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Dementia: Improving Communication with Improv | Overview is part of a six-part series. Dementia is a degenerative neurological condition that affects millions of people worldwide. As the disease progresses, individuals with dementia may experience difficulties with communication, including problems with memory, language, and understanding. This can make it challenging for caregivers and family members to connect with their loved ones and provide the best possible care. However, there is a promising solution to this challenge: improv. In this six-part series, we will explore how improvisational theater techniques can be used to improve communication and connection with individuals with dementia. By tapping into the power of improv, caregivers can learn how to communicate more effectively, build rapport, and create meaningful experiences with their loved ones.
Dementia is a debilitating condition that affects millions of people around the world. It is a progressive disease that affects memory, thinking, behavior, and the ability to perform daily tasks. As the disease progresses, individuals with dementia may have trouble communicating and may become withdrawn and isolated. However, with the right approach and support, individuals with dementia can still achieve good quality of life.
One approach to supporting individuals with dementia is to meet them where they are at. This means that care providers should strive to understand the individual's unique perspective, experiences, and needs. This approach can help to reduce frustration, confusion, and anxiety and promote a sense of well-being and connectedness.
To meet individuals with dementia where they are at, care providers can use a range of strategies. These may include:
Communication: Communication can be challenging for individuals with dementia. Care providers should use clear and simple language, speak slowly, and allow time for the individual to process information. They should also use non-verbal cues, such as facial expressions and gestures, to convey meaning.
Activities: Activities that are meaningful and engaging can help individuals with dementia to stay connected and maintain a sense of purpose. Care providers should focus on activities that the individual enjoys and are tailored to their abilities and interests.
Environment: The physical environment can have a significant impact on the well-being of individuals with dementia. Care providers should create an environment that is familiar and comfortable, with minimal distractions and noise.
Personalized care: Personalized care can help individuals with dementia to maintain a sense of identity and autonomy. Care providers should take the time to get to know the individual and their preferences and involve them in decision-making as much as possible.
Emotional support: Individuals with dementia may experience a range of emotions, including fear, anxiety, and frustration. Care providers should provide emotional support and validation, acknowledging the individual's feelings and concerns.
Meeting individuals with dementia where they are at requires a holistic and person-centered approach. By understanding the unique needs and experiences of the individual, care providers can support them to maintain a sense of dignity and quality of life, even as the disease progresses.
Communication is a complex process that involves sending and receiving messages, both verbal and nonverbal, between individuals. Effective communication requires the ability to understand and interpret messages, express oneself clearly, and respond appropriately to feedback. For people with dementia, communication can become more challenging as the disease progresses and affects their cognitive and language abilities.
Communication in people with dementia can be impaired due to a variety of factors, including memory loss, difficulty finding the right words, and impaired processing and comprehension of language. This can lead to frustration and anxiety for both the person with dementia and their caregivers. It is important to understand how communication can be affected by dementia and to develop strategies for effective communication.
It is also important to remember that communication is a two-way street, and caregivers and healthcare providers must also be good listeners. Active listening, which involves paying attention to the person with dementia, acknowledging their feelings, and responding appropriately, can help build trust and understanding.
Improved communication with individuals with advanced dementia can lead to several benefits, including better social interaction, reduced feelings of anxiety, and improved quality of life. It can also help caregivers better understand the needs and preferences of the person with dementia, resulting in more personalized care and enhanced well-being for both the caregiver and the person with dementia.
Several studies have explored the benefits of improving communication with individuals with advanced dementia. For example, a systematic review of communication interventions found that these interventions can lead to reduced agitation and aggression among people with dementia, as well as improved quality of life and social engagement (Van't Leven et al., 2013). Another study showed that individualized communication training for caregivers can lead to significant improvements in communication quality and overall well-being for both caregivers and individuals with dementia (Graff et al., 2006).
Moreover, incorporating improvisation techniques, such as mirroring, storytelling, and music, can be particularly beneficial in enhancing communication with individuals with advanced dementia. A randomized controlled trial of music therapy showed that it led to significant improvements in communication and social interaction among individuals with advanced dementia (Raglio et al., 2015). Another study showed that using storytelling and role-playing techniques can lead to significant improvements in communication and emotional well-being among individuals with advanced dementia (Hsu et al., 2018).
Improving communication with individuals with advanced dementia can lead to several benefits for both the person with dementia and their caregiver. Incorporating improvisation techniques can enhance the effectiveness of communication interventions and improve overall well-being.
The components of improv can be applied to dementia care to help improve communication, build trust, and enhance the overall care experience for both the caregiver and the person with dementia.
Components of improv for dementia care include:
Acceptance: Accepting and building on the ideas of others is a key component of improv. In dementia care, acceptance can involve acknowledging and validating the thoughts and feelings of individuals with dementia, even if they are not based in reality. This can help build trust and improve communication.
Listening: Active listening is essential in improv. In dementia care, listening involves paying attention to verbal and nonverbal cues, as well as being open to new ideas and adapting to the needs of the person with dementia.
Agreement: In improv, performers agree to the reality of the scene and build on it. In dementia care, agreement can involve finding common ground with the person with dementia and building on their ideas and interests.
Creativity: Improv is all about creativity and thinking outside the box. In dementia care, creativity can involve finding new ways to communicate, engage, and connect with the person with dementia.
Flexibility: Improv requires performers to be flexible and adapt to changing situations. In dementia care, flexibility can involve being open to new ideas and adjusting communication strategies as needed to accommodate the needs and abilities of the person with dementia.
Playfulness: Improv often involves a playful and lighthearted approach to communication. In dementia care, playfulness can involve using humor and creativity to make communication more enjoyable and engaging for the person with dementia.
Using improv techniques can help caregivers communicate more effectively with individuals with dementia by fostering flexibility, active listening, engagement, and humor. These techniques can help improve the quality of communication and enhance the overall care experience for both the caregiver and the individual with dementia.Improv can help communicate with someone who has dementia by:
Emphasizing flexibility: Improv involves being open and flexible to new ideas and situations. This approach can help caregivers communicate more effectively with individuals with dementia, who may have difficulty following a specific train of thought or conversation. By being flexible and open to new ideas, caregivers can adapt to the needs and abilities of the person with dementia, allowing for more successful communication.
Encouraging active listening: Improv requires active listening and responding to what is being said in the moment. This approach can help caregivers communicate more effectively with individuals with dementia, who may have difficulty following a conversation or articulating their thoughts. By actively listening and responding to the person with dementia, caregivers can help them feel heard and understood.
Fostering a positive and engaging environment: Improv involves creating a positive and engaging environment that encourages participation and creativity. This approach can help caregivers communicate more effectively with individuals with dementia, who may become easily disengaged or frustrated during communication. By creating a positive and engaging environment, caregivers can help individuals with dementia feel more comfortable and open to communication.
Using humor and playfulness: Improv often involves using humor and playfulness to communicate and connect with others. This approach can help caregivers communicate more effectively with individuals with dementia, who may respond well to humor and playfulness. By using humor and playfulness, caregivers can help lighten the mood and make communication more enjoyable and less stressful for everyone involved.
Improv Techniques
There are many improv techniques that can be used on a client with dementia. By incorporating these techniques into their care approach, caregivers can help improve communication, reduce stress, and enhance the overall care experience for the person with dementia.Here are a few examples:
Using improv techniques in caregiving can greatly enhance the caregiver's relationship with their loved one with dementia. By accepting and validating the individual's experience, caregivers can build trust, improve communication, and increase their loved one's sense of safety and comfort. Improv also allows for creative problem-solving and flexibility, which can be crucial in adapting to the individual's changing needs and abilities. Ultimately, incorporating improv as a form of communication can lead to a more positive, meaningful, and fulfilling relationship between the caregiver and their loved one with dementia.
To Receive Continuing Education Credit for Nursing, Texas Social Work, Texas Licensed Professional Councilor Click HERE.
Read all of the articles in this six-part series on Dementia: Improving Communication with Improv
Dementia: Improving Communication with Improv | Overview
Dementia: Improving Communication with Improv | "Yes and..." Technique
Dementia: Improving Communication with Improv | Mirroring Technique
Dementia: Improving Communication with Improv | Storytelling Technique
Dementia: Improving Communication with Improv | Role-playing Technique
Dementia: Improving Communication with Improv | Musical Improvisation technique
Author: Kathleen Warshawsky, BSN, RN | Publisher Seniors Blue Book Greater Dallas | https://www.linkedin.com/in/kathleenwbsnrn/
To Receive Continuing Education Credit for Nursing, Texas Social Work, Texas Licensed Professional Councilor email Kathleen@SeniorsBlueBook.com for the link.
References:
Alzheimer's Association. (2021). Communication and Alzheimer's. Retrieved from https://www.alz.org/help-support/caregiving/daily-care/communications
Goldsmith, L., & Goldsmith, J. (2019). Communication and dementia. American Family Physician, 99(11), 684-691.
Graff, M. J., Adang, E. M., Vernooij-Dassen, M. J., Dekker, J. H., Jönsson, L., Thijssen, M., ... & Rikkert, M. G. (2006). Community occupational therapy for older patients with dementia and their care givers: cost effectiveness study. BMJ, 333(7580), 1196.
Guzmán, A., & Hegarty, J. (2018). A systematic review of drama therapy interventions for dementia care. Aging & Mental Health, 22(10), 1309-1319.
Hsu, M. H., Flowerdew, R., Parker, M., Fachner, J., & Odell-Miller, H. (2018). A thematic analysis exploring group music psychotherapy for people with dementia in the UK. Journal of Applied Arts & Health, 9(1), 75-87.
Kales, H. C., Gitlin, L. N., & Lyketsos, C. G. (2015). Assessment and management of behavioral and psychological symptoms of dementia. BMJ (Clinical research ed.), 350, h369.
Raglio, A., Bellelli, G., Traficante, D., Gianotti, M., Ubezio, M. C., Villani, D., ... & Stramba-Badiale, M. (2015). Efficacy of music therapy in the treatment of behavioral and psychiatric symptoms of dementia. Alzheimer Disease and Associated Disorders, 29(2), 158-163.
Raglio, A., Gianotti, M., Manzoni, V., Bolis, S., Ubezio, M. C., Villani, D., & Stramba-Badiale, M. (2016). Effects of improvisational music therapy vs enhanced standard care on symptom severity among patients with Alzheimer disease: The IMT-ALZ randomized clinical trial. JAMA Neurology, 73(7), 797-805.
Van't Leven, N., Prick, A. E., Groenewoud, J. G., Roelofs, P. D., de Lange, J., Pot, A. M., & Van't Leven, N. (2013). Communication enhancement between dementia care professionals and dementia patients during daily care. Aging & Mental Health, 17(5), 555-568.
In health care settings, the body gets medical attention, but the mind and soul matter, too. Older adults in medical care face a battery of health questions, but too often the most consequential one goes unasked and unanswered: What does a good day look like for you today?Medicare requires people to receive a spiritual assessment within their first five days of admission into hospice. Many states allow a nurse to conduct the initial spiritual assessment, but I think it helps both the person and the health care provider for the assessment to be done with someone who has theological training. Many have been certified in clinical pastoral education, or CPE. Nurses can get so focused on the technical to-do lists of medical work the measurements, the tests, the drug regimens that it can be hard to make time for the issues that matter most to the living human, namely, their happiness, peace and contentment. As a spiritual care provider with 17 years in senior care facilities, and as a chaplain in the Army National Guard and Air Force National Guard, I have counseled hundreds of people in the final days of their lives. For older adults and their families, one of the most valuable resources is also little-known a Medicare option that provides spiritual counseling for people in hospice. Longing for ConversationToo often older adults in care are being talked at, not listened to. Many times, I've found that people in the last chapter of life want to discuss their path to the end more than their medical professionals and, especially, more than their loved ones. It often helps to have that discussion with a professional who is trained to hear them, and, if requested, to comfort and advise them. RecommendedOpinion: Why I Went on Hospice Even Though I'm Not Dying | Personal PerspectivesThe code of ethics for the leading chaplain and spiritual care associations all prohibit proselytizing. A spiritual care provider should be able to work with someone on their own terms, no matter their beliefs. The United States may be turning more secular, but the fact remains that older adults are the most faith-affiliated of any demographic age group.This initial spiritual meeting is likely to be about the basics: Is the person religious? What is their support system? Will a certain faith-based ritual bring meaning or comfort? Do they have a preferred faith leader? Or is a secular discussion a better fit for the person's beliefs?
Guardianship is a serious legal process that serves as a last resort for caring for an elderly parent who can no longer make sound decisions for themselves. It requires a court hearing and confirmation of incapacity by medical providers.What is Guardianship?Guardianship means an individual is appointed by the court to make medical decisions and manage daily care for an elderly parent. This typically occurs when an elderly parent:Is diagnosed with cognitive impairments like dementia or Alzheimer's diseaseHas suffered brain injuriesExperiences serious health conditions that impair decision-making abilitiesKey Considerations in GuardianshipEmotional ChallengesDeciding to pursue guardianship often involves mixed emotions. Adult children may feel uncomfortable, especially if family members disagree about the necessity of guardianship.Legal RequirementsTo establish guardianship, documentation must be submitted to the court that:Substantiates the degree of cognitive impairmentProvides evidence of poor decision-makingIncludes a medical assessment, potentially a neuropsychological evaluationTypes of GuardianshipGuardian ResponsibilitiesMake medical decisionsManage daily careAdvocate for the elderly parent's best interestsFollow the principle of substituted judgment (making decisions the parent would make)ConservatorshipIn most situations, a conservator is also appointed to manage money and property. This can be the same person as the guardian or a separate individual.Challenges of GuardianshipAdvocacy and Medical InteractionsGuardians must:Navigate complex healthcare systemsCommunicate with medical professionalsUnderstand and research medical conditionsMake thorough, prudent decisionsFamily DynamicsGuardianship can create:Potential conflicts between family membersDisagreements about care and spendingEmotional stress that may damage relationshipsState-Specific ConsiderationsGuardianship laws and terminology vary by state. Some states have:Different definitions of guardianshipVarying availability of professional guardiansUnique legal frameworks for elder careImportance of PreparationRecommended StepsHave early discussions about care preferencesDocument the elderly parent's wishesUnderstand the full scope of guardianship responsibilitiesSeek support and resources for caregiversAs the population ages and chronic diseases become more prevalent, understanding guardianship becomes increasingly important for families caring for elderly parents.
Check In on Your Loved One During the Holidays The holiday season is a time for family gatherings, traditions, and reconnecting with loved ones. Its a wonderful opportunity to catch up and celebrate, but its also the perfect chance to check in on elderly parents or relatives to ensure theyre doing well. Sometimes, these visits can provide insight into their health, well-being, and overall quality of life that you might not see from a distance.Here are some signs to look for during your visit: Changes in personal hygiene: Noticeable neglect of bathing, grooming, wearing clean clothes, or maintaining trimmed nails. Pay attention to mobility issues, recent falls, or unexplained bruising. Medication management: Look for missed doses, expired prescriptions, or general confusion about their medication routine. These are all signs they might need help managing their health. Living space upkeep: Take note of unkempt homes with piled laundry, misplaced items, spoiled food, or clutter that could pose a fall risk, like throw rugs or poorly placed cords. Emotional or cognitive changes: Watch for signs of depression, forgetfulness, confusion, loneliness, or isolation. These shifts can indicate underlying health issues. Financial management struggles: Keep an eye out for stacks of unopened mail, unpaid bills, or disorganized storage of important documents. Difficulty handling finances is a common red flag. Driving concerns: If theyre still driving, check their car for signs of accidents, such as scrapes or dents.What to Do if You Notice Changes If you spot signs of decline, here are steps you can take to address your concerns:1. Take notes: Write down your observations. Keeping a detailed list of your concerns will help when speaking with your loved one or their healthcare provider. 2. Start the conversation: Share your observations in a compassionate and nonjudgmental way. Use this as an opportunity to discuss their needs and explore support options, such as assistance with daily activities, companionship, or meal services. 3. Consult their doctor: Reach out to their primary care provider to share your concerns and learn about any recommendations. The doctor may already have insights into their health or suggest scheduling a physical or needs assessment. 4. Explore senior living options: If additional support seems necessary, consider visiting senior living communities to understand the available levels of care, such as independent living, assisted living, or memory care. Touring a community can help determine if its the right fit for your loved one.Tips for Having the Conversation Discussing a loved ones needs can be delicate. Here are some tips to make the conversation more effective and compassionate: Pick the right time: Choose a quiet, private moment to bring up your concerns. Avoid discussing sensitive topics during large family gatherings or high-stress situations. Be empathetic: Acknowledge their feelings and emphasize that you want to support them in maintaining their independence and quality of life. Involve them in decisions: Wherever possible, let them take an active role in deciding how to address their needs. This helps them feel respected and in control. Focus on solutions: Frame your concerns around finding practical ways to help, rather than simply pointing out problems.Why the Holidays Are a Perfect Time to Check In The holidays offer a rare opportunity to see your loved ones in person and observe any changes in their behavior, health, or environment. With everyone gathered together, its also easier to have collaborative conversations with other family members about how best to support them.By being proactive during your holiday visit, you can help ensure your loved one gets the care and support they need to stay happy and healthy. Whether that means arranging for extra assistance at home or exploring senior living options, taking action now can make a meaningful difference in their quality of life.
Dont Let a Stroke Ruin Your RetirementYour risk of stroke and cardiovascular disease increases as you age. But the good news is 80% of stroke and cardiovascular disease CAN be prevented.1 If you are age 50 or older, you should be screened.Often there arent any symptoms of a stroke before it occurs, in fact for 4 out of 5 people who have a stroke the first symptom of any illness is the actual stroke.2 But, you can take steps to find out if youre at risk.Life Line Screening is a premier provider of preventive screenings for stroke and cardiovascular disease risk. A simple appointment can identify your risk factors and provide peace of mind or early detection.Screenings are easy, painless, non-invasive and dont require any messy prep work.Life Line Screening has over 14,000 locations across the United States so you can find one close to you.Getting screened is affordable. The most popular package at Life Line Screening includes 5 screenings in 1 appointment for $149.Get the most out of your life! Find out your stroke and cardiovascular disease risk with Life Line Screening so you can be in control and do something about it.***CLICK HERE*** to schedule your appointment! A simple screening can be worth a lifetime.1 American Heart Association https://www.heart.org/en/get-involved/advocate/federal-priorities/cdc-prevention-programs2 Hackam DG, Karpral MK, et al. Most stroke patients do not get a warning, a Population Based Cohort Study. Sept. 2009. Neurology, 73, 1074-1075.
If You Have A Hearing, Vision Or Mobility Problems Accessing Or Using A Telephone - You May Qualify For A Free Telephone! 4 out of 5 Americans over the age of 60 have some hearing, vision or mobility loss. There is help however and it is paid for by you through a government program called STAP, Specialized Telecommunications Assistance Program, by a small charge each month on your telephone bill. Why not take advantage of a benefit youre paying for already? Contact Laura Carr, STAP to learn more about this program and show you what equipment youre eligible to receive FREE OF CHARGE! To qualify, you must be a Texas resident with a problem with vision, hearing or mobility. You are entitled to one FREE phone every 5 years. You can get a cell phone, landline, smartphone or tablet, depending on your disability. Must provide proof of residency. Acceptable forms of residency include:* Texas Drivers License* ID card with address* Voters Registration card* Letter from facility on their stationery* Utility Bill (current - showing address)* Vehicle registration card* Medicaid ID* Medicare Summary This program is for any Texas Resident that has a Vision, Hearing, Mobility- including cognitive problems. They are entitled to FREE telephone equipment (just the device) and they have to pay their monthly charges to their telephone service provider. Depending on their impairment, they may qualifiy for a Landline Telephone with a medical alert system; a Regular Cell Phone (where they can make calls, text, take photos including a medical alert button on the back. If they have a hearing problem, they can receive a 2-way texting device - an Android Smart Phone or Android Tablet. They have to provide their proof of residency for the State of Texas: a current drivers license, Texas ID, Voters Registration Card or a Utility bill showing their name & current address & date. Laura can assist with completing an application, take a photo of their proof of residency - attach to their signed application & send it to STAP headquarters in Austin, Texas. The State processes their application & mails the Voucher for the equipment, directly to the Resident. Once they receive the Voucher, they contact Laura and she will deliver the equipment that is authorized on the voucher to the Resident. NO MONEY CHANGES HANDS. Laura Carr, STAP Specialist has worked with this program for 16 years.Contact Laura at 214-388-0088 or LauraCarr@prodigy.net