniors Blue Book provides a comprehensive listing of senior resources in Utah, including specialized support services for Parkinsons and Alzheimers care. Whether youre looking for caregiver assistance, memory care options, or medical support programs, you can find vetted and updated listings all in one place.To specifically view resources related to Alzheimers and Parkinsons, you can explore the Parkinsons / Alzheimers Support section for Utah. Tips for Choosing the Right Support ServiceCheck qualifications: Ensure staff are trained in dementia and Parkinsons care.Consider location: Find services that are accessible to your home or community.Ask about personalization: Good programs offer individualized care plans.Review feedback: Look at family reviews or testimonials to assess the quality of care. Final Thoughts Navigating the challenges of Parkinsons and Alzheimers can be daunting, but you dont have to do it alone. Utah offers a wealth of support services that are compassionate, specialized, and dedicated to preserving the dignity and comfort of those affected. By taking proactive steps and using trusted local resources, families can feel empowered to face these conditions with confidence and care.
Caring for a loved one with Parkinsons disease or Alzheimers disease presents unique challenges that can feel overwhelming without the right guidance and resources. In Southern Colorado, a variety of services and support systems are available to help families manage care, find connection, and maintain quality of life through each stage of these conditions.Whether youre a caregiver, a family member, or someone recently diagnosed, this blog will walk you through essential information about Parkinsons and Alzheimers support available in the Southern Colorado region. Understanding the ConditionsBoth Parkinsons and Alzheimers are progressive neurological diseases, but they affect individuals in different ways:Parkinsons disease primarily impacts motor skills, leading to tremors, stiffness, and slowed movement. Cognitive changes can also occur in later stages.Alzheimers disease, a type of dementia, mainly affects memory and cognitive function, gradually impairing the ability to perform daily tasks and communicate effectively.Despite their differences, both conditions require long-term care planning, emotional support, and medical managementideally with guidance from professionals who understand their complexities. Local Support Makes a DifferenceLiving in Southern Colorado offers unique advantages for individuals and families dealing with Parkinsons and Alzheimers. This region is home to a network of nonprofit organizations, healthcare providers, and senior-focused services dedicated to offering support and improving outcomes.Families here can find a strong sense of community and easier access to educational resources, support groups, respite care, and specialized therapies. Browse available Senior Resources in Southern Colorado View local listings for Parkinsons / Alzheimers Support Types of Parkinsons and Alzheimers Support Services in Southern Colorado1. Support Groups and CounselingEmotional support is a critical part of the care journeyfor both individuals and caregivers. Many communities in Southern Colorado host regular support group meetings, either in person or virtually, that offer a safe space for sharing experiences and receiving encouragement.Professional counseling services are also available to help navigate the mental and emotional toll these diagnoses can bring.2. Specialized TherapiesSouthern Colorado providers offer access to specialized therapies that can slow disease progression and improve quality of life:Physical therapy for mobility and strengthOccupational therapy to support daily living tasksSpeech-language therapy for communication and swallowing issuesCognitive stimulation therapy for those living with Alzheimers3. Memory Care and Day ProgramsThere are a variety of day programs and memory care communities in Southern Colorado that offer structured environments with trained staff, social interaction, and safety features designed specifically for those with dementia or Parkinsons-related cognitive changes.4. Respite Care and Caregiver SupportCaregivers often need a break to recharge or attend to personal needs. Respite care servicesranging from a few hours to several dayscan provide much-needed relief. Additionally, caregiver education programs help families better understand the diseases and how to offer compassionate, effective care at home. Tips for Finding the Right SupportWhen exploring local support options, consider the following:What stage of the disease are you or your loved one currently in?Do you need in-home support, community programs, or residential care?Are there cultural or language considerations?What are your transportation and accessibility needs?Being honest about your familys specific situation will help you find the most suitable services in Southern Colorado. Final ThoughtsManaging the effects of Parkinsons or Alzheimers disease is a journeyone that no one should take alone. In Southern Colorado, there is a broad range of support services designed to empower individuals and families with knowledge, tools, and a compassionate network of care. At Seniors Blue Book, we are proud to provide a neutral, comprehensive resource where you can find local programs and connect with professionals who understand your needs.
The Massachusetts Chapter of the American Parkinson Disease Association (APDA) works tirelessly every day to support and empower those in our community who are impacted by Parkinsons disease (PD). We promote hope and optimism through innovative services, programs, education, and support, while also funding vital research. We are here to help you and your loved ones every step of the way.Services we provide:Educational programs and resourcesSupport groupsExercise and wellness classesInformation and referralsFinancial support programsand much moreAPDA Information & Referral Center at Boston University Medical CenterThe Information & Referral Center, located at Boston University Medical Center, was established by the American Parkinson Disease Association (APDA) in 1980. This Center serves as a resource for those with Parkinsons disease and their loved ones as well as healthcare providers. Patients, caregivers, healthcare providers and the greater community can receive support regardless of their affiliation with Boston University Medical Center or any other medical facility.Services provided by the APDA Information & Referral Center include:Telephone helpline (617-638-8466 or 800-651-8466)Comprehensive resource referral networkSupport group assistancePublicationsEducational symposiaCounseling and guidanceInformation updates to those on the Centers mailing list through newsletters and other special event announcementsTraining and support for healthcare professionalsOther services provided by the Information & Referral CenterImplementation of regional conferencesParticipation in community awareness and public relations activitiesMonthly electronic newsletter