For more information about the author, click to view their website: Amira Choice
If presents are what you are after, there are some nice ideas out there – check out the Alzheimer’s Store.
This article, however, focuses on the gift of your presence. Is there anything better than fully being with another person, in a relaxed, fun, comfortable way? How can we give more of that to our loved ones who are living with dementia?
1. We can step out of our comfort zone a tad to communicate more effectively. We may simply need to be a bit louder, to utilize more gestures and to add a little more energy and expression into our words and our tone of voice.
2. We can avoid arguing with the person about their view of reality. (If you have ever won an argument with a person who is living with dementia, well, that’s a first!) We can practice recognizing and acknowledging whatever emotions the person is expressing. I think of this as crossing to their side of the street, looking around, and reporting on what we see. “I get it, Mom. Of course, you’re angry. I would be too.”
3. Sometimes a simple apology is validating. “I’m so sorry, Dad. I can see I’ve upset you.” Validation opens up some space. In that space, you can then change the subject to something else that is meaningful to the person. “I always feel better after a walk. Let’s stretch our legs and find a cup of coffee.”
4. If the person is not averse to being touched, we can use gentle touch to connect, reassure, and to express affection. As dementia progresses, the person may crave good, solid, sincere, gentle touch, as opposed to a cursory pat on the back or a brief hug. Might the person enjoy a little longer hug or a touch on the upper arm that lingers? If you have a parent living with dementia who gave you nurturing, gentle touches as a child, consider whether giving those same kinds of touches back to your parent now might be a comfort. It’s possible that they got those same sorts of touches from a beloved parent!
5. Think out of the box to try new ways of communicating and spending time together, whether your visits are in person or virtual. Especially if conversation is becoming more of a struggle as dementia progresses, try keeping conversation to a minimum in favor of doing things together:
It's not likely every idea here will be an ideal fit for you and your loved one, but hopefully this grab bag will inspire you to explore what will work for you both, so that you can more successfully share YOU, your PRESENCE with them, during this holiday time and beyond!
Navigating Hospital Stays and Rehabilitation for Parkinsons Patients. This article is part of The Parkinsons Care Compass: A Caregiving Roadmap Guiding Families Through Every Stage, an educational series presented by At Your Home Caregiving of Texas. We are honored to walk beside families, offering specialized in-home care solutions to support every step of the Parkinsons journey. Hospital stays are a stressful experience for any family, but for individuals living with Parkinsons disease, hospitalization poses unique challenges that can significantly impact recovery and long-term health. When a Parkinsons patient requires surgery, treatment for complications, or recovery after a fall, family caregivers must act as advocates, organizers, and partners in care. Being prepared and informed is the key to ensuring a safe hospital stay and a smooth transition back home.At Your Home Caregiving of Texas understands these complexities and stands ready to help families through every step of the journey, providing expert support for rehabilitation and home-based recovery.Unique Hospitalization Challenges for Parkinsons PatientsParkinsons disease complicates hospital care in several critical ways: Medication Management: Parkinsons medications must be administered on a strict schedule to manage symptoms effectively. Delays or missed doses can lead to severe motor symptoms, confusion, and even hospitalization complications. Mobility and Fall Risks: Hospital environments are unfamiliar, and Parkinsons patients face an increased risk of falls due to balance issues and muscle rigidity. Cognitive Changes: Hospitalization can sometimes trigger or worsen confusion, memory problems, or delirium, especially in older adults with Parkinsons. Communication Difficulties: Some patients experience soft speech (hypophonia) or facial masking, making it difficult to express needs clearly to hospital staff unfamiliar with Parkinsons care. Being aware of these risks allows families to take a proactive role during the hospital stay, minimizing complications and ensuring the best possible outcome.Preparing for a Hospital Stay: Advocacy and PlanningIf hospitalization is scheduled (for surgery or planned treatments), preparation can make a significant difference:1. Create a Hospital Parkinsons PlanPrepare a simple one-page document outlining your loved ones: Current medications and exact times for administration Mobility limitations and fall risk status Communication needs Cognitive changes or dementia symptoms Preferences for therapy, rehabilitation, and home care after discharge Provide this information to the hospital staff immediately upon admission.2. Bring Medications to the HospitalBring a full list and ideally the actual medications in their original containers. In some hospitals, families can administer Parkinsons medications if theres a risk of delays.3. Assign an AdvocateDesignate a family member or professional caregiver to be present as much as possible, especially during medication times, shift changes, and physician rounds. Having a consistent advocate can prevent critical mistakes and advocate for the patients specialized needs.The Importance of Medication TimingOne of the biggest risks for Parkinsons patients in the hospital is missed or mistimed medications. Parkinsons medications like carbidopa-levodopa must be administered exactly as prescribed, sometimes multiple times a day, to prevent a sudden worsening of motor and non-motor symptoms.Tips for ensuring proper medication administration: Clearly document the medication schedule and insist it be incorporated into the hospitals care orders. Politely but firmly remind nursing staff of the critical importance of on-time dosing. Advocate for medication self-administration if allowed by hospital policy. Watch for any substitutions generic or alternate medications can sometimes affect symptom control. Families should feel empowered to respectfully advocate for their loved ones medical needs. Delay in Parkinsons medication can lead to avoidable setbacks in recovery.Understanding Rehabilitation OptionsAfter hospitalization, rehabilitation is essential for helping Parkinsons patients regain strength, balance, and function. Depending on the situation, rehabilitation may occur in: Inpatient Rehabilitation Facilities (IRFs): Specialized centers offering intensive physical, occupational, and speech therapy. Skilled Nursing Facilities (SNFs): Short-term stays focused on medical monitoring and therapy. Home-Based Rehabilitation: Therapy provided at home, which may be the best option for patients with significant mobility challenges or those at high risk of hospital-acquired infections. At Your Home Caregiving of Texas partners with rehabilitation therapists to support continuity of care at home, ensuring that exercises, safety measures, and care plans are followed consistently.Key Rehabilitation Goals for Parkinsons Patients Improving strength and flexibility Reducing fall risk through balance and gait training Enhancing fine motor skills (handwriting, eating, dressing) Improving swallowing and speech if affected Maintaining independence as much as possible Early rehabilitation after hospitalization is crucial for Parkinsons patients. Without it, the risk of decline, injury, and readmission significantly increases.Transitioning Safely Back HomeThe transition from hospital to home is a vulnerable time. Planning ahead is critical to prevent setbacks.Steps for a Successful Transition: Arrange Home Care Services Early: Schedule in-home caregiving services to assist with mobility, medication reminders, and personal care. Conduct a Home Safety Evaluation: Adapt the home environment to minimize fall risks remove tripping hazards, install grab bars, ensure proper lighting, and use assistive devices. Coordinate Medication Management: Update prescriptions, confirm medication supply, and create a clear medication schedule. Schedule Follow-Up Appointments: Ensure post-discharge physician and therapy visits are scheduled before leaving the hospital. Implement a Rehabilitation Plan: Continue physical therapy and exercise routines at home, guided by professional caregivers and therapists. At Your Home Caregiving of Texas specializes in providing comprehensive transitional care for Parkinsons patients. Our caregivers work alongside families and healthcare professionals to ensure that recovery continues safely and effectively at home.How At Your Home Caregiving of Texas Supports RecoveryFamilies managing Parkinsons care dont have to do it alone. Our services are designed to ease the burden of post-hospitalization recovery by providing: Personalized Care Plans: Tailored to the individuals stage of Parkinsons and rehabilitation needs. Medication Reminders and Assistance: Helping maintain the critical medication schedule. Mobility Support: Assisting with walking, transferring, and exercises to rebuild strength and prevent falls. Nutrition and Meal Support: Preparing nutritious meals that support energy and healing. Companionship and Emotional Support: Reducing anxiety, confusion, and isolation during the recovery process. Coordination with Healthcare Providers: Keeping families informed and ensuring therapy recommendations are carried out at home. We work hard to create an environment where patients can heal comfortably, maintain dignity, and reduce the risk of hospital readmission.Final ThoughtsHospital stays are never easy, especially when Parkinsons disease adds another layer of complexity. But with the right preparation, strong advocacy, and a smooth rehabilitation plan, families can help their loved ones achieve the best possible recovery.At Your Home Caregiving of Texas stands beside you every step of the way from hospital bedside to a safe and healing home environment. Our specialized Parkinsons care services ensure that patients get the compassionate, expert support they need to regain strength, confidence, and independence.When its time to transition home after hospitalization, trust At Your Home Caregiving of Texas to be your partner in care and recovery. At Your Home Caregiving of Texas is proud to support families living with Parkinsons disease through compassionate, expert care. For more resources and personalized caregiving solutions, explore the full Parkinsons Care Compass series or contact us today at 469-830-8414. Together, we can create a safer, stronger path to recovery one step at a time. If someone you care about is facing the challenges of Parkinson's, know that you're not alonewe're always here to help.
GrandFriends Adult Day Program: Compassionate Care for Adults Living with DementiaThe GrandFriends Adult Day Program, located at the Via Health, Fitness, and Enrichment Center, has provided a safe and engaging environment for adults living with dementia for the past 30 years. Our mission is to offer older adults who need supervision and daily care with opportunities to stay mentally and physically healthy. Participation in the program can often delay or prevent the need for placement in a nursing home.Benefits of Adult Day ProgramsAdult day programs play a vital role in maintaining health and independence by providing: Enhanced Independence Encourages self-sufficiency in a supportive environment. Social Engagement Stimulates alertness and activity through meaningful interactions. Structured Activities Creates a sense of routine and anticipation. Physical Exercise Helps reduce anxiety, improve stamina, enhance balance, and promote better sleep. Support for CaregiversCaring for a loved one with dementia while managing work and family responsibilities can be overwhelming. GrandFriends offers caregivers much-needed respite, ensuring their loved ones receive professional and compassionate care in a secure setting.Program Expansion and Grant SupportIn August 2024, Via was one of 21 recipients selected to receive grant funding from the Alzheimers Association Center for Dementia Respite Innovation (CDRI). This funding has allowed us to: Expand Program Space Providing a more comfortable and accommodating environment. Hire Additional Staff Ensuring a 1:4 caregiver-to-client ratio for personalized care. Enhance Technology Introducing smart boards for interactive experiences like movies, museum tours, virtual bird watching, chair yoga, and games. Offer Individualized Programming Tablets with specialized games and activities tailored to each participants needs. Improve Transportation Services Clients within a 15-mile radius can access transportation for $3 per one-way trip. Program Details Hours: MondayFriday, 7:30 AM 5:30 PM (accommodating caregiver work schedules). Cost: $55 per day (one day per week) $50 per day (two or more days per week) To schedule a tour and assessment for your loved one, contact: Christy Harvison, GrandFriends Supervisor 251-470-5228 charvison@viamobile.org "This project is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $6,607,011 with 75 percent funded by ACL/HHS and $1,620,872 with 25 percent funded by non-government source(s). The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by ACL/HHS, or the U.S. Government."
Every day at Harmony at Diamond Ridge we serve families with loved ones who are diagnosed with dementia, Alzheimers disease, and other memory loss diseases. There is a lot of information about memory loss in seniors and the research process can be overwhelming. Dementia is not a specific disease but rather a general term for the impaired ability to remember, think, or make decisions that interfere with everyday activities. Alzheimer's disease is the most common type of dementia The exact cause of Alzheimer's disease is not fully understood, but it is believed to be a combination of genetic, environmental, and lifestyle factors. Some of the known risk factors for Alzheimer's disease include a family history of the disease, head injuries, and certain medical conditions such as high blood pressure, high cholesterol, and diabetes. The symptoms of Alzheimer's disease typically develop slowly over time and worsen as the disease progresses. Some Alzheimers indicators include: Memory loss, especially of recent events Difficulty with language and communication Impaired judgment and decision-making Difficulty with problem-solving and planning Mood changes, such as depression or irritability Personality changes, such as becoming more withdrawn or aggressive Loss of interest in activities or hobbies Difficulty with basic activities of daily living, such as dressing and grooming Research into the causes and treatments of Alzheimer's disease is ongoing, and there is hope that future developments may lead to a better understanding of the disease and new treatments that can improve the lives of those affected by it. Harmony Senior Services Signature Memory Care Program Harmony Reflections is built on elements that support a senior living with Alzheimers disease. The Reflections Program has 5-Key Components; Family Focused, Wellness, Reflections Program: Art and Music, Dining with Dignity, and Harmony Square. Each component engages the resident's present-day experiences while stimulating positive memories through therapeutic visual and tactile aids. We partner with each resident's family to create their individual life story profile - a process for collecting and sharing the resident's life history, preferences, routines, and habits. If you are researching solutions for a loved one living with dementia or you would like to learn more about Harmonys Signature Memory Care Program, call a Harmony community today to speak with one of our dedicated caregivers.
Amira Choice Naples empowers seniors to live optimistically, confidently, and with a sense of purpose. We provide supportive, individualized Assisted Living and Memory Care within a tight-knit community where everyone can flourish.Located in charming Naples, Florida, Amira Choice Naples offers residents a sense of belonging that comes with engagement and connection. Whether they are taking advantage of resort-style living with our extensive amenities and event programming, socializing with neighbors and staff, shopping or dining in the neighborhood, or spending time in their spacious studio, one, or two bedroom private apartment home, residents of Amira Choice Naples experience the best of every day, their way.At Amira Choice Naples, our pet-friendly senior living community offers Assisted Living and Memory Care living options along a continuum of flexible support and care offerings that can be customized according to the needs of each individual.
Amira Choice Naples empowers seniors to live optimistically, confidently, and with a sense of purpose. We provide supportive, individualized Assisted Living and Memory Care within a tight-knit community where everyone can flourish.Located in charming Naples, Florida, Amira Choice Naples offers residents a sense of belonging that comes with engagement and connection. Whether they are taking advantage of resort-style living with our extensive amenities and event programming, socializing with neighbors and staff, shopping or dining in the neighborhood, or spending time in their spacious studio, one, or two bedroom private apartment home, residents of Amira Choice Naples experience the best of every day, their way.At Amira Choice Naples, our pet-friendly senior living community offers Assisted Living and Memory Care living options along a continuum of flexible support and care offerings that can be customized according to the needs of each individual.