The Hospice Fear Factor

Author

Agape Healthcare - Hospice & Palliative Care

For more information about the author, click to view their website: AGAPE Health

Posted on

Oct 13, 2015

Book/Edition

Colorado - Denver Metro

The news that treatment is no longer effective, or that an older person is in decline, can seem like the end of hope. Thoughts of cure or more time turn to questions like: Why? What if? and What now?

People feel afraid, and that's natural. Unfortunately, a good many people equate hospice care with the fear they feel about death, suffering, mortality or what comes next.

The role of hospice isn't to hasten death. Nor is it to prolong suffering. Instead, the hospice team is a highly qualified group of professionals who provide expert medical care and support. (Have you ever met a hospice chaplain or nurse? Good as gold.) They work with a patient's current physician, family and any other caregivers, because providing excellent care is a team effort.

Hospice begins with a question: What's meaningful to you? For starters, people want to feel better. Less anxious. Less nauseated. Less sick. They want to be thought of as individuals and not defined by their condition, treatment or symptoms.

People want to go fishing, enjoy a bowl of Lucky Charms or get their hands dirty in the garden. They want to write letters. Paint. Tie up loose ends. People still want to accomplish things at the end of life. Most want meaningful time with people they love.

Sadly, people fear hospice care and often don't access it until they are too sick for a hospice team to do its best work. Of course, even patients with days to live can feel better through expert pain and symptom management.

Accessing the hospice benefit (paid by Medicaid, Medicare and most private insurance), means people have a physician, nurse, CNA, social worker, chaplain and volunteers whose sole purpose is providing the best care and emotional, spiritual and practical support. This extends to family as well.

When symptoms are better, people's bodies aren't having to work so hard. Sometimes their overall condition actually improves.

If given the opportunity, why wouldn't people choose hospice? Aside from thank you, the statement the hospice team hears most is: We wish we'd had you sooner.

Editor's Note: This article was submitted by Kelly Bastian, FNP-C, Managing Director of Agape Hospice & Palliative Care. She may be reached at 720-482-1988 or by email at kbastian@agape-healthcare.com.

Other Articles You May Like

Understanding the Many Benefits of Hospice Care

When a loved one is diagnosed with a terminal illness, it can be a difficult and emotional time for both the patient and their family. Hospice care provides a specialized form of medical care that focuses on the comfort and quality of life for patients who have a limited life expectancy. Hospice care not only benefits the patient, but it also provides support and assistance for their caregivers. In this article, we will explore the benefits of hospice care for both patients and caregivers.For Patients:Pain and Symptom Management: Hospice care specializes in providing comfort care, which means that the medical team focuses on managing pain and symptoms associated with the illness. This can include providing medication and other therapies to alleviate discomfort.Emotional Support: Hospice care teams include trained professionals who offer emotional and spiritual support to patients and their families. These professionals can provide counseling, emotional support, and assistance with coping strategies to help patients and their families manage their emotions during this difficult time.Dignity and Respect: Hospice care is designed to provide compassionate care that is focused on the patients dignity and respect. Patients are treated as individuals with unique needs, preferences, and beliefs. The goal of hospice care is to ensure that patients are comfortable and treated with respect throughout the entire end-of-life process.Personalized Care: Hospice care is tailored to meet the individual needs of each patient. This means that care is provided based on the patients unique medical condition, personal preferences, and goals. The hospice care team works with patients and their families to develop a care plan that is customized to their needs.Support for Family Members: Hospice care offers support for family members who are caring for their loved ones. This can include counseling, respite care, and assistance with end-of-life planning.For Caregivers:Respite Care: Hospice care provides respite care for caregivers, which means that a trained professional takes over caregiving responsibilities for a short period of time so that the caregiver can take a break. This can be particularly helpful for family members who are caring for a loved one 24/7.Emotional Support: Hospice care teams offer emotional support to caregivers as well. Caregivers often experience stress, anxiety, and depression as they care for their loved ones. Hospice care professionals can provide counseling and other resources to help caregivers manage their emotions.Education and Training: Hospice care teams can provide education and training to caregivers so that they are better equipped to care for their loved ones. This can include training on medication management, pain management, and other aspects of end-of-life care.Support for End-of-Life Planning: Hospice care teams can help caregivers with end-of-life planning, which can include assistance with advance directives, funeral planning, and other important decisions that need to be made.Continued Support: Hospice care teams provide continued support to caregivers even after their loved one has passed away. This can include grief counseling and other resources to help caregivers cope with the loss of their loved one.Hospice care provides specialized medical care that focuses on the comfort and quality of life for patients who have a limited life expectancy. Hospice care not only benefits the patient, but it also provides support and assistance for their caregivers. Hospice care offers a range of benefits, including pain and symptom management, emotional support, dignity and respect, personalized care, respite care, education and training, support for end-of-life planning, and continued support for caregivers after their loved one has passed away. If you or a loved one are facing a terminal illness, it is important to consider the benefits of hospice care and to discuss this option with your healthcare provider. For more information about hospice care services please contact our caring team today.

How to Support a Grieving Friend Who Has Lost a Loved One

Unfortunately, its likely to happen to each of us when we least expect it: we hear the news that a friend or family member has lost a loved one through an unexpected or expected death. We may have an immediate feeling of doubt about how we should respond. What do we say? What do we do? What if we say or do the wrong thing?These are important questions because what we say or do can either relieve emotional pain or make it worse.Yet, by understanding a few important things about grieving and mourning we can be confident that we can help and not hurt.Understand the Many Faces of Emotional ShockEven when a death is expectedlike after a long, serious illnessyour friend is probably experiencing a roller coaster of strong emotions. According to the American Cancer Society, the shock of losing a loved one can manifest itself anywhere from disbelief, anger, uncertainty, denial or numbness. In my own experience, Ive seen people whose numbness is misinterpreted as peace or acceptance, leading others to say, Shes so strong or Hes taking this so wellyet when the funeral is over and everyone has gone home, they fall apart.Remember that your friend is likely to feel many emotional ups and downsand a period of strength might be followed by real anguish.Communicate Your Sorrow SimplyIm so sorry for your loss, or I wish I knew what to sayplease know that I care, are simple and comforting ways to let your friend know that you care. When we stray into clichslike Shes in a better place now, or It was his time to go,the person who is grieving may feel wounded because they simply want their loved one at their side. This can be especially true of parents who have lost children.If youre completely unsure of what to say, being nearbyyet silentalso communicates that you care.Show Your Support through ServiceYou can decrease your own feelings of helplessness or powerlessness by serving your grieving friend. However, during the strongest moments of grief your friend may not be able to tell you what he or she needs. If thats the case, you might consider doing anything that may be helpfullike mowing their lawn, doing their dishes, or helping them with the funeral. But remember that your service shouldnt end with the funeral.Thoughtful service will continue to show your concern.Listening May Be the Most Helpful Thing You Can DoYour friend may need to talk often. He or she may have to discuss the details of their loved ones deathand may need to talk about it repeatedly. This can be part of the grieving process and you can help by being a patient, non-judgmental, listening ear.But take your cues from your friend because talking about their loved one might be painful. One friend recently told me, One of the most difficult things for us was when someone wouldcasually [mention our childs name]. To us, mentioning his name was a reverent thing that we didnt do very often except among each other. Even then, we were careful about it. It felt very jarring when others were too casual about it.Dont Rush the Grieving ProcessExperts in the field of emotional health and grieving concur that the processand timeframeof grieving is different for everyone. As a friend, you need to be ready for the long haul. It may literally take years for a grieving person to feel stable with their emotions. Encouraging them to get outside and take part in social activities may be helpful, but shouldnt be forced. Give your friend time to adjust to their feelings and emotions and dont be surprised if their grieving lasts much longer than you expect.Dont be Offended if Your Friend Shows AngerAnger can be a normal emotion during the grieving process. Grief can heighten negative emotions and a normally kind person who is grieving may strike out at others emotionally. Understand that its a product of their grief and dont take it personally. You can support them best by maintaining a level head and forgiving them when theyre not at their best.Grief and Mourning Shouldnt be Interpreted as a Lack of Religious FaithAbout half the people in the world believe in an afterlifeand that belief is typically tied to religious views. While those who are grieving may find comfort in their belief that their loved one lives on in some other realm, that belief may not override the pain of separation. Often, grieving is about being separated from our loved onesregardless of our beliefs.Id love to hear your thoughts on this subject, so please leave a comment in the comments box. I also invite you to subscribe to this blogwhich will cover a variety of healthcare topics.A short post cant cover everything, so if youd like more information on this topic I encourage you to research the Five Stages of Grief by Elizabeth Kubler-Ross. Also, see the U.S. Governments excellent A LifeCare Guide to Helping Others Cope with Grief. If youre concerned that your friends grief has developed into thoughts of hurting themselves or others, please contact a mental health professional.This post is dedicated to the memory of Bailey Rae Bullock, Matthew Bullock, Dan Bishop, Joe Adams, Michelle Pereira, and the many others who's passing profoundly affected me.

How Hospice Care Supports Patients & Families Alike

Hospice is a specialized form of medical care that focuses on providing comfort and support to individuals facing life-limiting illnesses, such as cancer, heart disease, or lung disease, among others. It aims to help patients and their families be more comfortable and confident while providing the best medical attention possible.Hospice care provides a holistic approach to care, addressing not only the physical needs of the patient but also the emotional, spiritual, and social needs of both the patient and their family. This approach helps patients to be as comfortable as possible, by reducing pain and other symptoms, and allowing them to focus on their well-being and quality of life. Hospice care can also provide relief to family members who are struggling to cope with the physical and emotional demands of caring for a loved one.One of the key benefits of hospice care is the team of healthcare professionals, called the interdisciplinary team, that work together to provide comprehensive care. This team may include a physician, nurse, social worker, chaplain, and a volunteer, all working together to ensure that the patients needs are met. Hospice care also provides access to a variety of services and resources, such as counseling, support groups, and home health aides, all designed to help patients and families be as comfortable and confident as possible.Hospice care is typically provided in the patients home, although some hospice programs may offer inpatient services, such as a hospice center or hospital, for patients who require more intensive care. This allows patients to receive the medical attention they need while remaining in a familiar and comfortable environment.Another important aspect of hospice care is the focus on end-of-life care and decision-making. Hospice care providers work with patients and families to help them understand what to expect as the patients illness progresses and to help them make informed decisions about end-of-life care. This may include decisions about treatment options, symptom management, and advance care planning.In conclusion, hospice care provides a unique approach to medical care, focusing on providing comfort and support to patients and families facing life-limiting illnesses. The holistic approach of hospice care, the team of healthcare professionals, and the focus on end-of-life care, all help to make patients and families more comfortable and confident while receiving the best medical attention possible.

Local Services By This Author

Agape Healthcare - Hospice & Palliative Care

Hospice 6041 South Syracuse Way, Greenwood Village, Colorado, 80111

Agape Healthcare has provided compassionate care to our Denver Front Range community for 20 years. Our experienced teams help individuals and their families navigate the course of illness through specialized care, support and symptom management, all in a spirit of unconditional love.People nearing the end of life often experience emotional and spiritual distress. Some find it difficult to reach out to the people in their lives. Family may feel the same, not knowing how to communicate or move forward. Agape social workers, chaplains and volunteers may support patients and families through counseling, practical help and spiritual support.Our goal is helping patients feel better so they can live better each day, and supporting family through the journey.