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I knock on Mrs. Fowler’s apartment door, knowing that she hates me. Well, not me but she hates that she needs help. Mrs. Fowler is 87 years old and what I would call, Maloriented. She’s oriented to time and place; she knows who I am (most of the time), but she is angry at getting older and dependent on others so she projects her anger onto me. She blames me for moving her good china teapot to the ‘wrong’ place. She sometimes accuses me of stealing money. I understand and can empathize with her inability to handle the fact that she can’t walk well anymore because her hips are so bad and she can’t have an operation because of her leaking heart valve. So, she sits at home, unable to walk, unable to go shopping, unable to care for her hygiene, unable to function as a ‘normal, useful person in society.’
This understanding helps me to feel empathy instead of upset or angry at her blaming. I breathe deeply, center myself, and gather my resources. When Mrs. Fowler opens the door, I make eye contact and with an ‘adult to adult’ voice tone say, “Good morning Mrs. Fowler. How are you today?”
Fowler: Not good, you’re here. (Turning and letting me enter the apartment)
Me: Ach, not good. It’s another busy body coming to your door! (Matching her voice tone and entering the apartment.)
Fowler: What do you want today from me?
Me: We made a plan last time. I was going to help you take a shower today.
Fowler: I already took a shower.
Me: Aha, you are on top of things! Well, tell me how things have been going for you?
Fowler: Terrible. I’m missing my good china teapot again. Someone’s been coming in here and hiding it.
Me: Where did you get that beautiful teapot Mrs. Fowler?
Fowler: My husband bought it for me for our 20th wedding anniversary. It was so expensive and I had wanted it for years. He knew just what I liked.
Me: He was a good man. How long has it been?
Fowler: (sadly) My goodness, he died a long time ago…maybe five years? (The reality is that he died 17 years ago, the day after she turned 70. She has declined since then.)
Me: What do you miss the most?
Fowler: He was a gentle man. He could put up with me (chuckling softly to herself). He looked after me.
Me: He looked after you. (matching her gentle voice tone)
Fowler: (turning and making eye contact with me) I know that you’re trying to help me.
Me: Yes, I would like to do that.
Fowler: Come on then, let’s do it together. (Marching towards the bathroom.)
The things that help me do my job AND build a trusting relationship with Mrs. Fowler are:
Take a breath, center and know I need to first build trust with her each time I work with her;
Make eye contact with her, without forcing it, make sure I am on eye level with her, not above;
Try to match her voice tone, honestly, without imitating in a false way;
Try to ask open questions rather than tell her what to do;
Do NOT confront her with ‘reality’ and instead flow with her.
The World Health Organization (WHO) estimates that 47.5 million people worldwide have dementia and that an additional 7.7 million new cases arise each year.[1] Therefore, it is more important than ever that caregivers learn about the best evidence-based techniques when it comes to caring for loved ones experiencing Alzheimer’s disease and related dementias. The importance of effective communication, and the patience and empathy it requires, cannot be understated.
Author Bio
Vicki de Klerk-Rubin is a certified Validation Master Teacher, the Executive Director of the Validation Training Institute (VTI) and the daughter of Naomi Feil, the founder of the Validation method. Validation combines a humanistic theory, an empathetic, ‘person-centered’ attitude with verbal and non-verbal techniques which enhance communication with people who live with cognitive decline. VTI promotes the use of Validation throughout the world by supporting the 23 training centers and 430 Validation Teachers.
DIY Patient Advocacy vs Hiring a ProfessionalIn today's complex and often overwhelming healthcare landscape, being an advocate for your own healthcare is essential. The concept of patient advocacy has gained significant prominence in recent years, emphasizing the importance of individuals actively participating in their own healthcare decisions. However, an emerging trend over the last ten years is the use of independent professional patient advocates who can provide expert guidance and support. In this blog post, we will explore the key differences between being your own patient advocate and hiring an independent professional advocate.Being Your Own Patient AdvocateTaking Ownership of Your HealthOne of the primary distinctions of being your own patient advocate is the level of ownership you have over your healthcare journey. With DIY patient advocacy, you take charge of your medical decisions, ensuring that your values, preferences, and goals are considered at every step. You become the captain of your healthcare ship, making informed choices that align with your beliefs and priorities.Being your own patient advocate demands a considerable amount of health literacy and research skills. You are responsible for gathering information about your condition, treatment options, and healthcare providers. This often involves extensive internet research, consulting medical literature, and seeking advice from experts. While it can be empowering, it's essential to exercise caution and ensure the reliability of the sources you consult.Communication SkillsEffective communication is a critical aspect of self-advocacy. You must articulate your needs, ask questions, and advocate for yourself during doctor's appointments, often navigating complex medical jargon and treatment options. Being an effective communicator can influence the quality of care you receive.For those opting to advocate for themselves, we recommend bringing a list of talking points and concerns, all current medications and supplements, and appointment notes from previous appointments. Having all of these on hand can help ensure your appointment goes smoothly and is efficient given the time you have with your provider.Being your own patient advocate can be incredibly empowering. It allows you to actively participate in your healthcare decisions, fostering a sense of control over your health and well-being. This empowerment can lead to better patient satisfaction and outcomes.Challenges of DIY Patient AdvocacyWhile being your own advocate offers many benefits, it comes with certain challenges. The burden of gathering and interpreting medical information can be overwhelming, particularly for individuals with complex or chronic conditions. It can be extraordinarily difficult to add these responsibilities to your plate when you are already dealing with a health issue, major or minor. Additionally, emotions and stress can hinder your ability to make the most rational decisions.Hiring an Independent Professional Patient AdvocateThe Role of an Independent Professional AdvocateProfessional patient advocates are trained individuals who can guide and support you through your healthcare journey. They can provide a wide range of services, including researching treatment options, helping you navigate the healthcare system, coordinating care, and advocating on your behalf with healthcare providers.Professional advocates bring a wealth of knowledge and experience to the table. They have a deep understanding of healthcare systems, medical conditions, and treatment options. This expertise can be invaluable in making well-informed decisions. In addition, hiring a professional advocate can alleviate some of the stress associated with managing your healthcare. They can handle the administrative and logistical aspects of your care, allowing you to focus on your health. This can be particularly helpful for individuals facing complex medical issues.Most importantly, professional advocates can offer an objective perspective on your healthcare decisions. They can provide guidance without emotional biases and help you explore all available options. This objectivity can be especially crucial when dealing with life-altering decisions such as major surgeries or life changes.Advocacy and NegotiationProfessional advocates excel in advocating for your best interests. They can communicate with your healthcare team, ensuring that your preferences and goals are heard and respected. Additionally, they can negotiate on your behalf, potentially reducing healthcare costs and improving the quality of care.Hiring an independent professional advocate can be expensive. It's essential to weigh these costs against the benefits they provide. In some cases, the investment in a professional advocate can lead to more efficient and cost-effective healthcare decisions.The Hybrid ApproachIn many situations, a combination of self-advocacy and professional advocacy can be the most effective approach. This hybrid model leverages the strengths of both options to ensure comprehensive and well-informed healthcare decisions. For example, individuals can actively participate in their care while seeking professional guidance for complex or unfamiliar aspects of their health.Choosing between being your own patient advocate and hiring a professional advocate depends on various factors. These factors may include the complexity of your medical condition, your familiarity with the healthcare system, your emotional state, and your financial situation. It's crucial to assess your individual needs and preferences to make the right decision. Using a hybrid approach can be the best option for many people as it allows you to have full control over your care. Many patient advocate organizations, including Hope Health Advocacy emphasize being an advocate for yourself (alongside professional help) so that you can retain autonomy throughout the process..Which Should You Choose?In the evolving landscape of healthcare, the roles of patient and professional advocates continue to be redefined. Being your own advocate empowers you to take charge of your health, but it also demands a high level of knowledge, research, and communication skills. On the other hand, hiring a professional advocate offers expertise, support, and objectivity but comes at a financial cost.Ultimately, the choice between these two approaches should be guided by your unique circumstances and healthcare needs. The most critical aspect of both methods is the shared goal of improving your healthcare experience and outcomes. Whether you choose to be your own advocate, hire a professional advocate, or use a hybrid approach, active participation in your healthcare is the key to achieving the best possible results.As you embark on your healthcare journey, remember that the most important advocate is you, and the ultimate decision should align with your values and priorities. By making informed choices, you can navigate the healthcare maze with confidence and ensure that your health remains in capable hands, whether they are your own or those of a professional advocate.
Harnessing the Healing Power of FoodIn the realm of healthcare, the importance of food and nutrition is often underestimated. We tend to associate healthcare with cutting-edge technology, innovative pharmaceuticals, and skilled medical professionals, all of which are undoubtedly crucial. However, one element that frequently goes unnoticed but holds immense healing potential is the role of food and nutrition in patient care. In this blog, we aim to shed light on the significant impact that proper nutrition can have on healthcare outcomes and how patient advocacy plays a vital role in advocating for the healing potential of food.The Power of FoodFood is much more than just sustenance; it's a potent medicine that can either promote health or exacerbate illness. The role of food in healthcare is multifaceted, and its impact is evident in various aspects of patient well-being. Proper nutrition is fundamental to the body's ability to heal and recover. Essential nutrients, such as vitamins, minerals, protein, and carbohydrates, play a vital role in tissue repair, immune system function, and overall health. A diet rich in these nutrients can accelerate healing and reduce the risk of complications. Many chronic diseases, including diabetes, hypertension, and cardiovascular disorders, can be better managed or even prevented through a healthy diet. By controlling factors such as blood sugar levels and blood pressure, the right diet can significantly improve a patient's quality of life.A well-balanced diet can strengthen the immune system, making the body more resilient to infections and illnesses. Adequate intake of vitamins like C and D, along with minerals like zinc, supports immune function, reducing the risk of complications during illness. Nutrition isn't just about physical health; it also plays a critical role in mental well-being. Nutrient deficiencies have been linked to mood disorders like depression and anxiety. A diet rich in omega-3 fatty acids, antioxidants, and other brain-boosting nutrients can help improve mental health.For patients recovering from surgery or injury, proper nutrition can expedite the healing process. Nutrients like protein, vitamins A and C, and zinc are essential for tissue repair and wound healing. Malnutrition is a common and often overlooked issue in healthcare settings. Patients who are malnourished are more susceptible to infections, have longer hospital stays, and are at a higher risk of complications. Identifying and addressing malnutrition early can significantly improve patient outcomes.Patient Advocacy: A Powerful AllyWhile healthcare professionals play a vital role in managing a patient's nutritional needs, the advocacy of patients and their families can make a significant difference in ensuring proper nutrition is prioritized. Patient advocacy involves actively speaking up for one's health and well-being and can have a profound impact on the quality of care received. To show how patient advocacy intersects with the importance of food and nutrition in healthcare, we have included the following case study.Case Study: The Impact of Patient Advocacy on Nutritional CareSarah, a 65-year-old woman, was admitted to the hospital for complications related to diabetes. She had a long history of poorly managed blood sugar levels and was experiencing slow wound healing. Upon admission, Sarah's advocate let her know about the role that nutrition plays in diabetes management and wound healing. Her advocate told her about the importance of controlling blood sugar levels through diet and how protein intake supports wound healing.The advocate asked the medical team to conduct a nutritional assessment for the patient. The assessment revealed that Sarah had nutritional deficiencies, including low levels of vitamin C and zinc, which were hindering her recovery. Upon receiving the results, it was recommended that Sarah become actively engaged with her healthcare team, including the endocrinologist, dietitian, and nursing staff. Together, they developed a customized meal plan that focused on controlling Sarah's blood sugar levels and addressing her nutritional deficiencies.Sarahs advocate made sure that she would receive vitamin C and zinc supplements in addition to a protein-rich diet. They worked together with the dietitian to develop a long-term dietary plan that would help her manage her diabetes and prevent future complications. Sarah's wound healing improved significantly, and her blood sugar levels stabilized.Through patient advocacy, Sarah experienced a more holistic approach to her healthcare that incorporated nutrition as a critical component. This led to a faster recovery, improved overall health, and a reduced risk of future complications related to her diabetes.The healing potential of food and nutrition in healthcare cannot be overstated. Proper nutrition can enhance healing, prevent chronic diseases, boost immunity, support mental health, and expedite recovery. Patient advocacy in the context of nutrition involves education, communication, collaboration with healthcare providers, and a commitment to holistic healing. As demonstrated in Sarahs case study, patient advocacy can significantly improve healthcare outcomes and enhance the overall quality of care.
Health Affairs estimates that 4 million older adults can only leave their homes with assistance, making accessing care challenging.The Centers for Disease Control and Prevention reports that 1.3 million Americans receive care in nursing homes. According to A Place for Mom, more than 810,000 reside in assisted living.Home health care presents an alternative to nursing homes and assisted living, providing care for homebound people. Those who receive home health care can remain in their residences, reducing expenses, preserving autonomy, and maintaining community ties.Although Medicare funds some home health care services, a recent study has found that Medicare beneficiaries are underutilizing the programs home health care options. Many older adults do not receive the home-based clinical care or home-based long-term services and supports that could benefit them.Medicare Coverage of Home Health ServicesMedicare Parts A and B cover certain home health services. Homebound individuals can receive part-time or intermittent skilled services. Part A covers home health care for people following a hospital stay or a stay in a skilled nursing facility. Part B provides home health care for homebound adults who need skilled nursing care.A Medicare beneficiary is considered homebound in the following situations:Because of an illness or injury, they have trouble leaving their home without help, such as a cane, wheelchair, walker, or crutches, special transportation, or another persons assistance.Their physician recommends staying at home.Leaving their residence takes a major effort.The program covers medically necessary part-time or intermittent skilled nursing care and health assistance, durable medical equipment, and medical supplies for use at home.Medicaid also covers long-term services and supports (LTSS), which include medical and personal care services that aid with activities of daily living (ADLs). These are the kinds of services an assisted living facility typically provides.Use of Home-Based Clinical Care and Long-Term Services and Supports Among Homebound Older AdultsA 2023 study published in the Journal of American Medical Directors Association looked into home-based clinical care and home-based LTSS among homebound older Medicare beneficiaries. The researchers examined the Medicare claims of 974 beneficiaries to shed light on their use of in-home services.The study found that while homebound individuals used these services, no group received high levels of all care types.Homebound individuals more commonly utilized LTSS services than home-based clinical care.Approximately 30 percent of participants received some home-based clinical care.About 80 percent of the sample received home-based LTSS.The researchers identified three levels of home clinical care and LTSS usage among older adults:Low Care and Services (46.6 percent). The largest group of participants received little home-based care. These individuals tended to be younger with fewer chronic conditions and functional impairments.Home Health Only with LTSS (44.5 percent). While this group used some home health services, such as assistance with ADLs, they received little home-based clinical care.High Clinical with LTSS (8.9 percent). Only a few participants had extensive home-based clinical care. In addition to tending to be older, they were more likely to have dementia and live alone.In finding that only roughly 9 percent of participants receive high levels of clinical care and LTSS, the study points to a gap between those who could benefit from these services and the care provided. Although in-home care and support could meet the needs of older adults, many homebound older adults do not take full advantage of the services available.Learn More About Your OptionsIf you or your loved one need help with medicare care of activities of daily living at home, contact Sharek Law Office at 412-347-1731 or click here to schedule a complimentary 15-Minute call to learn more about your options. This article is a service of Sharek Law Office, LLC. We dont just draft documents; we ensure you make informed and empowered decisions about life and death, for yourself and the people you love. That's why we offer a Life and Legacy Planning Session, during which you will get more financially organized than youve ever been before and make all the best choices for the people you love. You can begin by calling our office today to schedule a Life and Legacy Planning Session and mention this article to find out how to get this $750 session at no charge. Please note this is educational content only and is not intended to act as legal advice.
Our Supportive Independent, Assisted Living and Memory Care community in Cape Coral, Florida, ensures that life here is exciting, from well-designed apartment homes with convenient features to delicious dining and enriching activity offerings. Regardless of how you choose to spend your day, our friendly staff is here to provide you with all the resources needed to make life easier, more comfortable and more joyful. Gather friends together for an afternoon of fun in the game room. Treat yourself to a movie night. Go for a quiet stroll around our picturesque grounds. Maintenance-free living allows you to spend your time how you wish set free from the task of daily chores and empowered to live extraordinarily .Interested in Atrium at Liberty Park for a loved one? We are here for you as you research options for your loved one.
Our Supportive Independent, Assisted Living and Memory Care community in Cape Coral, Florida, ensures that life here is exciting, from well-designed apartment homes with convenient features to delicious dining and enriching activity offerings. Regardless of how you choose to spend your day, our friendly staff is here to provide you with all the resources needed to make life easier, more comfortable and more joyful. Gather friends together for an afternoon of fun in the game room. Treat yourself to a movie night. Go for a quiet stroll around our picturesque grounds. Maintenance-free living allows you to spend your time how you wish set free from the task of daily chores and empowered to live extraordinarily .Interested in Atrium at Liberty Park for a loved one? We are here for you as you research options for your loved one.
Our Supportive Independent, Assisted Living and Memory Care community in Cape Coral, Florida, ensures that life here is exciting, from well-designed apartment homes with convenient features to delicious dining and enriching activity offerings. Regardless of how you choose to spend your day, our friendly staff is here to provide you with all the resources needed to make life easier, more comfortable and more joyful. Gather friends together for an afternoon of fun in the game room. Treat yourself to a movie night. Go for a quiet stroll around our picturesque grounds. Maintenance-free living allows you to spend your time how you wish set free from the task of daily chores and empowered to live extraordinarily. Interested in Atrium at Liberty Park for a loved one? We are here for you as you research options for your loved one.