Rebuilding
Strength, Mobility & Independence: Helping Someone With Parkinson’s
Function Better at Home
Part 3 of the
PennDYNAMIC Care at Home Parkinson’s Recovery & Wellness Series
For someone living with Parkinson’s disease, independence
is often lost gradually.
Walking becomes slower. Getting out of a chair requires
more effort. Dressing takes longer. Fear of falling may cause someone to move
less. After a hospitalization or rehabilitation stay, these challenges can
become even more noticeable.
But needing assistance does not mean a person should stop
participating in life.
At PennDYNAMIC Care at Home, we believe one of the
most important goals of Parkinson’s care is helping each person function at
the highest level safely possible.
That means looking beyond what someone cannot do and asking
a more powerful question:
“What can this
person still do—and how can we help them keep doing it?”
For families, that shift can change the entire approach to
care.
Parkinson’s Can
Create a Cycle of Declining Function
Parkinson’s can affect movement, balance, coordination and
the ability to initiate movement. As everyday activities become more difficult,
people naturally begin doing less.
Then a difficult cycle can develop:
Movement becomes harder → the person moves less → strength and confidence may decline → everyday activities become harder → even more assistance is needed.
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A hospitalization can accelerate this process.
Someone who was previously walking through the house
independently may return home needing assistance. Someone who dressed
independently may suddenly need help. A person who enjoyed going outside may
become afraid of falling and begin spending most of the day sitting.
Families understandably want to protect their loved one.
But protection should not automatically mean inactivity.
The goal is to create the right balance between safety,
assistance and continued participation.
The Goal Is Not to
Do Everything for the Person
When someone struggles with an activity, our instinct is
often to take over.
It is faster to button the shirt.
It is easier to bring the meal to the recliner.
It may feel safer to tell Dad to sit down while someone
else does everything for him.
Sometimes complete assistance is necessary.
But when an individual can safely participate, doing
everything for that person may remove valuable opportunities to move, think,
make choices and maintain abilities.
At PennDYNAMIC Care at Home, assistance can be approached
differently.
Instead of automatically asking:
“What can the caregiver do for the client?”
We can also ask:
“What can the
caregiver help the client continue doing?”
That is the foundation of function-focused care.
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Everyday Activities
Can Support Function
Maintaining function does not happen only during formal
rehabilitation.
It happens throughout the day.
Consider how many movements are involved in an ordinary
morning:
Getting out of bed.
Standing.
Walking to the bathroom.
Washing your face.
Brushing your teeth.
Getting dressed.
Walking to the kitchen.
Sitting down for breakfast.
Using utensils.
Carrying on a conversation.
Each activity involves some combination of movement,
balance, coordination, cognition and endurance.
For a person with Parkinson’s, maintaining participation in
appropriate everyday activities can be meaningful.
The caregiver's role is not to turn the home into a
rehabilitation facility.
Instead, it is to support the individual's established care plan and help create an environment where safe participation can continue.
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1. Support Safe
Movement
Movement is an important part of living well with
Parkinson’s.
Depending on the person's condition and recommendations
from healthcare and rehabilitation professionals, this may include walking,
prescribed exercises, transfers and participation in daily activities.
A trained caregiver can help by providing appropriate
assistance, helping maintain a safe environment and encouraging the person to
follow established mobility recommendations.
The key word is safe.
Caregivers should not independently create rehabilitation
programs or ask clients to perform activities outside their professional care
plan.
Physical therapists and other rehabilitation professionals
determine appropriate therapeutic interventions.
PennDYNAMIC caregivers can then help support those
recommendations in everyday life.
2. Help Rebuild
Confidence After a Fall or Hospitalization
Physical weakness is only part of the challenge.
Sometimes the bigger obstacle is fear.
A person who has fallen may become afraid to walk.
Someone who struggled during a hospitalization may no
longer trust their body.
A spouse who witnessed a serious fall may become so
concerned that they discourage almost all independent movement.
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That fear is understandable.On the other hand, fear can lead to inactivity, and inactivity can further
limit participation in daily life.
A supportive caregiver can provide reassurance, appropriate
assistance and encouragement while following established safety
recommendations.
Small successes matter.
Walking safely to the kitchen.
Participating in dressing.
Sitting outside.
Completing recommended exercises.
Joining the family for dinner.
Each accomplishment can help restore something Parkinson’s
often threatens: Confidence.
3. Make Personal
Care Part of Maintaining Independence
Bathing, dressing, grooming and toileting are sometimes
described simply as “personal care.”
But these activities represent much more.
They are part of a person's identity, routine and
independence.
Instead of automatically completing the entire activity for
someone, care can be adjusted to the person's abilities.
Perhaps Mom can wash her face but needs assistance getting
into the shower.
Perhaps Dad can select his clothes and put on his shirt but
needs assistance with buttons or shoes.
Perhaps the individual can walk to the bathroom with
appropriate assistance instead of routinely relying on more restrictive
alternatives.
The appropriate level of assistance will differ from person
to person.
The principle remains:
Provide the help
that is needed while preserving the abilities that remain.
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4. Reinforce the
Rehabilitation Plan at Home
Physical, occupational and speech therapy can play
important roles in Parkinson’s care.
But therapy sessions represent only a portion of the
person's week.
The rest of life happens at home.
When therapists provide specific recommendations for
mobility, positioning, exercises, assistive devices or daily activities,
families may struggle to consistently incorporate them into the day.
Professional caregiving can help provide that consistency.
PennDYNAMIC Care at Home can work alongside the client's
healthcare and rehabilitation professionals, helping families carry established
recommendations into everyday routines.
That distinction is important.
We do not replace
rehabilitation. We help support its continuity at home.
5. Pay Attention to
Nutrition and Hydration
Maintaining function requires adequate nutrition and
hydration.
After hospitalization or rehabilitation, some individuals
may return home with poor appetite, fatigue or changes in eating patterns.
Parkinson’s can create additional challenges around
mealtimes.
Caregivers can assist with meal preparation, hydration and
following dietary or mealtime recommendations established by the individual's
healthcare team.
They can also observe and communicate meaningful changes.
Is Mom suddenly eating much less?
Is Dad struggling with something that previously was not
difficult?
Has there been a significant change in appetite or ability
to manage meals?
Changes should be communicated to the family and
appropriate healthcare professional rather than simply becoming part of the
“new normal.”
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6. Create
Opportunities for Cognitive and Social Engagement
Function is not only physical.
Parkinson’s can affect emotional, cognitive and social
well-being as well.
When mobility becomes difficult, people may gradually stop
participating in activities they once enjoyed.
They may go out less.
See friends less.
Talk less.
Participate less.
Life can slowly become centered around illness.
PennDYNAMIC's DYNAMIC NeuroWELL at Home approach
recognizes that neurological wellness involves the physical, cognitive,
emotional and functional dimensions of a person's life.
Meaningful engagement might include conversation, music,
family interaction, hobbies, appropriate outings or other activities that are
meaningful to the individual.
The goal is not simply to keep someone occupied.
It is to help the
person remain connected to life.
7. Measure Progress
by Function, Not Just by Diagnosis
Parkinson’s is progressive, but families can still
establish meaningful functional goals.
Instead of focusing exclusively on the disease, consider
asking:
What does a good day look like for this person?
For one person, success may mean walking safely to
breakfast.
For another, it may mean continuing to shower and dress
with minimal assistance.
For someone recovering from hospitalization, success may
mean gradually returning to a previous routine.
For someone with advanced Parkinson’s, success may mean
maintaining comfort, dignity, engagement and the abilities that remain.
The goal should be individualized.
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PennDYNAMIC's LifeCARE Pathway is designed to
provide structured, proactive and evolving care that can change as the client's
needs change.
Look for the Small
Wins
Recovery and functional improvement do not always happen
dramatically.
Sometimes progress looks small.
Dad needed less assistance standing today.
Mom walked a little farther.
He participated in dressing.
She finished her meal.
He completed the activities recommended by his therapist.
She was confident enough to sit outside again.
He joined the family at the dinner table.
These accomplishments matter.
For someone living with a complex neurological condition,
small improvements can represent meaningful steps toward greater function and
quality of life.
Notice them.
Encourage them. Build upon them.
The PennDYNAMIC
NeuroWELL Approach
PennDYNAMIC's DYNAMIC NeuroWELL at Home was developed to provide specialty support for individuals living with neurological conditions, including Parkinson’s disease.
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Our approach recognizes that successful care may involve
more than assistance with bathing, dressing and meals.
Depending on the individual's needs and established
professional care plan, support may include:
The goal is coordinated, individualized support delivered
in the place where the person lives.
Home.
From “Taking Care
of” Someone to Helping Them Live Well
There is an important difference between keeping someone
alive and helping someone live.
People living with Parkinson’s still have preferences.
They have routines.
They have relationships.
They have abilities.
They have goals.
They have things they enjoy.
And they have a desire to maintain control over their lives
for as long as possible.
Good Parkinson’s care recognizes the disease without
allowing the disease to become the person's entire identity.
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At PennDYNAMIC Care at Home, we believe care should help
protect what matters:
Function. Independence. Safety. Confidence. Dignity.
Connection. Quality of life.
When Someone You
Love Is Challenged by Parkinson’s Life Can Be Challenging.
Watching someone you love lose strength or independence can
be difficult, particularly after a hospitalization, rehabilitation stay, fall
or change in health.
But your family does not have to manage those challenges
alone.
With the right support, home can become a place where your
loved one is encouraged to keep moving, keep participating, maintain important
routines and live as fully and independently as possible.
When someone you
love is challenged with Parkinson’s and you need assistance, please call PennDYNAMIC
Care at Home at 610-467-7827.
We would be honored to listen to your concerns, learn about
your loved one's needs and discuss how PennDYNAMIC Care at Home may be able to
support your family.
PennDYNAMIC Care at Home
Personalized. Coordinated. Expert-Led Care at Home.
www.DynamicCareAtHome.com
When Healthcare Costs Rise, Dont Put Your Health on HoldBy Jamie Ulmer, President & CEO, Healthcare NetworkWhen the cost of everyday life goes up, most of us look for places to cut back. We may eat out less often, postpone a purchase or reconsider a trip.Healthcare shouldnt be one of those things.Yet rising insurance costs, deductibles, prescription expenses and other household costs can make even routine healthcare feel difficult to afford. For older adults living on a fixed income, an unexpected medical expense can be particularly concerning.It can be tempting to put off an appointment when youre feeling relatively well. Maybe that lingering cough can wait. Perhaps the pain in your knee isnt quite bad enough to call the doctor. Or that annual checkup can be pushed back a few months.The problem is that delaying care can allow a manageable health concern to become a more serious one. Establishing a relationship with a primary care provider and receiving regular preventive care can help identify health concerns earlier and provide ongoing support for conditions that require monitoring.Community Health Centers Are an Option for Seniors, TooOne healthcare resource older adults may overlook is their local community health center.There is a common misconception that community health centers are free clinics or that they serve only people without insurance. In fact, community health centers provide care to people with a variety of insurance coverage. Healthcare Network accepts Medicare, Medicaid, commercial insurance and Affordable Care Act Marketplace plans. For those who qualify, care is also available on a sliding fee discount scale based on household income.For older adults, having access to primary care is particularly important. Regular visits give you and your provider an opportunity to monitor changes in your health, discuss medications, keep up with preventive care and address concerns before they become more serious.Community health centers can also make it easier to address multiple healthcare needs within one organization. At Healthcare Network, patients have access to primary care, dental care, behavioral health and other services.Getting to Care MattersCost isnt the only reason people delay healthcare. Sometimes the challenge is simply getting there.Transportation, distance and convenience can all become barriers, particularly for older adults who no longer drive, have mobility challenges or depend on family members or caregivers for transportation.Thats why access isnt only about having healthcare services available. Its also about making those services easier to use.Healthcare Network offers telehealth appointments for certain services, giving patients the option to connect with a provider from home when appropriate. For older adults, telehealth can help reduce some of the transportation and scheduling challenges that might otherwise lead them to postpone care.Access to medications is another important part of staying healthy. Healthcare Networks pharmacies offer prescription mail delivery, allowing patients to have eligible medications sent directly to their homes. This can be especially helpful for older adults managing ongoing prescriptions or those who find frequent trips to the pharmacy difficult.Of course, there are times when an in-person visit is necessary. Having healthcare closer to home can make those appointments easier, too.Here in Collier County, Healthcare Network recently opened the Van Domelen Community Health Center in Orangetree. The center brings primary care, dental care, behavioral health, pharmacy services and more to an area where rapid population growth had previously left many residents traveling significant distances for basic healthcare.Options such as care closer to home, telehealth and prescription mail delivery can remove some of the everyday obstacles that make it harder to stay on top of your health.Think of Primary Care as an Investment in IndependenceFor many of us, one of the greatest priorities as we get older is maintaining our independence.Healthcare plays an important role in that.Routine care isnt only about treating an illness after it occurs. Its an opportunity to monitor your health over time, manage ongoing health conditions, keep up with recommended preventive care and talk with your provider about changes you may be experiencing.Having a healthcare provider you know and trust can become especially valuable as you age.If cost, transportation or uncertainty about where to go has caused you to postpone care, ask what resources are available in your community. Having Medicare or Medicaid doesnt prevent you from receiving care at a community health center, and depending on your circumstances, other assistance may be available as well.Last year, Healthcare Network cared for more than 55,000 patients, including nearly half of Collier Countys children, and provided more than $19 million in uncompensated care. Behind those numbers are people at every stage of life who needed a place to turn for healthcare.Growing older brings plenty of changes. Accessing healthcare shouldnt have to become one more challenge.Taking care of your health today can help protect something that becomes increasingly valuable with every passing year: your ability to continue living life on your own terms.About the AuthorJamie Ulmer is President and CEO of Healthcare Network, a nonprofit healthcare organization that has served Collier County for nearly 50 years. He is passionate about improving access to care and strengthening community health so all residents have the opportunity to live healthy, productive lives.
Aging rarely follows a predictable path. Learn how CareAparent helps Minnesota seniors remain at home with personal care, skilled nursing, therapy and support that evolves as care needs change.One month, an older adult may be living completely independently. Later, they may need a little help around the house, assistance after a hospital stay, physical therapy to regain strength, medication management or more advanced nursing support.For families, each change can bring another round of questions.Who should we call? What kind of care does Mom need now? Will we need to find another provider? Who will coordinate everything?Those questions can become especially stressful when a family is already dealing with a hospitalization, illness or sudden change in a loved one's abilities.That's why having a care provider that can adapt as needs change can make such a difference.For more than 10 years, CareAparent has helped Minnesota seniors and their families receive personalized care in the place many older adults most want to remaintheir own home. Today, CareAparent provides a continuum of in-home services throughout the seven-county Twin Cities metro area. CareAparentIt May Start With Just a Little HelpSometimes the first sign that an aging parent needs assistance is subtle.Maybe Dad isn't keeping up with housekeeping like he once did. Mom may be having difficulty getting dressed or safely taking a shower. Meals aren't being prepared regularly, medications are becoming confusing, or an adult child is spending more and more time helping with everyday tasks.That doesn't necessarily mean an older adult can no longer live independently.The right support can help make independence possible for longer.CareAparent provides personal care that can include assistance with bathing, dressing and grooming, as well as light housekeeping, laundry and medication reminders. Care can be customized based on the individual's needs rather than forcing the person into a predetermined schedule or level of service. CareAparentFor families, that flexibility matters.The goal isn't to take over someone's life. It's to provide enough assistance so the person can continue participating in it.Then Something ChangesA fall occurs.There's a hospital stay.A chronic condition becomes more difficult to manage.An older adult needs help recovering from surgery.Suddenly, the type of support that worked six months ago may no longer be enough.This is where continuity of care becomes particularly important.Instead of requiring a family to begin searching for an entirely different organization, CareAparent can provide skilled services through licensed medical professionals, including skilled nursing, medication management, wound care, physical therapy and occupational therapy. CareAparentThat allows care to evolve along with the person.Coming Home From the Hospital Can Be a Vulnerable TimeDischarge day can feel like a victoryand it is.But getting home doesn't necessarily mean the recovery is finished.There may be new medications to manage, mobility limitations, wounds requiring attention, exercises to complete or everyday activities that suddenly feel more difficult.Family members may receive discharge instructions but still wonder how they're going to manage everything once their loved one gets home.CareAparent specifically works with individuals transitioning home from hospitals, rehabilitation centers and other acute-care settings. Its skilled services are designed to support recovery and continuity of care in the home. CareAparentFor an older adult, recovering in familiar surroundings can also mean sleeping in their own bed, following familiar routines and remaining close to the people and things that bring comfort.Therapy Can Help Restore IndependencePhysical and occupational therapy aren't simply about completing exercises.They can be important tools for maintaining independence.Physical therapists can work with older adults experiencing pain, injury, illness or age-related declines in mobility. Treatment can address strength, balance, endurance and safer movement.Occupational therapists look at everyday functionhelping individuals find safer and more effective ways to accomplish the activities that are important in daily life.Together, those services can help an older adult work toward a very meaningful goal:Doing more for themselves. CareAparentFamilies Need Support TooWhen someone needs care, the impact extends beyond that individual.Spouses and adult children frequently become caregivers themselvescoordinating appointments, checking medications, helping with meals, managing household responsibilities and worrying about what happens when they aren't there.Over time, those responsibilities can become overwhelming.Professional in-home care can provide something important for both generations.The older adult receives personalized assistance.The family gets to spend more time being family.That distinction matters.A daughter shouldn't always have to be the nurse, housekeeper or care coordinator. A spouse shouldn't have to handle every caregiving responsibility alone.Having trusted support can make the entire family's situation more manageable.Specialized Support for Minnesota VeteransVeterans and their families may also have access to services they don't realize are available.CareAparent serves veterans throughout the seven-county Twin Cities metro as a Home Health Community Provider. Depending upon eligibility and authorization, VA-supported services can include skilled nursing, therapy, respite care, homemaking and home health aide assistance. CareAparentFor families of veterans, understanding available benefits can be an important part of developing a long-term care plan.One Relationship as Needs EvolvePerhaps one of the most reassuring things a family can hear is:You don't have to figure out the next step alone.CareAparent's model is designed around continuity. Personal care, skilled nursing, therapy and additional support can work together so that when circumstances change, the care plan can change too. CareAparentThat can mean fewer unfamiliar faces, fewer transitions between organizations and less time for families spent searching for the next provider.Instead, there is one relationship and a care team that already understands the individual.Aging at Home Should Still Feel Like HomeUltimately, home care isn't simply about completing tasks.It's about helping someone continue living a life that feels familiar and meaningful.It's having coffee in your own kitchen.Sleeping in your own bed.Seeing neighbors you recognize.Following your own schedule.Having family visit without visiting hours.And continuing to make choices about how you live your day.CareAparent describes its approach as combining clinical care with hospitality and personalized attention. The organization has served Minnesota families for more than a decade and provides care throughout Anoka, Carver, Dakota, Hennepin, Ramsey, Scott and Washington counties. CareAparentAs needs change, the answer doesn't always have to be changing where someone lives.Sometimes, the answer is bringing the right care to where they already call home. Learn more about CareAparent's personalized in-home care services and find resources to help your family navigate changing care needs. Call us at 651-702-HOME (4663) or visit our website at www.careaparent.com
Discover how TruBlue Home Service Ally helps Minnesota families make aging parents' homes safer, easier to maintain and better suited for independent living. For many adult children, there comes a time when visiting Mom or Dad feels a little different.Maybe you notice a loose railing that hasn't been repaired. A lightbulb has been out for months because it's too difficult to reach. The bathroom could use a grab bar, the front steps are becoming harder to navigate, or the list of small home repairs seems to be getting longer.Individually, these things may not seem significant. Together, however, they can be signs that maintaining the home is becoming more difficult.For families who want to help an aging parent remain independent, one of the most important places to start is the home itself.The Home May Need to Change as We AgeA house that worked perfectly at age 50 may present very different challenges at 75 or 80.Stairs become more difficult. Reaching overhead becomes risky. Carrying items while navigating steps can be harder. Bathrooms may lack adequate support, and outdoor maintenance that was once routine can become physically demanding.That doesn't necessarily mean it's time to move.Often, relatively modest changes can make the home easier and safer to navigate while allowing an older adult to maintain the independence they value.For families in Plymouth, Maple Grove and surrounding communities, TruBlue Home Service Ally helps identify and address many of these everyday home concerns. TruBlue's services include home safety assessments, repairs, maintenance and modifications designed to support older adults who want to continue living at home. mn.gov // Minnesota's State PortalStart by Looking at the Home Through New EyesAdult children often know their parents' homes almost as well as their own. That familiarity can actually make potential problems easier to overlook.Instead of simply visiting, walk through the home while thinking about how your parent's needs may have changed.Are stairs adequately lit? Are handrails secure? Is getting in and out of the shower becoming difficult? Are frequently used items stored where they can be reached safely? Are there loose flooring, cords or other potential tripping hazards? Are exterior steps, decks and walkways in good condition?TruBlue's senior home safety assessment takes a more systematic approach. Minnesota's aging-services directory describes the company's assessment as covering dozens of areas, including walkways, garage access and lighting, porches and decks, doors, slipping and tripping hazards, water temperature, stairs and railings. mn.gov // Minnesota's State PortalThe goal isn't to completely remodel a parent's home. It's to identify practical improvements that can make everyday activities easier and safer.Don't Let the Small Repair List Keep GrowingOne of the biggest challenges for aging homeowners isn't necessarily a major renovation.It's the little things.A sticking door. A loose cabinet handle. A damaged step. A dripping faucet. A railing that wiggles. A light fixture that needs attention. Seasonal maintenance that keeps getting postponed.For an adult child, those tasks can quickly turn into another weekend "to-do" listespecially when you're also balancing your own home, career, children and other responsibilities.This is where having a trusted home service professional can make a significant difference.Rather than waiting until small problems become larger ones, families can have repairs and maintenance handled proactively.Home Safety Is About Independence, Not Just RepairsA grab bar isn't simply a piece of hardware.A sturdy railing isn't simply a home improvement.For an older adult, these improvements can provide confidence.Being able to move around the home comfortably, use the bathroom more safely, enter and exit the house with greater ease and keep the property maintained can all contribute to a person's ability to remain independent.That distinction is important.Aging-in-place improvements aren't about making a home look "medical." They're about adapting the environment so it continues to work for the person who lives there.Give Adult Children Peace of Mind, TooSupporting an aging parent from across townor across the countrycan be stressful.Adult children may wonder whether the house is being maintained, whether something needs repair or whether their parent is attempting projects that are no longer safe for them to tackle.Having a reliable local resource can relieve some of that pressure.TruBlue's approach combines handyman services, senior home modifications, home safety and ongoing maintenance. The Plymouth and Maple Grove operation describes its role as helping homeowners maintain their homes through different stages of life. LinkedInThat can allow adult children to spend less time worrying about the house and more time simply being a son or daughter.Have the Conversation Before There's a CrisisFamilies sometimes wait until after a fall, hospitalization or other major event before evaluating the home.A better approach is to start earlier.Ask your parent what has become difficult around the house. Walk through the home together. Talk about the chores they no longer enjoy or feel comfortable doing. Look for simple changes that could make daily life easier.Most importantly, involve your parent in the decisions.Aging in place works best when older adults feel that changes are helping them maintain control and independence, rather than taking those things away.A Trusted Home Ally Can Make a DifferenceHelping a parent remain at home doesn't have to mean doing everything yourself.For families throughout Plymouth, Maple Grove and surrounding Twin Cities communities, TruBlue Home Service Ally provides professional home repairs, maintenance, home safety assessments and senior-focused modifications that can help make aging at home more manageable. mn.gov // Minnesota's State PortalSometimes the best way to help Mom or Dad remain independent isn't a major life change.It may simply begin by making sure the home they love continues to work for them. Learn more about TruBlue Home Service Ally Plymouth & Maple Grove through their Seniors Blue Book profile, or contact their team at 763-400-3748 to discuss home safety, maintenance or aging-in-place needs.