A Parkinsons diagnosis is a life-changing event it
changes daily routines, long-term plans and can often become a job in itself to
navigate, but still, it is manageable. According to the Parkinsons
Foundation, nearly one million Americans are currently living with the
diagnosis, and as many of them can attest, its entirely possible to live full,
happy, healthy lives. While there are some extra hoops to jump through when
dealing with a Parkinsons diagnosis, family caregivers play an important role,
especially when understanding how to care for someone with Parkinsons disease.Below are some key takeaways to guide you in supporting a
loved one living with Parkinsons.Offering Emotional SupportBefore you offer hands-on assistance, offer emotional
support and use your loved ones feelings to gauge how much theyd like to be
helped.
Encourage,
dont nag. Instill confidence in your loved one by encouraging
them to continue their everyday routine post-diagnosis, but dont pester
them to do tasks that they feel averse to.
Be
observant, but not overbearing. Its okay to watch and see how
independent your loved one can be, but dont jump straight in and take
control of their daily lives.
Embrace
and normalize the diagnosis. Nearly one million other Americans
are dealing with similar circumstances. Remind your loved one that they
arent alone.
Offering Physical SupportThe level of physical help that you should offer is going to
be an evolving fine line. Its vital that you dont let a loved one feel robbed
of their independence, but its also important that they receive the physical
help they need. Start small with:
Involving
the person in your daily tasks. Invite them to come visit, go on
car rides, come grocery shopping, or even just watch TV.
Gently
encouraging everyday exercise. Try to find hobbies that can keep
them on their feet without making it feel like a doctors prescription.
Try gardening, daily walks or light workouts like swimming or yoga.
Managing
a healthy diet. Dont overlook what your loved one is putting
into their body. Suggest balanced meals with plenty of calcium to combat
fragile bones, fiber to minimize constipation and other necessary
nutrients.
As symptoms progress, your assistance will likely evolve to
tasks such as:
Helping
with household chores. It may fall on you to keep the house in
order with things like cooking, cleaning or staying on top of laundry. If
you notice the house in disarray, act without being asked.
Eliminate tripping hazards and move furniture to allow for easy
access.
Helping
with grooming and dressing. Your loved one will likely need help
with things like getting in and out of bed, getting in and out of the
shower, and putting on certain pieces of clothing. To minimize how much
help youll need to offer, consider clothes with Velcro or elastic
waistbands, buy shower stools, and keep in mind that stand-in showers are
much easier to navigate.
Offering Mental SupportWhile most mental impairments related to Parkinsons dont
manifest until later in the diagnosis, the earlier stages still come with
plenty of considerations that can leave your loved one feeling burnt out or
mentally exhausted. You can help to manage this by:Reminding them of medications. Its difficult to
memorize a new routine, especially when it involves specific dosages and
administration times. Gently remind or ask if theyre on top of their
medication. Offer to create a calendar for administration times on their phone
or make a note somewhere in the house, but again, dont be too overbearing.Attending their doctors appointments. Not only
will your loved ones appreciate you getting them to the doctor, but theyll
also be thankful for the mental load that your presence can alleviate. You can
be an extra set of ears to note what the doctor says, and you can relay this
information if your loved one forgets later on. Note the progression of their symptoms. If you
notice a new symptom for the first time, write it down. This can provide a
concrete timeline for you and your loved ones care team to work with.