For more information about the author, click to view their website: ADPA Information and Referal Center
A diagnosis of Parkinson’s is a life-changing moment. However,
with advances in treatment and the right support there is much an individual
with Parkinson’s disease can do to live every day to the fullest. Here in
Massachusetts, we have many resources to help navigate the PD diagnosis and get
the information you need.
The American
Parkinson Disease Association (APDA) is the country’s largest grassroots
organization serving those touched by Parkinson’s disease. What makes APDA
unique is that we are in cities, towns,
and communities across the U.S. In Massachusetts there is a APDA Chapter,
Information & Referral Center, Centers for Advanced Research, Specialized
programs in Young Onset, Veterans and Rehabilitation Resources, and countless
support groups, we are able to quickly reach people and connect them to
resources that will provide the best outcomes as they navigate Parkinson’s
disease.
Parkinson’s
disease is a progressive neurological movement disorder. Over one million
people live with Parkinson’s. The results of a new study show that the
incidence of Parkinson’s disease (PD), or the number of new cases diagnosed per
year, is 50% higher than previously estimated. Instead of past estimates of
60,000 new cases of PD diagnosed per year, the new study determined that there
are approximately 90,000 new cases of PD diagnosed in the US per year. It can begin with a tremor, difficulty writing, stooped posture,
stiff muscles, or slightly slurred speech; symptoms are different for every person. If
you have questions reach out to your doctor.
APDA’s
mission is to provide information, education, and support to all impacted by the
disease and to fund scientific research into the causes, prevention, treatments
and ultimately the cure. We take pride
in the fact that we are in your community and many others across the country
serving people with Parkinson’s disease to provide support from the day of
diagnosis throughout the Parkinson journey. We have also been a funding
partner in most major Parkinson’s disease discoveries, and we will continue to
fund research initiatives that can stop the devastation of living with this
disabling disease.
The
last few years have been especially challenging for the PD community and APDA
has worked hard to develop programs and services that the community can access
from the safety and comfort of their home. APDA has developed a library of
virtual education topics, virtual support groups, caregiver programs and
continues to operate the incredibly valuable APDA information and referral line
that provides expert guidance without charge. APDA is here to help with the
following programs some in person and others virtually:
·
Health and wellness initiatives delivering
programs to help people maintain independence and optimism starting at diagnosis.
·
Education and support programs connecting
people with Parkinson’s in local communities.
·
Expedited and innovative research to
develop promising clinical approaches and better outcomes and funding the next generation of scientists dedicated
to finding new treatments and a cure.
For
information about Massachusetts programs or to become a volunteer contact: APDA Information & Referral Center
at Boston University School of Medicine Boston, MA 02118 and at 617-638-8466 or
800-651-8466 apdama@apdaparkinson.org & www.apdama.org This article was submitted by Bill Patjane- Regional Director of the APDA- Northeast bpatjane@apdaparkinson.org (617) 352-9330
Supporting Seniors with Parkinson's and Alzheimer's Disease in Southwest FloridaLiving with Parkinson's disease or Alzheimer's disease can present unique challenges for individuals and their families. In Manatee, Sarasota, and Charlotte County, Florida, there is a growing need for specialized care, support, and resources that can help those affected by these conditions live with dignity and comfort. Whether you are looking for assistance with daily activities, care options, or support groups, its crucial to find the right services to manage these conditions effectively.This blog aims to provide essential information about Parkinson's and Alzheimer's support available in the area, including care services, local resources, and helpful tips for families navigating these diseases. Understanding Parkinson's Disease and Alzheimer's DiseaseBoth Parkinson's disease and Alzheimer's disease are neurological conditions that primarily affect older adults, though they can also impact younger individuals. While both diseases can cause significant challenges for those diagnosed and their families, understanding their symptoms and how to manage them is the first step toward providing support.Parkinson's disease is a progressive disorder of the nervous system that primarily affects movement. Symptoms include tremors, stiffness, difficulty with balance, and coordination problems.Alzheimer's disease, the most common cause of dementia, affects memory, thinking, and behavior. Early symptoms may include forgetfulness, confusion, difficulty with speech, and changes in mood and personality.Both diseases can lead to cognitive and physical decline, making it essential for families to seek specialized care and support systems to ensure their loved ones safety and well-being. Types of Support for Parkinsons and Alzheimers Disease in Southwest FloridaIn Manatee, Sarasota, and Charlotte County, families have access to a variety of support options for those living with Parkinsons disease and Alzheimers disease. The region offers specialized services that focus on improving quality of life, enhancing independence, and providing critical emotional support for both individuals with these conditions and their caregivers.1. Memory Care FacilitiesMemory care facilities are designed specifically for individuals with Alzheimers disease and other forms of dementia. These facilities provide 24/7 care and supervision in a secure environment, ensuring that residents are safe and supported as they navigate the challenges of memory loss. Many facilities also offer tailored programs to stimulate cognitive function and provide social engagement for residents.2. In-Home Care ServicesFor those who wish to stay in their homes, in-home care services are available in Manatee, Sarasota, and Charlotte Counties. These services can include assistance with daily tasks such as dressing, bathing, meal preparation, medication management, and personal care. Home health aides trained in caring for individuals with Parkinsons or Alzheimers can provide the specialized support needed for these conditions, allowing loved ones to remain in a familiar environment.3. Respite Care for CaregiversCaring for someone with Parkinsons disease or Alzheimers disease can be physically and emotionally taxing. Respite care services provide temporary relief for family caregivers by offering short-term care for their loved ones. This allows caregivers to take a break, attend to personal needs, and recharge while ensuring that their loved ones continue to receive high-quality care.4. Support Groups and Community ResourcesBoth Parkinson's and Alzheimer's support groups are available in Sarasota, Manatee, and Charlotte County. These groups provide a safe space for families and caregivers to connect with others who are facing similar challenges. Participants can share their experiences, receive emotional support, and learn coping strategies for managing the difficulties associated with these diseases.In addition, local nonprofit organizations and advocacy groups offer valuable resources and educational programs to help individuals and families navigate the journey of care. Finding Parkinsons and Alzheimers Support Services in Southwest FloridaWhen searching for Parkinson's and Alzheimer's support services in Manatee, Sarasota, and Charlotte County, its important to consider several factors to ensure youre selecting the right fit for your loved ones needs. Start by looking for providers who specialize in neurological conditions, as they will have the expertise required to manage the unique symptoms of these diseases.To explore local resources and find the right support services for your loved one, you can browse the Seniors Blue Book directory, which features a comprehensive list of memory care facilities, home health care providers, and respite services in the region. Visit the following links for more information: Parkinson's / Alzheimer's Support Services in Southwest Florida Memory Care Listings in Sarasota, Manatee, and Charlotte Counties Additional Tips for Families and CaregiversCaring for a loved one with Parkinsons or Alzheimers can be challenging, but there are several strategies that can make the experience more manageable:Create a structured routine: Both Parkinson's and Alzheimer's patients benefit from a predictable schedule that helps reduce confusion and anxiety.Stay connected: Engaging with others is essential for emotional well-being. Encourage participation in social activities and maintain regular communication with family and friends.Focus on safety: Make necessary adjustments to the home to reduce the risk of falls, confusion, or wandering. Secure doors and remove potential hazards.Take care of yourself: Caregiving can be exhausting, so it's essential to prioritize your own well-being. Seek respite care, take breaks, and lean on support groups to avoid caregiver burnout. ConclusionManaging Parkinson's disease and Alzheimer's disease can be overwhelming, but with the right support and resources, families can provide the care and comfort their loved ones need. In Manatee, Sarasota, and Charlotte County, Florida, there are numerous services available, from memory care facilities to in-home care and support groups, all designed to help seniors live with dignity and enhance their quality of life. To begin your search for Parkinsons and Alzheimers support services in Southwest Florida, visit the Seniors Blue Book directory and discover a range of resources available to you and your loved one.
As the population of Dallas continues to grow and age, the need for reliable, compassionate support services for individuals living with Parkinsons disease and Alzheimers disease is more critical than ever. These progressive neurological conditions can dramatically affect a person's memory, mobility, and independence creating a ripple effect that impacts entire families. Finding the right Parkinsons / Alzheimers support in Dallas can make a meaningful difference in quality of life for both individuals and their caregivers.In this blog, well explore what support services are available in Dallas, how to choose the right care, and where to find trusted local resources all optimized to help families navigate this journey with confidence. Understanding Parkinsons and Alzheimers Support NeedsBoth Parkinsons disease and Alzheimers disease are progressive, meaning symptoms worsen over time. While the diseases differ in cause and impact, the support needs often overlap.Parkinsons disease is a movement disorder that may also affect mood, memory, and cognition over time.Alzheimers disease is a type of dementia that primarily affects memory, thinking, and behavior.Support services are designed to address both physical and cognitive challenges, offering therapeutic care, emotional support, and educational resources. Local Parkinsons / Alzheimers Support Options in DallasDallas offers a wide range of resources to support individuals at every stage of Parkinsons and Alzheimers. Here are some of the most common types of local support:1. Specialized Support GroupsParticipating in a local support group can be incredibly valuable. These groups allow individuals and caregivers to connect with others who understand what theyre going through. In Dallas, many organizations host regular meetings, both in person and virtually, specifically tailored to Parkinsons or Alzheimers communities.2. In-Home Care ServicesMany families in Dallas turn to non-medical in-home care to assist with daily living activities. This might include help with bathing, dressing, medication reminders, meal prep, and companionship all crucial for individuals living with Parkinsons or Alzheimers.Explore in-home support resources in your area: Senior Resources in Dallas, TX3. Cognitive and Physical TherapyOccupational and physical therapists can help manage the motor symptoms of Parkinsons and cognitive decline in Alzheimers. Dallas is home to many outpatient centers and therapy practices that specialize in neurodegenerative conditions.4. Respite and Adult Day ProgramsCaregivers need care too. Adult day centers and respite services in Dallas allow caregivers to take a break while ensuring their loved one receives safe, professional support and stimulation.5. Education and CounselingUnderstanding the progression of these diseases and learning how to plan for the future is essential. Local nonprofits and advocacy organizations in Dallas frequently offer workshops, webinars, and counseling sessions to help families make informed decisions. Choosing the Right Parkinsons / Alzheimers Support in DallasWhen evaluating support options, consider the following:Stage of the disease Early-stage care will look different than care for individuals in later stages.Specialization Seek out programs that have experience specifically with Parkinsons or Alzheimers, as each condition requires unique care approaches.Flexibility and availability Ensure the services match your schedule and adapt as the disease progresses.Family involvement Some programs in Dallas offer caregiver training or include family members in care plans.For a curated list of Alzheimer's and Parkinsons resources in Dallas, explore: Dallas Parkinsons / Alzheimers Support Services The Importance of Early SupportThe earlier families seek support, the more tools and resources theyll have to manage challenges as they arise. Whether its assistance with memory care planning, mobility training, or navigating health systems, Dallas has a rich network of services that can help families feel more in control and less alone. Final Thoughts Parkinsons and Alzheimers disease may present daunting challenges, but families in Dallas, Texas have access to comprehensive, community-based support services that provide comfort, education, and hope. By knowing where to turn and what resources are available, families can better navigate the evolving needs of their loved ones with confidence and care.
Navigating the challenges of Parkinsons disease or Alzheimers can be overwhelming for both seniors and their families. These progressive neurological conditions often require ongoing care, support, and specialized resources. Fortunately, Colorado Springs is home to a wide range of services designed to meet the needs of individuals living with these conditions, as well as those caring for them.Whether you're in the early stages of a diagnosis or further along the journey, understanding the local support options available in Colorado Springs can make a significant difference in quality of life. Understanding Parkinsons and Alzheimers SupportWhile Parkinsons and Alzheimers affect the brain in different ways, both conditions present similar challenges in memory, movement, and daily living. Support can take many formsfrom in-home assistance and caregiver education to support groups, medical specialists, and community programs designed to improve well-being.In Colorado Springs, these support systems are not only growing but also becoming more integrated, helping families find hope and connection through difficult times. Local Resources for Parkinsons and Alzheimers in Colorado SpringsThe Colorado Springs area offers a variety of resources for those affected by Parkinsons and Alzheimers. These services can provide practical help, emotional support, and opportunities for engagement.1. Community Support Groups and EducationJoining a support group can be incredibly beneficial for both patients and caregivers. Many local organizations offer weekly or monthly meetings that provide emotional support, educational resources, and shared experiences. These groups often include:Parkinsons disease support groupsAlzheimers caregiver support circlesEarly-stage memory loss workshopsEducational seminars and webinars ExploreLocal Senior Resources in Colorado Springs 2. Respite and Caregiver Support ServicesCaregiving is a full-time responsibility that often leads to burnout without proper support. Fortunately, Colorado Springs has several programs aimed at giving caregivers the breaks they need, including:Adult day care programsShort-term respite careIn-home support servicesCaregiver training and counselingThese services are designed to improve both the caregiver's and the patients quality of life. 3. Specialized Medical and Memory CareColorado Springs is home to many healthcare professionals who specialize in neurological disorders. Memory clinics, geriatric specialists, neurologists, and home health providers collaborate to offer customized care plans for seniors with Parkinsons or Alzheimers.While Seniors Blue Book remains a neutral platform and doesnt promote specific for-profit businesses, you can find a variety of vetted care providers here:Browse Parkinsons / Alzheimers Support Services in Colorado Springs Why Localized Support MattersEvery city has its own network of support, and Colorado Springs is uniquely equipped with a combination of compassionate professionals, innovative services, and a strong sense of community. From scenic outdoor spaces for gentle activity to senior centers that host memory-friendly events, the environment here contributes to a more holistic approach to care.Localized support also ensures:Easier access to appointments and programsFamiliar surroundings for seniors, which aids in memory retention and comfortFamily involvement and in-person check-insCommunity-building opportunities to reduce isolation Final Thoughts: Youre Not AloneReceiving a Parkinsons or Alzheimers diagnosis can be difficultbut having the right support can change everything. Whether youre a caregiver looking for relief or a senior in need of assistance, Colorado Springs offers the tools and compassion you need. Seniors Blue Book is here to help guide you through the options without bias. We offer a trusted directory of local services and support systems to help you find the right fit for your journey.
The Massachusetts Chapter of the American Parkinson Disease Association (APDA) works tirelessly every day to support and empower those in our community who are impacted by Parkinsons disease (PD). We promote hope and optimism through innovative services, programs, education, and support, while also funding vital research. We are here to help you and your loved ones every step of the way.Services we provide:Educational programs and resourcesSupport groupsExercise and wellness classesInformation and referralsFinancial support programsand much moreAPDA Information & Referral Center at Boston University Medical CenterThe Information & Referral Center, located at Boston University Medical Center, was established by the American Parkinson Disease Association (APDA) in 1980. This Center serves as a resource for those with Parkinsons disease and their loved ones as well as healthcare providers. Patients, caregivers, healthcare providers and the greater community can receive support regardless of their affiliation with Boston University Medical Center or any other medical facility.Services provided by the APDA Information & Referral Center include:Telephone helpline (617-638-8466 or 800-651-8466)Comprehensive resource referral networkSupport group assistancePublicationsEducational symposiaCounseling and guidanceInformation updates to those on the Centers mailing list through newsletters and other special event announcementsTraining and support for healthcare professionalsOther services provided by the Information & Referral CenterImplementation of regional conferencesParticipation in community awareness and public relations activitiesMonthly electronic newsletter