APDA Information and Referral Center Boston

A diagnosis of Parkinsons is a life-changing moment. However, with advances in treatment and the right support there is much an individual with Parkinsons disease can do to live every day to the fullest. Here in Massachusetts, we have many resources to help navigate the PD diagnosis and get the information you need. The American Parkinson Disease Association (APDA) is the countrys largest grassroots organization serving those touched by Parkinsons disease. What makes APDA unique is that we are in cities, towns, and communities across the U.S. In Massachusetts there is a APDA Chapter, Information & Referral Center, Centers for Advanced Research, Specialized programs in Young Onset, Veterans and Rehabilitation Resources, and countless support groups, we are able to quickly reach people and connect them to resources that will provide the best outcomes as they navigate Parkinsons disease.Parkinsons disease is a progressive neurological movement disorder. Over one million people live with Parkinsons. The results of a new study show that the incidence of Parkinsons disease (PD), or the number of new cases diagnosed per year, is 50% higher than previously estimated. Instead of past estimates of 60,000 new cases of PD diagnosed per year, the new study determined that there are approximately 90,000 new cases of PD diagnosed in the US per year. It can begin with a tremor, difficulty writing, stooped posture, stiff muscles, or slightly slurred speech; symptoms are different for every person. If you have questions reach out to your doctor. APDAs mission is to provide information, education, and support to all impacted by the disease and to fund scientific research into the causes, prevention, treatments and ultimately the cure.  We take pride in the fact that we are in your community and many others across the country serving people with Parkinsons disease to provide support from the day of diagnosis throughout the Parkinson journey. We have also been a funding partner in most major Parkinsons disease discoveries, and we will continue to fund research initiatives that can stop the devastation of living with this disabling disease.  The last few years have been especially challenging for the PD community and APDA has worked hard to develop programs and services that the community can access from the safety and comfort of their home. APDA has developed a library of virtual education topics, virtual support groups, caregiver programs and continues to operate the incredibly valuable APDA information and referral line that provides expert guidance without charge. APDA is here to help with the following programs some in person and others virtually:        Health and wellness initiatives delivering programs to help people maintain independence and optimism starting at diagnosis.        Education and support programs connecting people with Parkinsons in local communities.         Expedited and innovative research to develop promising clinical approaches and better outcomes and funding the next generation of scientists dedicated to finding new treatments and a cure. For information about Massachusetts programs or to become a volunteer contact: APDA Information & Referral Center at Boston University School of Medicine Boston, MA 02118 and at 617-638-8466 or 800-651-8466 apdama@apdaparkinson.org & www.apdama.org This article was submitted by Bill Patjane- Regional Director of the APDA- Northeast bpatjane@apdaparkinson.org (617) 352-9330