Dementia – A Message of Hope

Author

Cappella of Grand Junction

For more information about the author, click to view their website: Cappella of Grand Junction

Posted on

Mar 08, 2023

Book/Edition

Colorado - Western Slope

“Dementia doesn’t rob someone of their dignity, it’s our reaction to them that does.” – Teepa Snow

Like most people in the field of senior living, I’ve learned everything I know about dementia from other professionals and service providers. I recently attended a session at the LeadingAge PEAK conference that completely shifted my paradigms.

This session was different. It was taught by a different type of expert – a panel of individuals who have a diagnosis of, and are living with, dementia. It included advisory board members of the Dementia Action Alliance, an advocacy and education organization of people living with dementia, care partners, friends and dementia specialists.

Rather than speaking of decline and deficits and despair, these panelists spoke of hope and possibility. They shared a new paradigm in which people don’t just exist with dementia but truly live and craft new hopes and dreams for the future. They shared stories of the gifts that come with a dementia diagnosis such as heightened spirituality, closer connections to people and to nature, and a deeper enjoyment of life.

The panelists also shared stories of the devastating and dangerous impact of the stigma that surrounds dementia. From the moment a diagnosis is received, and a doctor says, “I’m sorry… go home and get your affairs in order,” our current framework is focused only the losses that come with dementia – an approach that serves to marginalize and ostracize those who are living with dementia and their families.

By fighting back against the stigma and shame that surrounds dementia, the panelists believe that we can reduce fear. And, with this new approach, people will be more likely to get an early diagnosis rather than hide their symptoms. This puts the person in the driver’s seat – in control of his or her own future. Rather than dreading the future and isolating him or herself, an individual can choose how to live life from that moment of diagnosis forward. He or she can learn to use technology like Amazon Alexa or a smartwatch to retain independence and plan what should happen when living independently is no longer an option. It’s time that the voices of those living with dementia are heard – we have much to learn.


Other Articles You May Like

In-Home Care Can Help Reduce Hospital Readmission

People over the age of 65 are more likely to be readmitted than younger patients, and readmission can be more serious for seniors.Readmission after an illness or injury is a serious health issue for seniors. However, it is important for seniors and their loved ones to remember that in many cases, readmission is avoidable and can be prevented with a thoughtful post-hospital care plan.Nearly one-fifth of all Medicare patients in the United States who are discharged from the hospital end up returning within 30 days.  There are many reasons seniors may need to be readmitted to the hospital, but healthcare agencies are focused on finding ways to reduce these numbers and educate patients about how to have a healthier recovery at home.For many seniors, this means having a quality caregiver that can help them overcome some of the main preventable causes for returning to the hospital. Consider the following:Medication is critical: Some seniors need assistance taking medication in the right amount on the correct schedule. When you consider that, on average, seniors with chronic conditions fill 50 different prescriptions annually, it is not difficult to imagine how someone could get confused when a new medication is added to their regimen. Caregivers can not only remind seniors to take medications as prescribed, but they can also help seniors keep a list of those medications and their dosages so the information is readily available for healthcare professionals. Managing medications is one of the best ways a caregiver can help seniors during their recovery.Follow up visits prevent readmission: A full two-thirds of patients readmitted to the hospital would have avoided that trip if they had seen their physicians within two weeks for follow up. The reasons for not following up vary but can include transportation difficulties and forgetting to make or keep appointments. Hospital staff can aid the senior by setting up appointments for the individual before discharge, but getting to the appointment can still be a challenge. In addition to a host of uplifting care services, caregivers can provide transportation to appointments and keep track of any post-care visits.Discharge plans only work when implemented properly: Having a discharge plan for the patient before he or she leaves the hospital can be crucial for recovery, but it can be difficult for seniors and their family members to focus on the plan during the stress of the illness and discharge. Caregivers can help the senior follow the instructions and will connect with family or other approved individuals when there are problems or change in condition during recovery. They can also help explain the information or ensure that the appropriate person is notified if the older individual has questions about his or her course of treatment. This takes the stress off the family and the patient so he or she can focus on recovery.Having a helping hand during recovery can ensure positive outcomes and a return to an active, engaged life. Family members, friends and neighbors are often willing to serve as a post-hospital recovery caregiver, but there is professional help available for those that dont have someone nearby to assist them. For long-term recovery, those who have the assistance of friends and family can benefit from a professional caregiver to provide respite care and support.Comfort Keepers Can HelpComfort Keepers caregivers can help with encouragement, support and assistance with daily living. And caregivers can encourage overall health through meal planning, grocery shopping, meal preparation and activities. Our custom care plans focus on physical and mental health and wellness activities. Our goal is to see that clients have the means to find the joy and happiness in each day, regardless of age or acuity.To learn more about our in-home care services, contact your local Comfort Keepers location today.ReferencesRelias. What you need to know about readmission among seniors. Web. 2016.American Hospital Association. Examining the drivers of readmissions and reducing unnecessary readmissions for better patient care 2011 AHA Policy Research. Web. 2011.Robert Wood Johnson Foundation. Ten things you should know about care transitions. Web. 2013. 

Do Therapy Dogs Help Alzheimer's Patients?

Visit any critical care unit, childrens hospital, or other specialty inpatient facility, and youll find a common feature: therapy dogs. For decades, healthcare practitioners have understood the surprisingly positive effects on patients of time spend with cute and cuddly dogs. Therapy dogs reduce stress, improve mood, and can help patients reframe their outlook on whatever condition ails them. The positive effects of patient interactions with therapy dogs are a well-documented fact of the medical world. Senior citizens with limited mobility and other health conditions also benefit from the companionship of dogs. Owning a pet reduces feelings of loneliness among seniors living at home or in a retirement facility, which in turn greatly reduces the risk of diseases associated with loneliness and isolation. Pets can also decrease the number of stress hormones in a persons blood, lower blood pressure, and contribute to a more positive outlook on life. Dogs and other pets, it seems, have tremendous healing powers!Since Alzheimers patients cannot adequately care for a pet, owning one is out of the question. Considering the nature of Alzheimers dementia, it is easy to assume that a loved one may not benefit from a pet since they will not remember the interaction. Researchers, convinced therapy dogs would have a positive effect on Alzheimers patients, put this question to the test: Do Therapy Dogs Help Alzheimers Dementia Patients?Short-Term Benefits of Therapy Dogs for Patients with Alzheimers Dementia.A study conducted in the early 2000s looked carefully at the subject of therapy dogs and Alzheimers dementia patients. They measured the incidence of behavioral disturbances among patients in a nursing home for a period of four weeks, then introduced therapy dogs. Their initial findings showed that the dogs helped to reduce behavioral disturbances in the short term, meaning they helped to immediately calm patients. The short-term effects proved that therapy dogs do have a positive effect on patients with Alzheimers disease, particularly in regards to anxiety, anger, and changes in behavior associated with the disease.Long-Term Benefits of Therapy Dogs for Patients with Alzheimers Dementia.The same study did not stop at the short-term effects of therapy dogs on Alzheimers patients. Previous assumptions suggested that since patients would not remember their encounters with the therapy dogs, the effects of spending time with them would vanish from one day to the next. Not true, the study authors found. Although most of the patients did not remember their interactions with the therapy dogs (some did), the behavioral disturbances noted in the four weeks prior to the study reduced. In fact, the longer and more frequently patients interacted with the therapy dogs, the less they exhibited behavioral disturbances.Therapy Dogs As A Long-Term Therapy.The study findings confirmed what clinicians suspected all along: dogs are an excellent long-term therapy for persons with Alzheimers dementia to reduce the incidence of behavioral disturbances. Therapy dogs also had the same effect on Alzheimers patients as they do on other kinds of patients, including reduced stress and anxiety, lower blood pressure, better appetite, and fewer feelings of loneliness. These effects continued to increase the longer and more frequently patients interacted with the dogs.What Makes Dogs Such Good Therapy?Dogs are wired to give unconditional love and devotion. They can provide physical and social contact where it is missing, and they are not picky. what sets dogs apart, particularly those trained as therapy dogs, is that they will approach anyone regardless of their physical or mental deterioration, and initiate contact. Patients can pet, hug, and cuddle dogs unlike any other kind of pet. These positive interactions provide a distraction to the other goings-on around them and provide relief for those suffering from sadness, anger, or angst.The Takeaway.Dogs have a tremendous healing power. While studies have focused specifically on Alzheimers dementia patients, their positive effects will benefit anyone suffering from general dementia. Families of patients will feel relief that their loved ones have fewer outbursts of anger, sadness, or angst. While dementia impairs memory, it does not interrupt the long-term benefits of regularly interacting with a therapy dog. In fact, the more they interact with a therapy dog, the fewer behavioral problems they exhibit.Contact us at Acti-Kare Responsive In-Home Care North Pittsburgh to learn more at 412-810-6595.

How Keeping a Journal Helps Dementia Caregivers

Caring for a loved one with dementia presents unique challenges that can be overwhelming. It means coping not just with the loved one's illness and the huge life changes that will come, but with the caregiver's own feelings and struggles too.  Keeping a detailed journal is an organized way to record the progress and effects of the patient's dementia helpful information for their doctors. But it can also provide emotional and psychological benefits for caregivers themselves. Whether you're caring for someone with dementia or another illness, here are some things to consider when keeping a journal.  What To Track in Your Journal  Why record what the dementia patient is experiencing? Two reasons: because it will help their doctors and because it will help the caregiver understand and adapt to the effects of the disease.   Daily activities and behaviors: Note any changes in mood, unusual behaviors, or shifts in routine. This can help identify triggers for agitation or anxiety and reveal patterns or changes over time.   Medications and side effects: Record the times and doses of medications. If their medications change, note any side effects or noticeable changes in the person's condition. This can be crucial for managing the drugs' effectiveness and any potential drug interactions.   Eating and drinking habits: What and how much is your loved one eating and drinking? Tracking this information can help prevent malnutrition and dehydration, which are common issues in people with dementia.   Physical health and symptoms: Record any physical symptoms, such as coughs, changes in mobility, or signs of discomfort. This information can be vital for detecting emerging health issues that may not be directly related to dementia.   Sleep patterns: How much and how well are they sleeping? Do they wake up during the night? Sleep disturbances can exacerbate the symptoms of dementia and affect the health of both the caregiver and the patient.   Falls: Research shows that falls are not only more common among people with dementia, but they can also accelerate cognitive decline. Details about any falls-where, when, and how they occurred-are important information for the doctors.  Journaling: A Safe Space and a Helpful Tool  Keeping a journal helps the caregiver process the complex emotions they're likely experiencing. A journal is a private, safe space where the caregiver can express frustrations, celebrate successes, and acknowledge hardships. Journaling can help them protect their mental health stability, which in turn can help them feel better able to support their loved one effectively.  A journal can also be a place for the caregiver to track the effectiveness of care strategies and treatments. For example, the caregiver may notice that the timing of dinner is causing their loved one distress. Their notes can help them adjust their caregiving as needed.  The caregiver may even decide to keep two separate journals-one for themselves and the other journal (or calendar) about their loved one's condition.  "There is something about recording what is happening to us and our emotional reactions that enables family caregivers to stand apart from the onrush of tasks and crises they're immersed in," said Barry J. Jacobs in an article for AARP. A caregiver himself, Jacobs noted that journaling can help the writer "feel more in control."  How the Journal Can Help Doctors  A detailed journal is a valuable resource during medical appointments. It provides data and examples that help doctors understand the patient's current state beyond what a memory recall or short visit can reveal. This is crucial in diagnosing issues, adjusting medications, or changing treatment plans.  Doctors rely on accurate, detailed information to make informed decisions about treatments and care strategies. For example, if the journal shows that the patient has fallen repeatedly, the doctor may use that information to assess the patient's need for mobility aids, physical therapy, or further neurological evaluation. The doctor may end up identifying a treatable condition, such as an inner ear disorder or vision problems.  Moreover, the journal can help identify early signs of complications or side effects of medications that the patient might not be able to express because of their cognitive condition. This helps the doctor make a change before the complications cause a potentially serious health issue.  Write for Them and for Yourself  Keeping a journal is a simple yet effective tool that can greatly improve the caregiving experience for those managing the care of someone with dementia. You'll help not just your loved one, but yourself as well. Do it in whatever way works best for you. "This is not a school assignment," Jacobs reminds other caregivers. "No one is grading you. Just empty the contents of your mind without judging yourself." If you have any questions, please call Right at Home at 970-494-1111.

Local Services By This Author

Cappella of Grand Junction

Memory Care 628 26 1/2 Road, Grand Junction, Colorado, 81506

At Cappella of Grand Junction, we carefully designed our Memory Support neighborhood to assist those living with Alzheimer's and dementia in a way that fosters individuality, dignity, a sense of value, and personal growth.  Honoring the person as an individual is our mission and focus.  We provide an environment where residents thrive, and families have peace of mind.  

Cappella of Grand Junction

Assisted Living 628 26 1/2 Road, Grand Junction, Colorado, 81506

At Cappella of Grand Junction our assisted living community offers the support to enable each person to live their life to the fullest. With just the right amount of assistance, residents can enjoy their day independently and in harmony with others, free from the chores and cares of household maintenance. Our lovely and lively community boasts 40 spacious studio, one-bedroom and two-bedroom apartment homes, plus a wealth of inviting common spaces, including a full-service salon, Grab and Go Bistro, Luxurious Spa and a wellness and therapy center.  Honoring Each Individual, Enriching Each Day at Cappella