By: Joel Kroft, Executive Director of Memory Support
Services
Joel has worked Country Meadows Retirement Community for
more than 20 years, specializing in dementia care. Today he oversees
programming in the Connections Memory Support Services neighborhoods at all 9
campuses and our non-profit sister campus, Ecumenical Retirement Community. His
education and professional background focuses on developmental psychology,
adult development and aging.
The Five Love Languages have integrated their way into
popular culture and are tools in helping us answer the question: How do we love
people well? As established in the New York Times best seller The Five
Love Languages by Gary Chapman, the ways people express and receive
love include: Words of Affirmation, Acts of Service, Quality Time, Receiving
Gifts and Physical Touch. Age, gender and health do not seem to impact these
five guides, as you can reference the principles outlined in the book when
raising children or even starting a relationship. What about when you are
trying to connect with a spouse or understanding the behavior of a family
member who is requiring memory care support?
How do you love well when a world is feeling like it has
flipped upside down after receiving news of a dementia diagnosis? What should
you do when memory care and doctors appointments are all-consuming? Why are
the unpredictable moods and behaviors of the disease making things so hard?
Remember: Love languages evolve.
Memory care can change communication and connection, but
that love you have for your spouse, partner or family member doesnt disappear.
Regardless of the progression of a loved ones memory loss, the love and
friendship that brought you together in the first place is there it may just
look a little different now.
Ill share an example of a husband who attended one of our
Dementia Live events: an activity we host at Country Meadows Retirement
Communities that simulates the sensory experience of someone living with memory
loss for staff training and family education. During these sessions, we walk
participants through scenarios and offer tools and solutions so they can better
understand the disease that is affecting their loved one. This gentleman was
discouraged because his wife, who was receiving memory care services in our
community, was no longer recognizing him. We offered an idea: during his next
visit, bring a photograph of himself as a young man, from when they were early
married. Lead with that photo when entering her apartment and see what happens.
To the husbands great joy, his wife recognized him, and they had a special
moment of connection together.
When one spouse is not experiencing memory loss, that can be
incredibly difficult to relate so its all about understanding your partner and
being creative to make the most out of each interaction. The example I just
described tapped into the emotional response. It can be draining on spouses who
are always re-introducing themselves when their partner forgets them. By coming
forward with the image of his younger self, he let the photo do the talking. As
memory care needs evolve, the residents verbal expressions tend to decrease.
What this spouse did was make the effort to understand where his wife was now
and what she needed. It wasnt easy and that moment of recognition may have
been short-lived but in that moment, love won.
Rather than focusing on what has been lost or needs to
change, this example also demonstrates that love can show up in new and
meaningful ways when translating the Five Love Languages to loved ones with
memory loss.
Words of Affirmation
Words have a different effect on an individual receiving
memory care-but words still matter! According to the Alzheimers Society,
depending on the type and stage of the disease, the part of the brain that
controls language is damaged, meaning the processing of spoken words can be
delayed or impossible because words are jumbled. This is a hard part of the
progression for spouses, because the resident cant say the words back or the
sentiment is seemingly not returned. This should not discourage you from saying
sincere words and greetings because the feelings are felt. Words of affirmation
and love provide reassurance. They may need to be repeated often, but with a
compassionate tone and delivery, words can actually translate into comfort and
safety.
Quality Time
Visits going from doing things together to simply being
together can be an adjustment for spouses and family members as they learn the
evolved preferences of their loved one. For example, if the family is
accustomed to shopping trips and game nights, now, those activities could be
too stimulating or just not feasible due to the physical and emotional toll
this may have on a loved one. Now, the main activity could be sharing a cup of
coffee or bopping along to a favorite song. This shifts the expectation to being
fully present-also an expression of love. If you need more ideas, check
out these suggestions for successful visits with a loved one in a memory
care neighborhood.
Acts of Service
When memory care responsibilities take over, the dynamic
often turns from being a spouse to being a caretaker. This tends to be the
primary love language given and received as dementia progresses. Between
managing medication, supporting daily routines and preparing meals, caregiving
days can feel like Groundhogs Day. That is when it is critical to remember
that these tasks are acts of love and devotion. Even hiring a professional
caregiver to assist you or moving into a retirement community to share in the
care are still ways you are honoring your loved one and your caregiver role.
Physical Touch
Holding hands or embracing in a gentle hug are our bodies
ways of grounding and reassuring safety and comfort. When words tend to fail, a
simple touch communicates presence. Being mindful of comfort level on a
particular day and boundaries is important in making the most out of this
interaction. Remember the example I shared about the husband who was not being
recognized. Imagine if he walked in beaming with physical affection and went in
for a kiss. His wife could spiral into confusion and become agitated because
this stranger is making advances. In his example, having him extend a
handshake first or go in for a kind hand-hold is an appropriate touch that
demonstrates his affections and intentions at a slow and comfortable pace for
the resident.
Gift-Giving
Consider gifts that spark reminiscing or familiarity. As the
progression of the disease advances, surprises are much less welcome. A family
photo album, cozy sweater or blanket make for thoughtful and useful gifts that
bring a sense of calm or comfort. Another element of memory care is that it is
important to remember that cognitively your loved ones may not be interested in
the things they once were. For example, someone who previously appreciated
fancy handbags may be in the stage of the disease where they are benefiting
from Nurture Therapy activities such as caring for a baby doll or
stuffed animal. Another thoughtful gift for someone in this stage could be a
stuffed animal that resembles the family dog or accessories for the baby doll.
This can be a difficult aspect of the disease for loved ones and family
members, but what we hope family members recognize is that the resident is
drawing back to a time of her life filled great purpose and love. Need some
gift ideas: Good Housekeeping outlined helpful gifts for people for
every stage of dementia.
Love that Adapts is Still Love
The expressions may look different, but in the end, its
still love. A steadfast, loyal and comforting companion is no match for this
diagnosis! By meeting the spouse where he or she is at along the memory care
journey, you are just reshaping and reconnecting the foundational elements that
has built your beautiful love story this far. Want to know something else
thats specialthere is still so much to know and learn from each other!
Caregivers Deserve Care, Too
Being a caregiver of a spouse with a dementia diagnosis can
be challenging in its own way as you are mixed with your own unmet needs,
experiencing grief of things that seem lost or even feeling lonely. Seeking
support, taking breaks and managing your own mindset and expectations can
provide important moments care for the caregiver. Please know that taking
a breath for you and making space for your emotions are not a sign of weakness
or not loving or appreciating your loved one!
Country Meadows offers a variety of support groups for
family caregivers and even specific to spouses with our Still Us network, and
even the Dementia Live trainings to encourage caregivers and foster a sense of
community. Contact a campus community near you for a full schedule of
upcoming caregiver support activities.